Fundamental flaws in the design and reporting of research outcomes can undermine evidence-based medicine, impede patient-centred care, cause harm to patients, and result in a waste of research dollars. Our 3-year multinational project engages with patients, caregivers, clinicians, researchers and policy makers, to establish core outcomes in haemodialysis. This will ensure that patient-centred outcomes are consistently measured and reported in haemodialysis trials and other forms of research.
Centre Of Research Excellence: Partnering With Patients With Chronic Kidney Disease To Transform Care And Outcomes (CRE-PACT)
Funder
National Health and Medical Research Council
Funding Amount
$2,500,000.00
Summary
CRE-PACT will partner with patients to generate and translate new high-priority evidence to improve outcomes that are important to people living with chronic kidney disease (CKD). We will address the topics and questions most important to patients. We will build the next generation of research leaders and a community of research-ready patient-partners. There will be an integrated pathway for evidence translation and implementation at a global scale to improve patient-centred outcomes.
Creating A Culture Of Safety And Respect: A Controlled, Mixed Methods Study Of The Effectiveness Of A Behavioural Accountability Intervention To Reduce Unprofessional Behaviours
Funder
National Health and Medical Research Council
Funding Amount
$875,978.00
Summary
Unprofessional behaviours among health professionals are common and are associated with increased patient dissatisfaction and medicolegal risk. Addressing these behaviours is a national issue. Ethos is a structured accountability system involving a process of early, non-punitive and tiered intervention and will be introduced across four Australian hospitals. This research will be the first controlled study to assess the effectiveness of the Ethos program to improve patient safety in Australia.
Patient-centred EHealth Approach To Improving Outcomes For Gout Sufferers
Funder
National Health and Medical Research Council
Funding Amount
$688,354.00
Summary
Gout, caused by excessive urate, can be controlled by prescribing medication and patients adhering to them. We will conduct a 2-year controlled trial in primary care to test an eHealth tool to significantly improve gout patient outcomes. This tool tracks patients plasma urate, medication adherence, gout attacks and provides education, interaction with gout experts and reminders of medical visits. Nationwide rollout of this gout management tool will occur after improved outcomes are proven.
Improving Outcomes For Patients Receiving Outpatient Chemotherapy Through A Shared Care Pathway Intervention
Funder
National Health and Medical Research Council
Funding Amount
$623,887.00
Summary
Many cancer patients receiving chemotherapy treatment continue to experience serious side effects at home, where they struggle to self-manage and often go to hospital after symptoms have worsened. We have developed an innovative clinical pathway involving the provision of home-based assessment, clinical care and advice by community nurses, which aims to help patients without creating new health service positions. Our study will test if the pathway decreases unplanned hospital visits, improves pa ....Many cancer patients receiving chemotherapy treatment continue to experience serious side effects at home, where they struggle to self-manage and often go to hospital after symptoms have worsened. We have developed an innovative clinical pathway involving the provision of home-based assessment, clinical care and advice by community nurses, which aims to help patients without creating new health service positions. Our study will test if the pathway decreases unplanned hospital visits, improves patient well-being and is cost-effective.Read moreRead less
Harnessing Information Technology To Improve Self-management Behaviours And Health Outcome In People With Heart Failure: A Smarthome Ecosystem Living Lab Study
Funder
National Health and Medical Research Council
Funding Amount
$1,120,226.00
Summary
The burden of heart failure in Australia is substantial. Management of heart failure is complex and requires self-management of symptoms and behaviour change, which requires ongoing education and support to achieve. Current approaches for supporting self-management do not meet the needs of people with heart failure or the healthcare system. This Australian first project aims to co-design an intelligent smart home ecosystem (Smart Heart) to support the management for people with heart failure.
Which Heart Failure Intervention Is Most Cost Effective In Reducing Hospital Care (WHICH? II) Trial: A Multicentre, Randomised Trial Of Standard Versus Intensified Management Of Metropolitan And Regional-dwelling Patients With Heart Failure
Funder
National Health and Medical Research Council
Funding Amount
$1,891,210.00
Summary
Chronic heart failure (CHF) management programs are now the gold-standard to cost-effectively care for thousands of Australians hospitalised with CHF each year. We’ve shown that home-based management is most cost-effective in reducing hospital stay in CHF. The Which Intervention is most Cost-effective in reducing Hospital care (WHICH? II) Trial, a multicentre, randomised study, will determine if more intensive care (via home visits and remote care contacts) further improves poor outcomes in CHF.
Comparative Analysis of Early Intervention Programs for Young Children with Autism. This project will contribute valuable information on how agencies and governments nationally and overseas can cater for a rapidly growing number of students identified with autism. Two early intervention programs - home-based and centre-based - for young children with autism and their families will be compared to each other and a control group. Through promoting strong family knowledge about autism, strategies fo ....Comparative Analysis of Early Intervention Programs for Young Children with Autism. This project will contribute valuable information on how agencies and governments nationally and overseas can cater for a rapidly growing number of students identified with autism. Two early intervention programs - home-based and centre-based - for young children with autism and their families will be compared to each other and a control group. Through promoting strong family knowledge about autism, strategies for managing a young child with autism (e.g., communication, social skills), plus fostering inter-family and community links, families will be empowered to promote healthy outcomes for their young child.Read moreRead less
Relations between academics' understanding of their subject matter and their experiences of research and teaching. This project addresses an issue of international concern for higher education. Previous studies of associations between research and teaching have focused either on direct relations between outcomes, or on faculty and administrator opinions. We mean to explain the connection using a framework from our research into academics' understanding of their subject matter and approaches to t ....Relations between academics' understanding of their subject matter and their experiences of research and teaching. This project addresses an issue of international concern for higher education. Previous studies of associations between research and teaching have focused either on direct relations between outcomes, or on faculty and administrator opinions. We mean to explain the connection using a framework from our research into academics' understanding of their subject matter and approaches to teaching. We expect the outcomes to demonstrate that the key to the research-teaching connection lies in how active researchers and teachers experience the two activities, and that the association is mediated by the way in which they understand their subject matter.Read moreRead less
Writing in the academy: the practice-based thesis as an evolving genre. National benefits of this project include:
An improvement in the quality of research higher degree scholarship in the areas of the Creative and Performing Arts in Australian universities
A greater understanding of what counts as successful writing in practice-based doctoral theses in Australian universities
A research-informed basis for the development of training initiatives which target the specific needs of stude ....Writing in the academy: the practice-based thesis as an evolving genre. National benefits of this project include:
An improvement in the quality of research higher degree scholarship in the areas of the Creative and Performing Arts in Australian universities
A greater understanding of what counts as successful writing in practice-based doctoral theses in Australian universities
A research-informed basis for the development of training initiatives which target the specific needs of students writing practice-based doctoral theses in Australian universities
A research-informed basis for improving the quality of research higher degree supervision in the areas of the Creative and Performing Arts in Australian universities
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