Telling the truth to seriously ill children. This project aims to investigate how doctors and parents give information to young children who have serious medical conditions. Ethical and clinical guidelines agree that even young children should be given open, accurate and honest information in a developmentally appropriate way. However, doctors find this a challenging and uncertain area, and children do not receive open communication. This project aims to understand factors influencing the doctor ....Telling the truth to seriously ill children. This project aims to investigate how doctors and parents give information to young children who have serious medical conditions. Ethical and clinical guidelines agree that even young children should be given open, accurate and honest information in a developmentally appropriate way. However, doctors find this a challenging and uncertain area, and children do not receive open communication. This project aims to understand factors influencing the doctors and parents‘ real-life decisions of what and when to tell a child; undertake a practical ethical analysis; and produce practical guidelines and educational resources for parents and doctors. This project intends to improve the experience for young children being treated for serious medical conditions and their families.Read moreRead less
The ethics of altering children. Parents sometimes request surgery or drug therapy to change a child's physical appearance. This project will provide ethical guidance to doctors and policy makers about ethically appropriate ways to respond to such requests.
Communicating genetic information in families: practical, legal, social and ethical issues. The outcomes of this study, will give evidence as to whether or not people do pass on genetic risk information to relatives, how they do it, what the barriers are, what their preferences are. It will also provide data so that mechanisms for best practice communication and clear guidelines for legal and health professionals can be developed. Effective communication and exchange of genetic risk information ....Communicating genetic information in families: practical, legal, social and ethical issues. The outcomes of this study, will give evidence as to whether or not people do pass on genetic risk information to relatives, how they do it, what the barriers are, what their preferences are. It will also provide data so that mechanisms for best practice communication and clear guidelines for legal and health professionals can be developed. Effective communication and exchange of genetic risk information will benefit individual health and the health of future generations.Read moreRead less
Reproductive Autonomy in the Genomic Age. This project aims to provide a better way to help people to think and reflect about new genetic tests in pregnancy. These tests are on the rise. Yet they are occurring in a setting that is overly individualistic and underplays problems that can come from increased information and choice. This project will involve an interdisciplinary team to generate new theoretical and practical knowledge to re-frame the concept of 'reproductive autonomy'. Expected outc ....Reproductive Autonomy in the Genomic Age. This project aims to provide a better way to help people to think and reflect about new genetic tests in pregnancy. These tests are on the rise. Yet they are occurring in a setting that is overly individualistic and underplays problems that can come from increased information and choice. This project will involve an interdisciplinary team to generate new theoretical and practical knowledge to re-frame the concept of 'reproductive autonomy'. Expected outcomes include new bioethics knowledge, innovations in research methodologies, new data and recommendations for practice. The project will provide benefits by generating the first analysis of how reproductive autonomy needs to change to ensure new tests in pregnancy are offered and used well.Read moreRead less
Neuroethics: The Practical and the Philosophical. The benefits of the project are twofold: practically, it will enable us to better regulate, personally and socially, the new technologies that the sciences of the mind are already producing; intellectually, it will enable us to better understand human agency in the light of the new knowledge generated by the sciences of the mind, and it will help to maintain Australia's reputation as an international leader in applied ethics and in philosophy of ....Neuroethics: The Practical and the Philosophical. The benefits of the project are twofold: practically, it will enable us to better regulate, personally and socially, the new technologies that the sciences of the mind are already producing; intellectually, it will enable us to better understand human agency in the light of the new knowledge generated by the sciences of the mind, and it will help to maintain Australia's reputation as an international leader in applied ethics and in philosophy of mind and agency.Read moreRead less
Trust me - I'm a researcher: The role of trust in the human research enterprise. We assume a relationship of trust between researchers and their participants. But what does this mean for researchers and participants, and for the ethics committees who make judgements about the ethics of the research? This project will benefit prospective research participants by providing them with information about how to determine the trustworthiness of researchers and what is expected in a trusting research re ....Trust me - I'm a researcher: The role of trust in the human research enterprise. We assume a relationship of trust between researchers and their participants. But what does this mean for researchers and participants, and for the ethics committees who make judgements about the ethics of the research? This project will benefit prospective research participants by providing them with information about how to determine the trustworthiness of researchers and what is expected in a trusting research relationship. It will also benefit researchers in understanding how to strengthen trust in research relationships and articulating how ethics committees can make well-founded judgements about the trustworthiness of researchers. The findings will also contribute to training programs for both ethics committees and researchers. Read moreRead less
Caring for Asylum Seekers in Australia: Bioethics and Human Rights. Australia's policy of mandatory detention has been criticised at home and abroad. This research will bring together both empirical and reflective material about that policy by those who have seen its effects first hand, which will make an important contribution to national self-definition. The research process itself will bring together practitioners who have worked in the field, many of whom have expressed the need for recordin ....Caring for Asylum Seekers in Australia: Bioethics and Human Rights. Australia's policy of mandatory detention has been criticised at home and abroad. This research will bring together both empirical and reflective material about that policy by those who have seen its effects first hand, which will make an important contribution to national self-definition. The research process itself will bring together practitioners who have worked in the field, many of whom have expressed the need for recording their experiences, and guidelines as to how to practice in the future when human rights issues form a part of clinical practice. As such, the project will contribute to other areas of healthcare where such issues are present, such as indigenous health, mental health, and the care of other vulnerable populations. Read moreRead less
Implicit persuasion in pharmaceutical marketing: ethical implications for regulators and consumers. The rapid ageing of Australia's population has seen increasing consumption of pharmaceuticals and high rates of hospitalisation to treat adverse effects. Pharmaceutical advertising promotes medication use, yet increasing evidence suggests commercials can alter attitudes outside of awareness. Determining the extent and ethical acceptability of subconscious persuasion in drug marketing will lead to ....Implicit persuasion in pharmaceutical marketing: ethical implications for regulators and consumers. The rapid ageing of Australia's population has seen increasing consumption of pharmaceuticals and high rates of hospitalisation to treat adverse effects. Pharmaceutical advertising promotes medication use, yet increasing evidence suggests commercials can alter attitudes outside of awareness. Determining the extent and ethical acceptability of subconscious persuasion in drug marketing will lead to more appropriate regulation of advertising content and enhance the autonomy of consumer medication choice. The study outcomes will address Australia's priority research goals Ageing Well, Ageing Productively and Preventative Healthcare, and further this country's international reputation in Applied Ethics.Read moreRead less
How do we know what works: ethics and evidence in surgical research. This project will make surgery safer for patients by improving our understanding of evidence in surgery. We will look at the question "what works" in surgery. The resources we develop will help practitioners and regulators to better navigate and manage the complex ethical and practical challenges in this field.
Reducing the harms associated with conscientious objection to abortion. This project aims to critically evaluate the regulation of conscientious objection to abortion. A range of state-based laws regulate this practice in Australia, and there is evidence that all result in inequitable access, harms to women and lack clarity for providers. The project will critically evaluate the legal and regulatory options for managing conscientious objection and interview conscientious objectors to develop a c ....Reducing the harms associated with conscientious objection to abortion. This project aims to critically evaluate the regulation of conscientious objection to abortion. A range of state-based laws regulate this practice in Australia, and there is evidence that all result in inequitable access, harms to women and lack clarity for providers. The project will critically evaluate the legal and regulatory options for managing conscientious objection and interview conscientious objectors to develop a conceptual model to explain their practices. A participatory process with experts will identify the optimal model for regulation and how to translate the model to practice. Expected outcomes are world first evidence on practice, progress towards effective regulation, and benefits will be reduced conflict and harms.Read moreRead less