A Longitudinal Study Of Psychopathology In People With Intellectual Disability
Funder
National Health and Medical Research Council
Funding Amount
$999,803.00
Summary
This project will further develop the research opportunities of an internationally unique 15 year follow up study of the mental health of young Australians with ID. We have shown that this group has 2-3 times the risk of suffering serious emotional and behavioural problems that are an added heavy burden on the individual, their family and carers and the community. These problems often are not recognised but are as common as schizophrenia in the community. The study will continue to use a combina ....This project will further develop the research opportunities of an internationally unique 15 year follow up study of the mental health of young Australians with ID. We have shown that this group has 2-3 times the risk of suffering serious emotional and behavioural problems that are an added heavy burden on the individual, their family and carers and the community. These problems often are not recognised but are as common as schizophrenia in the community. The study will continue to use a combination of questionnaire survey and in depth interviews of the young adults and their families or carers to track the course of their mental health. The study commenced in 1990 with nearly 1000 young people with ID aged 4-18 years and their progress has been reviewed every 2-3 years in over 75% of the original group. During the next 5 years we plan to follow their mental health during the critical stage of young adult life. During this time there is the greatest risk of mental illnesses such as depression and schizophrenia and the stresses of adjusting to new daily occupations, independent living or residential care and social contact away from the family. We will be able to study the specific emotional and behavioural problems faced by young adults with the main known causes of ID such as Down, Fragile X, Prader Willi and William Syndromes, as well as those who have autism. The great benefit of a long term follow up study is that it allows us to study the links between earlier family environmental, psychological and biological factors and subsequent mental health problems. We can also demonstrate the impact that mental illness in a young person with ID has on the family and parental mental health. The findings have implications for better diagnosis, improved care and management, early intervention and prevention of these common severe and under recognized mental health problems in this disadvantaged group of young Australians and their families and carers.Read moreRead less
Intellectual disability in courts and police cells. Benefit to the nation accrues because offenders with intellectual disability will be accurately identified early in their contact with the criminal justice system (CJS), and appropriate diversions from the CJS as well as rehabilitation programs can be implemented, thus producing cost-savings in all jurisdictions. The community benefits because offenders with ID can receive appropriate service provision, based on evidence provided by this study ....Intellectual disability in courts and police cells. Benefit to the nation accrues because offenders with intellectual disability will be accurately identified early in their contact with the criminal justice system (CJS), and appropriate diversions from the CJS as well as rehabilitation programs can be implemented, thus producing cost-savings in all jurisdictions. The community benefits because offenders with ID can receive appropriate service provision, based on evidence provided by this study. The individual's ties to the community will be maintained and on the community will be supported to assist the individual. Justice health systems, in staff management and training areas, will benefit. The outcomes will benefit educational programs for the judiciary, police and lawyers.Read moreRead less
Indigenous Australians with mental health disorders and cognitive disabilities in the criminal justice system. This project addresses the high over-representations of Indigenous persons with mental health and cognitive disabilities in Australian criminal justice systems. It will develop new understandings of the interactions amongst criminal justice, social, health, disability and other human services for these persons. Using an Indigenous methodology in this study will result in new informatio ....Indigenous Australians with mental health disorders and cognitive disabilities in the criminal justice system. This project addresses the high over-representations of Indigenous persons with mental health and cognitive disabilities in Australian criminal justice systems. It will develop new understandings of the interactions amongst criminal justice, social, health, disability and other human services for these persons. Using an Indigenous methodology in this study will result in new information and understandings on Indigenous persons' experiences and perspectives. These will allow, for the first time, a critical analysis of system interactions and responses to complex needs for these persons. Outcomes will inform Indigenous theory and will be vital for developing new policy and practice to assist in protecting and promoting Indigenous wellbeing.Read moreRead less