Expand the capacity of an international multidisciplinary research network focussed on the ethical, legal and social implications of emerging biotechnologies. This project will ensure that Australia plays a central role in international debates and research activities aimed at regulating and facilitating advances in biotechnology. The project will also provide Australian researchers with direct access to key international experts in the field.
Facilitation and Regulation of Research and Development Involving Human Genetic Databanks. Australia's medical biotechnology research feeds into our biotechnology industries, with flow-on benefits for national health and prosperity. Realisation of these benefits is contingent upon community protection and public trust. An effective and appropriate regulatory regime is a foundation requirement. This project aims to shape a national regulatory framework for human genetic databanks that both facili ....Facilitation and Regulation of Research and Development Involving Human Genetic Databanks. Australia's medical biotechnology research feeds into our biotechnology industries, with flow-on benefits for national health and prosperity. Realisation of these benefits is contingent upon community protection and public trust. An effective and appropriate regulatory regime is a foundation requirement. This project aims to shape a national regulatory framework for human genetic databanks that both facilitates research and maintains highest ethical standards. By examining the balance between facilitation and regulation, assessing existing law reform proposals, making recommendations for further reform, and placing this analysis in the international context, this project will significantly benefit the nation and the research community. Read moreRead less
Legal and Ethical Regulation of the Use and Commercialisation of Human Biological Material. The Australian government has a policy of promoting expertise in genomics. An essential ingredient of research and development of the genomics industry is access to human biological material. A clear regulatory framework is required, consistent with national ethical principles. There is lack of clarity, legally and ethically, in relation to ownership (including derivative claims), consented and un-consent ....Legal and Ethical Regulation of the Use and Commercialisation of Human Biological Material. The Australian government has a policy of promoting expertise in genomics. An essential ingredient of research and development of the genomics industry is access to human biological material. A clear regulatory framework is required, consistent with national ethical principles. There is lack of clarity, legally and ethically, in relation to ownership (including derivative claims), consented and un-consented use, contracts, conflict of interest and benefit sharing in human biological material, including regenerative tissue. Clarification will facilitate ethical research and commercialisation. These issues will be analysed systematically with recommendations for Australia consistent with international standards.Read moreRead less
Special Research Initiatives - Grant ID: SR0354765
Funder
Australian Research Council
Funding Amount
$10,000.00
Summary
Developing a multidisciplinary international research network focussed on maximizing the social and health benefits to Australia of human genetic technologies. The initiative will build upon the Centre for Law and Genetics' existing informal networks, resources and infrastructure with the aim of constructing an Australian based multidisciplinary research network, with extensive functional global links. The network will be designed to facilitate and coordinate collaboration across disciplines, in ....Developing a multidisciplinary international research network focussed on maximizing the social and health benefits to Australia of human genetic technologies. The initiative will build upon the Centre for Law and Genetics' existing informal networks, resources and infrastructure with the aim of constructing an Australian based multidisciplinary research network, with extensive functional global links. The network will be designed to facilitate and coordinate collaboration across disciplines, institutions and geographic boundaries to address the legal, ethical, social, and policy implications of human genetic technologies. It will aim to maximise the social and health benefits in the most effective, efficient and economic manner; avoiding duplication and promoting the free exchange of ideas and information, and fostering cooperative effort on a global scale.Read moreRead less
A narrative theory of ethics. The project aims to conduct a detailed investigation into a narrative approach to ethics. Narrative is an increasingly popular but relatively under-theorised concept. Taking as its basis work in narrative theory and ethics by Paul Ricoeur, the project aims to provide an innovative conceptual scheme which incorporates recent philosophical accounts of selfhood, emodiment, autonomy, action, and pluralistic conceptions of the good. The project will result in a major con ....A narrative theory of ethics. The project aims to conduct a detailed investigation into a narrative approach to ethics. Narrative is an increasingly popular but relatively under-theorised concept. Taking as its basis work in narrative theory and ethics by Paul Ricoeur, the project aims to provide an innovative conceptual scheme which incorporates recent philosophical accounts of selfhood, emodiment, autonomy, action, and pluralistic conceptions of the good. The project will result in a major contribution to scholarship in philosophy and ethics, as well as to the articulation of notions such as identity, subjectivity, trust, rights, obligation and accountability, across the social sciences.Read moreRead less