Ensuring The Utility And Sustainability Of Tissue Banks: Supporting Translational Research In Australia Through Informed Regulation And Community Engagement.
Funder
National Health and Medical Research Council
Funding Amount
$481,885.00
Summary
Tissue banks provide a critical resource for translational research into the causes and treatment of many diseases affecting children and adults, such as cancer.Their success and contribution to medical research depends on addressing the many unresolved and emerging challenges that impact their work. This is the first national empirical study engaging the Australian research community, legal experts tissue donors and the public about the challenges to tissue banks to inform ethico legal regulati ....Tissue banks provide a critical resource for translational research into the causes and treatment of many diseases affecting children and adults, such as cancer.Their success and contribution to medical research depends on addressing the many unresolved and emerging challenges that impact their work. This is the first national empirical study engaging the Australian research community, legal experts tissue donors and the public about the challenges to tissue banks to inform ethico legal regulation and deliver better health care systems.Read moreRead less
Developing Evidence Based Strategies For Addressing Childhood Vaccination Rejection
Funder
National Health and Medical Research Council
Funding Amount
$743,927.00
Summary
Parental rejection of vaccines is a global concern that threatens to undermine disease control. A lack of evidence hampers the responses to this complex and persistent problem. We will interview parents who don’t vaccinate their children to learn what influences their decisions. We will then hold community juries and a public engagement process to refine strategies for responding to vaccination rejection that are acceptable to a well informed citizenry, practical and ethically justified.
Everyday Incivilities. The study aims to provide the best available evidence on the seriousness of everyday incivilities between strangers in public places as a social problem in Australian society. This will involve gathering self-report data from socially diverse Australians for the purpose of exploring social group differences in (i) the type and prevalence of everyday incivilities experienced, and (ii) the social and psychological costs of exposure to everyday incivilities. The information ....Everyday Incivilities. The study aims to provide the best available evidence on the seriousness of everyday incivilities between strangers in public places as a social problem in Australian society. This will involve gathering self-report data from socially diverse Australians for the purpose of exploring social group differences in (i) the type and prevalence of everyday incivilities experienced, and (ii) the social and psychological costs of exposure to everyday incivilities. The information gathered will be used to identify high risk social groups and public places, and serve as a basis for developing programs for reducing everyday incivilities.Read moreRead less
Co-operative intellectual property management and technology transfer for the Australian biotechnology industry. The Australian biotechnology industry rests on a framework of internationally competitive research and should be well placed to capture a significant share of expanding global markets. However, existing intellectual property (IP) management strategies do not make the most of this potential because they raise barriers to much-needed co-operation among industry players. By developing an ....Co-operative intellectual property management and technology transfer for the Australian biotechnology industry. The Australian biotechnology industry rests on a framework of internationally competitive research and should be well placed to capture a significant share of expanding global markets. However, existing intellectual property (IP) management strategies do not make the most of this potential because they raise barriers to much-needed co-operation among industry players. By developing and refining new co-operative IP management models in an Australian context, this project offers direct economic benefits (more efficient industry structures), improved social and economic benefits (better and cheaper biotechnology products and services), and an opportunity for Australia to take the lead in developing innovative approaches to IP management.Read moreRead less
Challenging the stigmatisation of poverty and place-based disadvantage. There is widespread community tolerance for using demeaning and derisory stereotypes to describe individuals experiencing poverty and socioeconomic disadvantage. This negative stereotyping, which also attaches to neighbourhoods with high proportions of disadvantaged households, has many adverse effects and undermines poverty reduction efforts. The proposed research will examine the influence of the media on wider community a ....Challenging the stigmatisation of poverty and place-based disadvantage. There is widespread community tolerance for using demeaning and derisory stereotypes to describe individuals experiencing poverty and socioeconomic disadvantage. This negative stereotyping, which also attaches to neighbourhoods with high proportions of disadvantaged households, has many adverse effects and undermines poverty reduction efforts. The proposed research will examine the influence of the media on wider community attitudes to poverty and socioeconomic disadvantage in Australia and the United Kingdom, develop an innovative method for research involving populations vulnerable to being stigmatised, and generate new knowledge of the effects of poverty stigma. Findings will inform strategies for challenging stigma. Read moreRead less
Using Conservation Covenants for Ecosystem Restoration & Climate Adaptation. This project aims to investigate the role of conservation covenants in facilitating ecological restoration and adaptation to climate change. In light of international experience, the project examines Australia's legal experience with conservation covenants, with case studies in NSW, Queensland, Tasmania and Victoria. The project expects to generate new theoretical insights and practical knowledge about the obstacles an ....Using Conservation Covenants for Ecosystem Restoration & Climate Adaptation. This project aims to investigate the role of conservation covenants in facilitating ecological restoration and adaptation to climate change. In light of international experience, the project examines Australia's legal experience with conservation covenants, with case studies in NSW, Queensland, Tasmania and Victoria. The project expects to generate new theoretical insights and practical knowledge about the obstacles and opportunities for enabling covenants to play a more ambitious role in meeting biodiversity conservation and recovery goals. This should generate significant benefits to Australia in meeting its international environmental obligations, and improving collaboration between governments and community and landholder stakeholders.Read moreRead less
Managing innovation with a policy-relevant framework to assess the social consequences of technological developments. A framework to assess the social consequences of new technologies will enable their benefits to be maximised and impacts lessened. By considering impacts during development and before release, design criteria can be broadened, appropriate management and mitigation measures implemented and appropriate regulatory conditions established. Interested parties can participate in discuss ....Managing innovation with a policy-relevant framework to assess the social consequences of technological developments. A framework to assess the social consequences of new technologies will enable their benefits to be maximised and impacts lessened. By considering impacts during development and before release, design criteria can be broadened, appropriate management and mitigation measures implemented and appropriate regulatory conditions established. Interested parties can participate in discussions about technology directions at an early stage, allowing technological development that is more democratic and less obstructed by conflict. Society benefits by having socially-appropriate and socially-acceptable technologies. Industry benefits from clearer technology development paths and a better understanding of potential social impacts of new technology.Read moreRead less
Expand the capacity of an international multidisciplinary research network focussed on the ethical, legal and social implications of emerging biotechnologies. This project will ensure that Australia plays a central role in international debates and research activities aimed at regulating and facilitating advances in biotechnology. The project will also provide Australian researchers with direct access to key international experts in the field.
Indigenous Lifecourse Research, Data Governance and Capacity Building . This project aims to contribute to rectifying 3 significant gaps in Indigenous research in relation to data; a lack of Indigenous lifecourse research to inform policy development; a lack of Indigenous governance of data; and a broader lack of Indigenous statistical literacy and capability. This project expects to address these gaps: by initiating an Indigenous lifecourse research agenda, using existing datasets; by being th ....Indigenous Lifecourse Research, Data Governance and Capacity Building . This project aims to contribute to rectifying 3 significant gaps in Indigenous research in relation to data; a lack of Indigenous lifecourse research to inform policy development; a lack of Indigenous governance of data; and a broader lack of Indigenous statistical literacy and capability. This project expects to address these gaps: by initiating an Indigenous lifecourse research agenda, using existing datasets; by being the first project to model the application of Indigenous data governance to existing data resources; and by delivering a modularised Indigenous Statistics Course, the first of its kind in Australia, plus a set of statistical literacy workshops to Indigenous organisations to meet Indigenous determined data needs.
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