Fundamental flaws in the design and reporting of research outcomes can undermine evidence-based medicine, impede patient-centred care, cause harm to patients, and result in a waste of research dollars. Our 3-year multinational project engages with patients, caregivers, clinicians, researchers and policy makers, to establish core outcomes in haemodialysis. This will ensure that patient-centred outcomes are consistently measured and reported in haemodialysis trials and other forms of research.
Notifications To The Australian Health Practitioner Regulation Agency: Identifying ‘hot Spots’ Of Risk To Help Improve The Quality And Safety Of Healthcare
Funder
National Health and Medical Research Council
Funding Amount
$276,072.00
Summary
Health practitioners with performance, health or conduct concerns can present a serious risk to patients. Yet we lack reliable methods for identifying these practitioners at an early stage. Each year the Australian Health Practitioner Regulation Agency receives 1,000s of notifications about individual practitioners. We will use this data to identify “hot spots” of risk among different groups of practitioners and help target interventions to support practitioners and protect patients from harm.
Identifying And Implementing Standardised Outcomes In Kidney Transplantation
Funder
National Health and Medical Research Council
Funding Amount
$274,076.00
Summary
The inconsistencies and lack of patient involvement in outcome selection for research can undermine shared decision-making and patient-centred care. Over three years, this global project will bring together patients,family members, healthcare providers, policy makers and industry to identify core outcomes in kidney transplantation. Implementation of the core outcome set will ensure that outcomes report in research are relevant, meaningful and important to patients with a kidney transplant.
Using Linked Population-based Health-related Datasets To Optimise Cancer Care And Reduce Survival Disparities.
Funder
National Health and Medical Research Council
Funding Amount
$850,941.00
Summary
In partnership with the Victorian Department of Health and Human Services, we will use detailed health data from various sources to assess how care is provided to people with cancer and determine why some have better survival than others. The findings will be used to change government policy and clinical practice in order to improve cancer outcomes for those who fair worse. We will establish a data bank to enable this information to be used to improve services into the future.
Understanding how local and regional accessibility are associated with active travel, and related health and economic impacts. Exercise and walking are vital for a healthy lifestyle and wellbeing. The accessibility and ’walkability’ of where one lives and works is key to supporting physical activity. Consequently, public health practitioners, urban planners and the transport sector face a common strategic challenge; shifting people from private vehicles to active forms of transport. This project ....Understanding how local and regional accessibility are associated with active travel, and related health and economic impacts. Exercise and walking are vital for a healthy lifestyle and wellbeing. The accessibility and ’walkability’ of where one lives and works is key to supporting physical activity. Consequently, public health practitioners, urban planners and the transport sector face a common strategic challenge; shifting people from private vehicles to active forms of transport. This project aims to model the health and economic impacts of the ease of: walking and cycling within neighbourhoods; and travelling across wider geographical areas on time spent walking and cycling for transport among both adults and children. This project aims to enable the research team to maximise the opportunities the environment provides for both positive health and well-being in Australia.Read moreRead less
Magnesium Sulphate In Women At Risk Of Preterm Birth For Fetal Neuroprotection - An Individual Patient Data Review
Funder
National Health and Medical Research Council
Funding Amount
$276,002.00
Summary
Infants born preterm are at high risk of dying and survivors have a higher risk of neurological problems. Evidence suggests that giving magnesium sulphate to women at risk of preterm birth prior to delivery reduces cerebral palsy in surviving children. It is unclear which women may benefit, what dose and when prior to birth should magnesium sulphate be given. This review will determine how individual women should be treated with magnesium to help protect the brain of a baby born too soon.
Investigating The Utility Of Primary Care Skin Cancer Clinics In Queensland
Funder
National Health and Medical Research Council
Funding Amount
$187,000.00
Summary
Skin cancer is the most common cancer in Australia, with an estimated 375,000 people being treated for some skin cancer in Australia in 2002, and 1462 dying from the disease (mainly from melanoma) in 2001. Australia has the highest rate of skin cancer, both melanoma and non-melanoma is the world. However, if detected early, skin cancer is curable, and the focus of current treatment programs internationally is to detect the disease before it progresses to an advanced stage. A large proportion of ....Skin cancer is the most common cancer in Australia, with an estimated 375,000 people being treated for some skin cancer in Australia in 2002, and 1462 dying from the disease (mainly from melanoma) in 2001. Australia has the highest rate of skin cancer, both melanoma and non-melanoma is the world. However, if detected early, skin cancer is curable, and the focus of current treatment programs internationally is to detect the disease before it progresses to an advanced stage. A large proportion of skin cancers are first detected by the non-medical community. However, due to the two-tiered medical system in Australia, a person first seeks medical opinion from a general practitioner (GP), who acts as a gatekeeper for further treatment from a specialist. Therefore the ability of GPs to be able to discern which lesions require further treatment is crucial, both for the patient, and the financial burden on the health system. A recent development has been the establishment of dedicated primary skin care clinics, which offer open access consultations to the community for the diagnosis and treatment of skin cancers and pigmented lesions. The emergence of these clinics has created much debate in the medical media. Concern has been expressed about the skills of practitioners in these clinics, whilst others argue that sub-specialisation in primary care will lead to improvements in the management of patients. As there is currently no data on the volume, casemix and diagnostic accuracy of these clinics it is difficult to assess the diagnostic ability of skin cancer clinics. This will be the first project to quantify the role of skin clinics in the diagnosis of skin cancer in the community, and in particular their case volume, casemix and diagnostic accuracy, and assess these measures in relation to a comparable sample of general practitioners. Queensland is an ideal location for a study of this type due to its high incidence of both types of skin cancer.Read moreRead less
Advancing cycling as an active transport mode using data driven approaches. This research program aims to provide the critical evidence that is needed to advance cycling as an active and sustainable mode of transport. Through interdisciplinary research and multi-national collaborations, the program will develop a world-leading data platform that will monitor, inform and evaluate cycling, and use this platform to provide the evidence that is needed to enhance cycling participation, safety and inf ....Advancing cycling as an active transport mode using data driven approaches. This research program aims to provide the critical evidence that is needed to advance cycling as an active and sustainable mode of transport. Through interdisciplinary research and multi-national collaborations, the program will develop a world-leading data platform that will monitor, inform and evaluate cycling, and use this platform to provide the evidence that is needed to enhance cycling participation, safety and infrastructure. The outcomes of the research will revolutionise our ability to implement safe and connected cycling infrastructure in areas of greatest need, leading to reduced injury, greater equity and wider uptake of cycling as a mode of transport, thereby leading to substantial gains in population and environmental health.Read moreRead less
Women Consider Retirement: A Critical Investigation of Attitudes Towards Work, Ageing and Retirement in Three Generations of Australian Women. The broad aim of this project is to investigate what work and retirement mean for women as they age and to consider the implications of these attitudes, intentions and experiences for government policy, especially given current concerns about workforce maintenance in view of population ageing.
The project will:
- develop a comprehensive understanding ....Women Consider Retirement: A Critical Investigation of Attitudes Towards Work, Ageing and Retirement in Three Generations of Australian Women. The broad aim of this project is to investigate what work and retirement mean for women as they age and to consider the implications of these attitudes, intentions and experiences for government policy, especially given current concerns about workforce maintenance in view of population ageing.
The project will:
- develop a comprehensive understanding of the characteristics, attitudes and experiences of three generations of women in relation to work, ageing and retirement
- examine the extent and consequences of generational and geographic differences in attitudes and choices
- explore the complex social and cultural factors shaping these attitudes, choices and consequences.
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Unequal futures: A critical investigation of regional and sociocultural variations in teenage pregnancy. The overarching aim of this project is to investigate geographical and sociocultural variations in teenage pregnancy in Australia, encompassing the over-representation of young Indigenous teenage mothers. It considers the implications of these differences for government policy.
The project aims to:
- define the parameters of teenage pregnancy
- map the complex social context in whic ....Unequal futures: A critical investigation of regional and sociocultural variations in teenage pregnancy. The overarching aim of this project is to investigate geographical and sociocultural variations in teenage pregnancy in Australia, encompassing the over-representation of young Indigenous teenage mothers. It considers the implications of these differences for government policy.
The project aims to:
- define the parameters of teenage pregnancy
- map the complex social context in which to understand teenage pregnancy
- identify the information, support, and services most likely to ensure that young women have options for pregnancy and motherhood which maximise their health and wellbeing
- identify factors which account for unintentional teenage pregnancy and strategies for prevention or amelioration.
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