The Australian Research Data Commons (ARDC) invites you to participate in a short survey about your
interaction with the ARDC and use of our national research infrastructure and services. The survey will take
approximately 5 minutes and is anonymous. It’s open to anyone who uses our digital research infrastructure
services including Reasearch Link Australia.
We will use the information you provide to improve the national research infrastructure and services we
deliver and to report on user satisfaction to the Australian Government’s National Collaborative Research
Infrastructure Strategy (NCRIS) program.
Please take a few minutes to provide your input. The survey closes COB Friday 29 May 2026.
Complete the 5 min survey now by clicking on the link below.
Better end-of-life care through an optimal, holistic regulatory framework. This project aims to enhance end-of-life care through better regulation. Current regulation does not work as intended and is complex and fragmented. This harms patients, families and health professionals, and wastes health resources across the 100,000 medical end-of-life decisions in Australia annually. Expected outcomes are: (1) the first study internationally to establish in practice how the interaction of conflicting l ....Better end-of-life care through an optimal, holistic regulatory framework. This project aims to enhance end-of-life care through better regulation. Current regulation does not work as intended and is complex and fragmented. This harms patients, families and health professionals, and wastes health resources across the 100,000 medical end-of-life decisions in Australia annually. Expected outcomes are: (1) the first study internationally to establish in practice how the interaction of conflicting law, policies, ethics and training affects the end-of-life care patients receive; and (2) a new holistic regulatory framework to enhance the quality of end-of-life care. Expected benefits are better palliative care, more patient involvement in decisions, reduced patient-doctor conflict and a more efficient health system.Read moreRead less
Regulating Autologous Stem Cell Therapies in Australia. This project aims to develop an ethical and regulatory framework for the use of autologous adult stem cell therapies in Australia. These therapies are increasingly being offered to patients for diseases and conditions that lack scientific evidence of safety and efficacy. This study aims to address this problem using a mixed methods approach to generate empirical data and theoretical, ethical and legal insights that will guide the responsibl ....Regulating Autologous Stem Cell Therapies in Australia. This project aims to develop an ethical and regulatory framework for the use of autologous adult stem cell therapies in Australia. These therapies are increasingly being offered to patients for diseases and conditions that lack scientific evidence of safety and efficacy. This study aims to address this problem using a mixed methods approach to generate empirical data and theoretical, ethical and legal insights that will guide the responsible development, translation and regulation of innovative stem cell therapies in Australia and internationally. Anticipated outcomes will improve patient advocacy and public knowledge about adult stem cell therapies, and facilitate better relationships between patients, researchers and clinicians.Read moreRead less
On the cutting edge: promoting best practice in surgical innovation. Surgical innovation leads to beneficial healthcare outcomes, but frequently at an ethical, legal and regulatory cost. This project aims to address these challenges by developing conceptual tools and regulatory mechanisms which promote patient safety and support those who practice, manage and govern surgery.
Support or sales? Medical device representatives in Australian hospitals. Medical device representatives provide crucial support to clinicians using complex medical equipment. However, their obligation to maximise sales conflicts with their support role. Increasing uptake of devices potentially impacts patient safety and healthcare costs, making it important to understand the involvement and influence of device representatives. The proposed research will investigate the ethical and legal impacts ....Support or sales? Medical device representatives in Australian hospitals. Medical device representatives provide crucial support to clinicians using complex medical equipment. However, their obligation to maximise sales conflicts with their support role. Increasing uptake of devices potentially impacts patient safety and healthcare costs, making it important to understand the involvement and influence of device representatives. The proposed research will investigate the ethical and legal impacts of device representatives in Australian hospitals, leading to new knowledge and innovative ethical and legal analyses of their activities. Benefits include a policy framework, new standards for managing device representatives’ interactions, and clarity about ethical and legal obligations of clinicians and institutions.Read moreRead less
Reducing the harms associated with conscientious objection to abortion. This project aims to critically evaluate the regulation of conscientious objection to abortion. A range of state-based laws regulate this practice in Australia, and there is evidence that all result in inequitable access, harms to women and lack clarity for providers. The project will critically evaluate the legal and regulatory options for managing conscientious objection and interview conscientious objectors to develop a c ....Reducing the harms associated with conscientious objection to abortion. This project aims to critically evaluate the regulation of conscientious objection to abortion. A range of state-based laws regulate this practice in Australia, and there is evidence that all result in inequitable access, harms to women and lack clarity for providers. The project will critically evaluate the legal and regulatory options for managing conscientious objection and interview conscientious objectors to develop a conceptual model to explain their practices. A participatory process with experts will identify the optimal model for regulation and how to translate the model to practice. Expected outcomes are world first evidence on practice, progress towards effective regulation, and benefits will be reduced conflict and harms.Read moreRead less