Telling the truth to seriously ill children. This project aims to investigate how doctors and parents give information to young children who have serious medical conditions. Ethical and clinical guidelines agree that even young children should be given open, accurate and honest information in a developmentally appropriate way. However, doctors find this a challenging and uncertain area, and children do not receive open communication. This project aims to understand factors influencing the doctor ....Telling the truth to seriously ill children. This project aims to investigate how doctors and parents give information to young children who have serious medical conditions. Ethical and clinical guidelines agree that even young children should be given open, accurate and honest information in a developmentally appropriate way. However, doctors find this a challenging and uncertain area, and children do not receive open communication. This project aims to understand factors influencing the doctors and parents‘ real-life decisions of what and when to tell a child; undertake a practical ethical analysis; and produce practical guidelines and educational resources for parents and doctors. This project intends to improve the experience for young children being treated for serious medical conditions and their families.Read moreRead less
Defining disease: Addressing the problem of overdiagnosis. This project will investigate and define the limits of physical disease, to answer questions about when a presentation is a disease, and when it is simply a risk factor or mild condition. The ensuing account of disease will make a practical contribution to growing international concern about asymptomatic people being diagnosed and treated for conditions that will not cause any health problems ("overdiagnosis"). The research will provide ....Defining disease: Addressing the problem of overdiagnosis. This project will investigate and define the limits of physical disease, to answer questions about when a presentation is a disease, and when it is simply a risk factor or mild condition. The ensuing account of disease will make a practical contribution to growing international concern about asymptomatic people being diagnosed and treated for conditions that will not cause any health problems ("overdiagnosis"). The research will provide normative grounds for evaluating disease claims. Results will reduce the harm caused by people receiving treatment that they do not require, make a practical contribution to debates about the scope of health care, and yield findings that can help to reduce the cost-burdens associated with overdiagnosis.Read moreRead less
The ethics of altering children. Parents sometimes request surgery or drug therapy to change a child's physical appearance. This project will provide ethical guidance to doctors and policy makers about ethically appropriate ways to respond to such requests.
Discovery Early Career Researcher Award - Grant ID: DE150101390
Funder
Australian Research Council
Funding Amount
$363,536.00
Summary
Invasive Synthetic Biomedical Brain Device: Ethical and Policy Implications. The use of novel, invasive, synthetic, biomedical brain technologies such as predictable brain devices, 3D printed biomaterials, additive-bio-fabricated materials, and drug delivery systems have raised unprecedented ethical issues for research. Given the therapeutic potential and high risk of harm associated with synthetic biomedical applications, it is critical to identify the ethical issues before these novel applicat ....Invasive Synthetic Biomedical Brain Device: Ethical and Policy Implications. The use of novel, invasive, synthetic, biomedical brain technologies such as predictable brain devices, 3D printed biomaterials, additive-bio-fabricated materials, and drug delivery systems have raised unprecedented ethical issues for research. Given the therapeutic potential and high risk of harm associated with synthetic biomedical applications, it is critical to identify the ethical issues before these novel applications are widely used in human clinical trials. This project aims to explore how research trial guidelines can address the ethical issues raised by these new brain applications.Read moreRead less
Communicating genetic information in families: practical, legal, social and ethical issues. The outcomes of this study, will give evidence as to whether or not people do pass on genetic risk information to relatives, how they do it, what the barriers are, what their preferences are. It will also provide data so that mechanisms for best practice communication and clear guidelines for legal and health professionals can be developed. Effective communication and exchange of genetic risk information ....Communicating genetic information in families: practical, legal, social and ethical issues. The outcomes of this study, will give evidence as to whether or not people do pass on genetic risk information to relatives, how they do it, what the barriers are, what their preferences are. It will also provide data so that mechanisms for best practice communication and clear guidelines for legal and health professionals can be developed. Effective communication and exchange of genetic risk information will benefit individual health and the health of future generations.Read moreRead less
Neuroethics: The Practical and the Philosophical. The benefits of the project are twofold: practically, it will enable us to better regulate, personally and socially, the new technologies that the sciences of the mind are already producing; intellectually, it will enable us to better understand human agency in the light of the new knowledge generated by the sciences of the mind, and it will help to maintain Australia's reputation as an international leader in applied ethics and in philosophy of ....Neuroethics: The Practical and the Philosophical. The benefits of the project are twofold: practically, it will enable us to better regulate, personally and socially, the new technologies that the sciences of the mind are already producing; intellectually, it will enable us to better understand human agency in the light of the new knowledge generated by the sciences of the mind, and it will help to maintain Australia's reputation as an international leader in applied ethics and in philosophy of mind and agency.Read moreRead less
Trust me - I'm a researcher: The role of trust in the human research enterprise. We assume a relationship of trust between researchers and their participants. But what does this mean for researchers and participants, and for the ethics committees who make judgements about the ethics of the research? This project will benefit prospective research participants by providing them with information about how to determine the trustworthiness of researchers and what is expected in a trusting research re ....Trust me - I'm a researcher: The role of trust in the human research enterprise. We assume a relationship of trust between researchers and their participants. But what does this mean for researchers and participants, and for the ethics committees who make judgements about the ethics of the research? This project will benefit prospective research participants by providing them with information about how to determine the trustworthiness of researchers and what is expected in a trusting research relationship. It will also benefit researchers in understanding how to strengthen trust in research relationships and articulating how ethics committees can make well-founded judgements about the trustworthiness of researchers. The findings will also contribute to training programs for both ethics committees and researchers. Read moreRead less
Caring for Asylum Seekers in Australia: Bioethics and Human Rights. Australia's policy of mandatory detention has been criticised at home and abroad. This research will bring together both empirical and reflective material about that policy by those who have seen its effects first hand, which will make an important contribution to national self-definition. The research process itself will bring together practitioners who have worked in the field, many of whom have expressed the need for recordin ....Caring for Asylum Seekers in Australia: Bioethics and Human Rights. Australia's policy of mandatory detention has been criticised at home and abroad. This research will bring together both empirical and reflective material about that policy by those who have seen its effects first hand, which will make an important contribution to national self-definition. The research process itself will bring together practitioners who have worked in the field, many of whom have expressed the need for recording their experiences, and guidelines as to how to practice in the future when human rights issues form a part of clinical practice. As such, the project will contribute to other areas of healthcare where such issues are present, such as indigenous health, mental health, and the care of other vulnerable populations. Read moreRead less
Implicit persuasion in pharmaceutical marketing: ethical implications for regulators and consumers. The rapid ageing of Australia's population has seen increasing consumption of pharmaceuticals and high rates of hospitalisation to treat adverse effects. Pharmaceutical advertising promotes medication use, yet increasing evidence suggests commercials can alter attitudes outside of awareness. Determining the extent and ethical acceptability of subconscious persuasion in drug marketing will lead to ....Implicit persuasion in pharmaceutical marketing: ethical implications for regulators and consumers. The rapid ageing of Australia's population has seen increasing consumption of pharmaceuticals and high rates of hospitalisation to treat adverse effects. Pharmaceutical advertising promotes medication use, yet increasing evidence suggests commercials can alter attitudes outside of awareness. Determining the extent and ethical acceptability of subconscious persuasion in drug marketing will lead to more appropriate regulation of advertising content and enhance the autonomy of consumer medication choice. The study outcomes will address Australia's priority research goals Ageing Well, Ageing Productively and Preventative Healthcare, and further this country's international reputation in Applied Ethics.Read moreRead less
How do we know what works: ethics and evidence in surgical research. This project will make surgery safer for patients by improving our understanding of evidence in surgery. We will look at the question "what works" in surgery. The resources we develop will help practitioners and regulators to better navigate and manage the complex ethical and practical challenges in this field.