Addressing hepatitis C-related discrimination in a post-cure world. This project aims to address the legal and policy dimensions of hepatitis C discrimination. Hepatitis C is a major public health challenge linked to profound discrimination, including in law and policy. Treatments introduced in 2016 improved cure rates; optimism about disease elimination is high, but questions remain about discrimination faced by those who are cured. This interdisciplinary project’s goal is to generate new knowl ....Addressing hepatitis C-related discrimination in a post-cure world. This project aims to address the legal and policy dimensions of hepatitis C discrimination. Hepatitis C is a major public health challenge linked to profound discrimination, including in law and policy. Treatments introduced in 2016 improved cure rates; optimism about disease elimination is high, but questions remain about discrimination faced by those who are cured. This interdisciplinary project’s goal is to generate new knowledge about hepatitis C discrimination in a post-cure context, and identify opportunities for legal and policy reform. Expected outcomes of the project include better legal, social and policy outcomes for Australians cured of hepatitis C, significantly benefiting these individuals directly and society more broadly.Read moreRead less
A comparative sociocultural and bioethical study of uterus transplants . This socio-cultural study aims to undertake a comparative study of the new Australian Uterine Transplant (UTx) trial with established and emerging UTx programs in the US and India. Expected outcomes of this project include: enhanced understandings of the experiences and meanings of uterine transplant for women donors, recipients and staff involved in UTx trials; an exploration of the ethical issues raised by this technolog ....A comparative sociocultural and bioethical study of uterus transplants . This socio-cultural study aims to undertake a comparative study of the new Australian Uterine Transplant (UTx) trial with established and emerging UTx programs in the US and India. Expected outcomes of this project include: enhanced understandings of the experiences and meanings of uterine transplant for women donors, recipients and staff involved in UTx trials; an exploration of the ethical issues raised by this technology; and a comparison of social responses to uterine transplants across different societies.This study is anticipated to provide theoretical insights on the social and ethical impacts of this technology for improved public policy responses. Read moreRead less
Understanding the Australian public's expectations of personalised genomics. This multi-disciplinary project aims to be the first to explore the Australian public's awareness of new developments in genetic science that allow healthy individuals to access their own genetic makeup. Called 'personal genomics', this broad group of genetic tests can be used for a variety of purposes that include ancestry, paternity, sporting ability and health. These tests are developing at a rapid rate yet little is ....Understanding the Australian public's expectations of personalised genomics. This multi-disciplinary project aims to be the first to explore the Australian public's awareness of new developments in genetic science that allow healthy individuals to access their own genetic makeup. Called 'personal genomics', this broad group of genetic tests can be used for a variety of purposes that include ancestry, paternity, sporting ability and health. These tests are developing at a rapid rate yet little is known about why, how and where they are used by the public. This project will employ a mixed methods approach to examine how the public might engage with this new technology. The research aims to help define educational strategies and supports and thereby to inform national policy for personal genomics.Read moreRead less
Lived experiences of treatment for hepatitis C in Australia. This project aims to support uptake of new hepatitis C treatments. With the introduction of new treatments in 2016, the Australian Government adopted the WHO’s goal of eliminating the disease by 2030. While early treatment rates were high, they have since plateaued, with stigma and poor information considered key obstacles. This project will generate new knowledge on treatment decisions and experiences, using a proven qualitative metho ....Lived experiences of treatment for hepatitis C in Australia. This project aims to support uptake of new hepatitis C treatments. With the introduction of new treatments in 2016, the Australian Government adopted the WHO’s goal of eliminating the disease by 2030. While early treatment rates were high, they have since plateaued, with stigma and poor information considered key obstacles. This project will generate new knowledge on treatment decisions and experiences, using a proven qualitative methodology. In doing so, it will produce a website covering personal experiences of treatment, issues in treatment decision-making, and advice on enhancing life on treatment and after. It will tackle hepatitis C-related stigma, and inform and benefit potential treatment users, families and relevant professionals.
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Understanding the role of trauma in alcohol and other drug-related problems. This project aims to investigate the relationship between trauma and alcohol and other drug (AOD)-related problems. Using a robust set of qualitative and ethnographic methods, the project expects to advance international knowledge on how experiences of trauma influence AOD consumption, and the diverse factors that shape variation in experience and outcomes for individuals. Expected outcomes include targeted recommendati ....Understanding the role of trauma in alcohol and other drug-related problems. This project aims to investigate the relationship between trauma and alcohol and other drug (AOD)-related problems. Using a robust set of qualitative and ethnographic methods, the project expects to advance international knowledge on how experiences of trauma influence AOD consumption, and the diverse factors that shape variation in experience and outcomes for individuals. Expected outcomes include targeted recommendations to improve AOD responses, policy and trauma-informed AOD care, and increased capacity of the Australian health workforce to respond to trauma and AOD-related problems. This should provide significant benefit by reducing the harms, and economic and social costs associated with AOD consumption.Read moreRead less
Experiences of addiction, treatment and recovery: An online resource for members of the public, health professionals and policymakers. Alcohol and other drug addiction is a major health and social issue in Australia. Treatment success rates are modest and little is known about how people experience and manage addiction and the stigma that accompanies it. This project will generate new knowledge on alcohol and other drug addiction by applying a proven qualitative methodology to these issues for t ....Experiences of addiction, treatment and recovery: An online resource for members of the public, health professionals and policymakers. Alcohol and other drug addiction is a major health and social issue in Australia. Treatment success rates are modest and little is known about how people experience and manage addiction and the stigma that accompanies it. This project will generate new knowledge on alcohol and other drug addiction by applying a proven qualitative methodology to these issues for the first time. It will produce an effective, innovative online resource for affected Australians, their family and friends, and the wider Australian community including health professionals and policymakers.Read moreRead less
Fostering global digital citizenship: diaspora youth in a connected world. This project aims to identify the global digital citizenship dimensions of diaspora youth’s everyday digital media use. The project intends to use a new approach in order to investigate how these practices can be fostered through digital citizenship policy and programs to improve the inclusion and participation of culturally diverse youth and maximise their effectiveness. Expected outcomes include advances in understandin ....Fostering global digital citizenship: diaspora youth in a connected world. This project aims to identify the global digital citizenship dimensions of diaspora youth’s everyday digital media use. The project intends to use a new approach in order to investigate how these practices can be fostered through digital citizenship policy and programs to improve the inclusion and participation of culturally diverse youth and maximise their effectiveness. Expected outcomes include advances in understandings about the opportunity and capacity of diaspora youth experience. Findings will be used to strengthen digital citizenship initiatives in Australian secondary schools, connect them more closely to global citizenship education programs, and enhance the engagement of a diverse student body.Read moreRead less
Digital energy futures: forecasting changing residential electricity demand. This project aims to understand and forecast changing digital lifestyle trends and their impact on future household electricity demand, including at peak times. The project expects to generate new knowledge by employing digital ethnography and sociological theories to investigate how changing social practices will impact on electricity sector planning. Expected outcomes include: scenarios and principles for digital ener ....Digital energy futures: forecasting changing residential electricity demand. This project aims to understand and forecast changing digital lifestyle trends and their impact on future household electricity demand, including at peak times. The project expects to generate new knowledge by employing digital ethnography and sociological theories to investigate how changing social practices will impact on electricity sector planning. Expected outcomes include: scenarios and principles for digital energy futures; an interdisciplinary energy demand forecasting methodology; and demand management tools to help the sector meet future residential consumption. This should provide significant benefits, such as lowering the cost of infrastructure spending, and helping secure affordable electricity provision.Read moreRead less
'Digital Natives': Growing up with new and old media in Australia. Developing a sophisticated digital literacy is important for both the future of children, the cultural, social and economic well-being of the nation. Digital literacy requires not only communications infrastructure but targeted investment in human skills. Investing in the development of a digitally literate Australian population has become an explicit means for promoting the future economic and social well-being of the nation. Th ....'Digital Natives': Growing up with new and old media in Australia. Developing a sophisticated digital literacy is important for both the future of children, the cultural, social and economic well-being of the nation. Digital literacy requires not only communications infrastructure but targeted investment in human skills. Investing in the development of a digitally literate Australian population has become an explicit means for promoting the future economic and social well-being of the nation. The information provided by this project has the potential to contribute significantly to giving children 'a healthy start to life' in their early years. Read moreRead less
Generating insights for the future: A retrospective, comparative study of attempts to implement large-scale electronic health record systems. This is a retrospective, comparative study of five attempts to set up regional and national systems for sharing electronic health records in Australia and Britain. The purpose is to learn from the mistakes and successes of the past, so that complex technology projects such as these can be better managed in the future.