A Longitudinal Study Of Psychopathology In People With Intellectual Disability
Funder
National Health and Medical Research Council
Funding Amount
$999,803.00
Summary
This project will further develop the research opportunities of an internationally unique 15 year follow up study of the mental health of young Australians with ID. We have shown that this group has 2-3 times the risk of suffering serious emotional and behavioural problems that are an added heavy burden on the individual, their family and carers and the community. These problems often are not recognised but are as common as schizophrenia in the community. The study will continue to use a combina ....This project will further develop the research opportunities of an internationally unique 15 year follow up study of the mental health of young Australians with ID. We have shown that this group has 2-3 times the risk of suffering serious emotional and behavioural problems that are an added heavy burden on the individual, their family and carers and the community. These problems often are not recognised but are as common as schizophrenia in the community. The study will continue to use a combination of questionnaire survey and in depth interviews of the young adults and their families or carers to track the course of their mental health. The study commenced in 1990 with nearly 1000 young people with ID aged 4-18 years and their progress has been reviewed every 2-3 years in over 75% of the original group. During the next 5 years we plan to follow their mental health during the critical stage of young adult life. During this time there is the greatest risk of mental illnesses such as depression and schizophrenia and the stresses of adjusting to new daily occupations, independent living or residential care and social contact away from the family. We will be able to study the specific emotional and behavioural problems faced by young adults with the main known causes of ID such as Down, Fragile X, Prader Willi and William Syndromes, as well as those who have autism. The great benefit of a long term follow up study is that it allows us to study the links between earlier family environmental, psychological and biological factors and subsequent mental health problems. We can also demonstrate the impact that mental illness in a young person with ID has on the family and parental mental health. The findings have implications for better diagnosis, improved care and management, early intervention and prevention of these common severe and under recognized mental health problems in this disadvantaged group of young Australians and their families and carers.Read moreRead less
The importance of gender and socio-economic disadvantage for the mental health of people living with disabilities. The twenty per cent of Australians reporting a disability are more likely to live in disadvantaged circumstances such as inadequate housing, unemployment, and lower levels of education all of which may contribute to poor mental health. Yet there has not been research on the mental health of people with disabilities. This means that disability services and advocacy groups, which deal ....The importance of gender and socio-economic disadvantage for the mental health of people living with disabilities. The twenty per cent of Australians reporting a disability are more likely to live in disadvantaged circumstances such as inadequate housing, unemployment, and lower levels of education all of which may contribute to poor mental health. Yet there has not been research on the mental health of people with disabilities. This means that disability services and advocacy groups, which deal daily with the lived experiences of disadvantage and poor mental health in people with disabilities, do not have evidence to support policy and service sector reform. This project will provide this critical evidence as well as build research capacity in disability-related research and lead to better monitoring of disability-related health inequities.Read moreRead less
School non-attendance in students with intellectual disability. This project aims to develop a better understanding of school non-attendance among children and adolescents with intellectual disability. School non-attendance is a major societal problem – school outcomes are affected by high rates of school non-attendance – and a current national and international priority. In particular, school non-attendance in students with intellectual disability is a common but poorly understood problem. This ....School non-attendance in students with intellectual disability. This project aims to develop a better understanding of school non-attendance among children and adolescents with intellectual disability. School non-attendance is a major societal problem – school outcomes are affected by high rates of school non-attendance – and a current national and international priority. In particular, school non-attendance in students with intellectual disability is a common but poorly understood problem. This project aims to understand the types and rates of school non-attendance problems in students with intellectual disability and the factors that influence non-attendance. Improved understanding of the pathways to non-attendance would facilitate the development of specific interventions to provide much-needed improvements in attendance in this disadvantaged group.Read moreRead less
Intellectual disability in courts and police cells. Benefit to the nation accrues because offenders with intellectual disability will be accurately identified early in their contact with the criminal justice system (CJS), and appropriate diversions from the CJS as well as rehabilitation programs can be implemented, thus producing cost-savings in all jurisdictions. The community benefits because offenders with ID can receive appropriate service provision, based on evidence provided by this study ....Intellectual disability in courts and police cells. Benefit to the nation accrues because offenders with intellectual disability will be accurately identified early in their contact with the criminal justice system (CJS), and appropriate diversions from the CJS as well as rehabilitation programs can be implemented, thus producing cost-savings in all jurisdictions. The community benefits because offenders with ID can receive appropriate service provision, based on evidence provided by this study. The individual's ties to the community will be maintained and on the community will be supported to assist the individual. Justice health systems, in staff management and training areas, will benefit. The outcomes will benefit educational programs for the judiciary, police and lawyers.Read moreRead less
Living In A Rural Community:determinants And Consequences Of Mental Health And Wellbeing.
Funder
National Health and Medical Research Council
Funding Amount
$729,415.00
Summary
Th e proposed study will investigate individual, family and community factors associated with the mental health and wellbeing of residents in rural communties of NSW. It will also examine rural residents' perceptions of their mental health needs and their access and utilisation of health services. The study will be conducted in 3 rural Area Health Services in NSW (Greater Western,Hunter New England and North Coast) comprising 70% of the rural population of NSW. These health regions encompass rur ....Th e proposed study will investigate individual, family and community factors associated with the mental health and wellbeing of residents in rural communties of NSW. It will also examine rural residents' perceptions of their mental health needs and their access and utilisation of health services. The study will be conducted in 3 rural Area Health Services in NSW (Greater Western,Hunter New England and North Coast) comprising 70% of the rural population of NSW. These health regions encompass rural, remote and coastal NSW. We aim to conduct the mail and telephone survey on adults residing in 4000 households across the 3 regions. Unique aspects of the study include: i) Examination of a diverse range of rural communities which will provide the opportunity to investigate the influence and interaction of specific community characteristics on mental health. These community factors will include social and economic factors, severity of rural environmental stress (eg drought), and the levels of access to health and other services. ii) Focus on the household and its members so as to examine the mental health needs of family groups in rural communities. This cross-sectional study will form the baseline for a longitudinal study investigating the changes experienced by rural families over time and the impact of such change on mental health outcomes.Read moreRead less
Indigenous Australians with mental health disorders and cognitive disabilities in the criminal justice system. This project addresses the high over-representations of Indigenous persons with mental health and cognitive disabilities in Australian criminal justice systems. It will develop new understandings of the interactions amongst criminal justice, social, health, disability and other human services for these persons. Using an Indigenous methodology in this study will result in new informatio ....Indigenous Australians with mental health disorders and cognitive disabilities in the criminal justice system. This project addresses the high over-representations of Indigenous persons with mental health and cognitive disabilities in Australian criminal justice systems. It will develop new understandings of the interactions amongst criminal justice, social, health, disability and other human services for these persons. Using an Indigenous methodology in this study will result in new information and understandings on Indigenous persons' experiences and perspectives. These will allow, for the first time, a critical analysis of system interactions and responses to complex needs for these persons. Outcomes will inform Indigenous theory and will be vital for developing new policy and practice to assist in protecting and promoting Indigenous wellbeing.Read moreRead less