Understanding the Australian public's expectations of personalised genomics. This multi-disciplinary project aims to be the first to explore the Australian public's awareness of new developments in genetic science that allow healthy individuals to access their own genetic makeup. Called 'personal genomics', this broad group of genetic tests can be used for a variety of purposes that include ancestry, paternity, sporting ability and health. These tests are developing at a rapid rate yet little is ....Understanding the Australian public's expectations of personalised genomics. This multi-disciplinary project aims to be the first to explore the Australian public's awareness of new developments in genetic science that allow healthy individuals to access their own genetic makeup. Called 'personal genomics', this broad group of genetic tests can be used for a variety of purposes that include ancestry, paternity, sporting ability and health. These tests are developing at a rapid rate yet little is known about why, how and where they are used by the public. This project will employ a mixed methods approach to examine how the public might engage with this new technology. The research aims to help define educational strategies and supports and thereby to inform national policy for personal genomics.Read moreRead less
Telling the truth to seriously ill children. This project aims to investigate how doctors and parents give information to young children who have serious medical conditions. Ethical and clinical guidelines agree that even young children should be given open, accurate and honest information in a developmentally appropriate way. However, doctors find this a challenging and uncertain area, and children do not receive open communication. This project aims to understand factors influencing the doctor ....Telling the truth to seriously ill children. This project aims to investigate how doctors and parents give information to young children who have serious medical conditions. Ethical and clinical guidelines agree that even young children should be given open, accurate and honest information in a developmentally appropriate way. However, doctors find this a challenging and uncertain area, and children do not receive open communication. This project aims to understand factors influencing the doctors and parents‘ real-life decisions of what and when to tell a child; undertake a practical ethical analysis; and produce practical guidelines and educational resources for parents and doctors. This project intends to improve the experience for young children being treated for serious medical conditions and their families.Read moreRead less
The ethics of altering children. Parents sometimes request surgery or drug therapy to change a child's physical appearance. This project will provide ethical guidance to doctors and policy makers about ethically appropriate ways to respond to such requests.
Regulating Autologous Stem Cell Therapies in Australia. This project aims to develop an ethical and regulatory framework for the use of autologous adult stem cell therapies in Australia. These therapies are increasingly being offered to patients for diseases and conditions that lack scientific evidence of safety and efficacy. This study aims to address this problem using a mixed methods approach to generate empirical data and theoretical, ethical and legal insights that will guide the responsibl ....Regulating Autologous Stem Cell Therapies in Australia. This project aims to develop an ethical and regulatory framework for the use of autologous adult stem cell therapies in Australia. These therapies are increasingly being offered to patients for diseases and conditions that lack scientific evidence of safety and efficacy. This study aims to address this problem using a mixed methods approach to generate empirical data and theoretical, ethical and legal insights that will guide the responsible development, translation and regulation of innovative stem cell therapies in Australia and internationally. Anticipated outcomes will improve patient advocacy and public knowledge about adult stem cell therapies, and facilitate better relationships between patients, researchers and clinicians.Read moreRead less
Artificial Intelligence, Robots, and Agriculture: Social and ethical issues. This project aims to investigate the social and ethical issues raised by the use of artificial intelligence and robotics in agriculture. By combining social science research methods and philosophical analysis, the project aims to generate new knowledge in bioethics and applied ethics. Expected outcomes of this project include an account of the social and ethical issues farmers, rural communities, and consumers anticipat ....Artificial Intelligence, Robots, and Agriculture: Social and ethical issues. This project aims to investigate the social and ethical issues raised by the use of artificial intelligence and robotics in agriculture. By combining social science research methods and philosophical analysis, the project aims to generate new knowledge in bioethics and applied ethics. Expected outcomes of this project include an account of the social and ethical issues farmers, rural communities, and consumers anticipate arising from these technologies, improved understanding of these issues, and an account of how these groups would like to see these issues addressed. This should help Australia benefit from the responsible use of artificial intelligence and robotics in agriculture.Read moreRead less
A new ethics for the development and application of genetic technologies in a pluralist society. New technologies for prenatal testing and preimplantation genetic diagnosis will soon grant us an unprecedented power to choose our children's genes. This project will develop an ethical framework to govern the development and use of these technologies and thus help ensure that future Australians enjoy a healthy start to life.
Reducing the harms associated with conscientious objection to abortion. This project aims to critically evaluate the regulation of conscientious objection to abortion. A range of state-based laws regulate this practice in Australia, and there is evidence that all result in inequitable access, harms to women and lack clarity for providers. The project will critically evaluate the legal and regulatory options for managing conscientious objection and interview conscientious objectors to develop a c ....Reducing the harms associated with conscientious objection to abortion. This project aims to critically evaluate the regulation of conscientious objection to abortion. A range of state-based laws regulate this practice in Australia, and there is evidence that all result in inequitable access, harms to women and lack clarity for providers. The project will critically evaluate the legal and regulatory options for managing conscientious objection and interview conscientious objectors to develop a conceptual model to explain their practices. A participatory process with experts will identify the optimal model for regulation and how to translate the model to practice. Expected outcomes are world first evidence on practice, progress towards effective regulation, and benefits will be reduced conflict and harms.Read moreRead less
Moral conservatism, human enhancement and the 'Affective Revolution' in moral psychology. Debates between moral conservatives and liberals, about whether enhancing human mental and physical abilities above normal limits is ethically acceptable, have been intractable. Recent developments in moral psychology can be used to transform understandings of these debates and enable us to develop just policies to regulate enhancement technologies.
Communicating genetic information in families: practical, legal, social and ethical issues. The outcomes of this study, will give evidence as to whether or not people do pass on genetic risk information to relatives, how they do it, what the barriers are, what their preferences are. It will also provide data so that mechanisms for best practice communication and clear guidelines for legal and health professionals can be developed. Effective communication and exchange of genetic risk information ....Communicating genetic information in families: practical, legal, social and ethical issues. The outcomes of this study, will give evidence as to whether or not people do pass on genetic risk information to relatives, how they do it, what the barriers are, what their preferences are. It will also provide data so that mechanisms for best practice communication and clear guidelines for legal and health professionals can be developed. Effective communication and exchange of genetic risk information will benefit individual health and the health of future generations.Read moreRead less
Reproductive Autonomy in the Genomic Age. This project aims to provide a better way to help people to think and reflect about new genetic tests in pregnancy. These tests are on the rise. Yet they are occurring in a setting that is overly individualistic and underplays problems that can come from increased information and choice. This project will involve an interdisciplinary team to generate new theoretical and practical knowledge to re-frame the concept of 'reproductive autonomy'. Expected outc ....Reproductive Autonomy in the Genomic Age. This project aims to provide a better way to help people to think and reflect about new genetic tests in pregnancy. These tests are on the rise. Yet they are occurring in a setting that is overly individualistic and underplays problems that can come from increased information and choice. This project will involve an interdisciplinary team to generate new theoretical and practical knowledge to re-frame the concept of 'reproductive autonomy'. Expected outcomes include new bioethics knowledge, innovations in research methodologies, new data and recommendations for practice. The project will provide benefits by generating the first analysis of how reproductive autonomy needs to change to ensure new tests in pregnancy are offered and used well.Read moreRead less