The Economic And Social Impacts Of Genetic Sequencing For Intellectual Disability
Funder
National Health and Medical Research Council
Funding Amount
$1,263,576.00
Summary
In this project we will quantify the social and financial costs to families of severe intellectual disability that is genetic in origin. We will assess these impacts in terms of poorer carer health, relationship breakdown, lost income and risk of poverty, as well as increased dependence on government, particularly on welfare payments, and reduced personal income tax paid. We will then determine the extent to which modern clinical genomics can contribute to ameliorating these impacts.
Transforming The Diagnosis And Management Of Severe Neurocognitive Disorders Through Genomics
Funder
National Health and Medical Research Council
Funding Amount
$2,499,330.00
Summary
Neurocognitive disorders (NCD) are one of the most common genetic conditions in our society and it results with a need for ongoing permanent care for many affected people. Until recently, only 30% of people with NCD could be diagnosed but this has changed with the availability of genomic testing where all genes can be tested at once. The use of genomics in the CRE will lead to new NCD genes being identified and this information being translated into a clinical setting.
LONGITUDINAL STUDY OF BEHAVIOUR AND EMOTIONAL PROBLEMS IN YOUNG PEOPLE WITH INTELLECTUAL DISABILITIES
Funder
National Health and Medical Research Council
Funding Amount
$761,790.00
Summary
Families caring for young people with intellectual disabilities face major burdens of care if the young person also has serious behaviour problems. These behaviour problems are also costly for our community. This project is intended to assist young people and their carers by providing new information about the factors contributing to these behaviour problems and how they develop over time. The project makes use of an internationally unique follow up study which has followed a group of young peop ....Families caring for young people with intellectual disabilities face major burdens of care if the young person also has serious behaviour problems. These behaviour problems are also costly for our community. This project is intended to assist young people and their carers by providing new information about the factors contributing to these behaviour problems and how they develop over time. The project makes use of an internationally unique follow up study which has followed a group of young people aged 4-18 for the last eight years. The young people are now entering a critical age band facing many changes in their lives such as the possibility of independent living, work challenges, as well as a search for new social relationships and day activities in the post-school period. Also they face increased risk for mental health problems which most commonly emerge in this age group, particularly psychosis and depression. This project promises to determine how the young people cope with these challenges and what steps our community needs to make to assist them and their families to reach an optimal adjustment.Read moreRead less
A Longitudinal Study Of Psychopathology In People With Intellectual Disability
Funder
National Health and Medical Research Council
Funding Amount
$999,803.00
Summary
This project will further develop the research opportunities of an internationally unique 15 year follow up study of the mental health of young Australians with ID. We have shown that this group has 2-3 times the risk of suffering serious emotional and behavioural problems that are an added heavy burden on the individual, their family and carers and the community. These problems often are not recognised but are as common as schizophrenia in the community. The study will continue to use a combina ....This project will further develop the research opportunities of an internationally unique 15 year follow up study of the mental health of young Australians with ID. We have shown that this group has 2-3 times the risk of suffering serious emotional and behavioural problems that are an added heavy burden on the individual, their family and carers and the community. These problems often are not recognised but are as common as schizophrenia in the community. The study will continue to use a combination of questionnaire survey and in depth interviews of the young adults and their families or carers to track the course of their mental health. The study commenced in 1990 with nearly 1000 young people with ID aged 4-18 years and their progress has been reviewed every 2-3 years in over 75% of the original group. During the next 5 years we plan to follow their mental health during the critical stage of young adult life. During this time there is the greatest risk of mental illnesses such as depression and schizophrenia and the stresses of adjusting to new daily occupations, independent living or residential care and social contact away from the family. We will be able to study the specific emotional and behavioural problems faced by young adults with the main known causes of ID such as Down, Fragile X, Prader Willi and William Syndromes, as well as those who have autism. The great benefit of a long term follow up study is that it allows us to study the links between earlier family environmental, psychological and biological factors and subsequent mental health problems. We can also demonstrate the impact that mental illness in a young person with ID has on the family and parental mental health. The findings have implications for better diagnosis, improved care and management, early intervention and prevention of these common severe and under recognized mental health problems in this disadvantaged group of young Australians and their families and carers.Read moreRead less
Improving The Mental Health Outcomes Of People With Intellectual Disability
Funder
National Health and Medical Research Council
Funding Amount
$1,189,979.00
Summary
Australians with intellectual disability (ID) have very high rates of mental illness but experience very poor access to mental health services. Our research will develop a sound evidence base on the profile of mental ill health, service use, pathways to care and mental health policy for people with intellectual disability. Together with consumers and support persons we will examine ways to improve mental health services for people with intellectual disability.
Improving academic outcomes by moderating anxiety in children with autism. The project aims to investigate links between anxiety and academic enablers for children with autism. As a group, these children are currently achieving at lower rates than their peers, with implications for their future social and economic wellbeing. Effective interventions to improve educational outcomes are lacking. This project will investigate how anxiety, a commonly occurring condition in autism, impacts attitudes a ....Improving academic outcomes by moderating anxiety in children with autism. The project aims to investigate links between anxiety and academic enablers for children with autism. As a group, these children are currently achieving at lower rates than their peers, with implications for their future social and economic wellbeing. Effective interventions to improve educational outcomes are lacking. This project will investigate how anxiety, a commonly occurring condition in autism, impacts attitudes and behaviours that facilitate students’ participation in and ability to benefit from academic instruction in the classroom. Findings are intended to provide an evidence base for the development of an intervention suitable for use by service providers to increase academic achievement in children with autism.Read moreRead less
Australian Laureate Fellowships - Grant ID: FL150100104
Funder
Australian Research Council
Funding Amount
$2,764,590.00
Summary
Harnessing intellectual property to build food security. Harnessing intellectual property to build food security: This fellowship project aims to maximise the benefits and minimise the costs of using intellectual property protection to improve agricultural productivity and food security in Australia and the Asia Pacific. Food security is a problem in many Asian Pacific countries, and in Australia there is an urgent need to improve agricultural yields, increase sustainability, enhance the breedin ....Harnessing intellectual property to build food security. Harnessing intellectual property to build food security: This fellowship project aims to maximise the benefits and minimise the costs of using intellectual property protection to improve agricultural productivity and food security in Australia and the Asia Pacific. Food security is a problem in many Asian Pacific countries, and in Australia there is an urgent need to improve agricultural yields, increase sustainability, enhance the breeding of new plant varieties, and to adapt to climatic and environmental changes. In addition, an unmet demand for food in the region provides an important opportunity for Australian agriculture. If a food-secure future for Australia and the Asia Pacific is to be achieved, higher agricultural yields must be produced from increasingly limited or degraded inputs. This project seeks to critically examine the role that intellectual property is able to play in meeting these interrelated challenges and opportunities.Read moreRead less
Industry Laureate Fellowships - Grant ID: IL230100154
Funder
Australian Research Council
Funding Amount
$2,582,419.00
Summary
Fixing the NDIS: cost, effectiveness and access for psychosocial disability. This project aims to address serious deficits in the operation of the National Disability Insurance Scheme for one of its largest participant groups: people with psychosocial disability. This project expects to develop new data on scheme outcomes, cost-effectiveness and participant experiences to develop an appropriate and implementable program logic to improve supports for this group. Expected outcomes will be scheme r ....Fixing the NDIS: cost, effectiveness and access for psychosocial disability. This project aims to address serious deficits in the operation of the National Disability Insurance Scheme for one of its largest participant groups: people with psychosocial disability. This project expects to develop new data on scheme outcomes, cost-effectiveness and participant experiences to develop an appropriate and implementable program logic to improve supports for this group. Expected outcomes will be scheme reform by implementing a new framework of supports for psychosocial disability and data to improve the operation of national policy for this group more broadly. This should provide significant benefits for the cost-effective operation of the National Disability Insurance Scheme and build research capacity in disability policy.Read moreRead less
Landlords, Tenants and Access to Justice: A Longitudinal Study of Residential Tenancies Disputes. The proposed research will compare the strikingly different justice regimes governing residential tenancy disputes over the last 3 decades in New South Wales. These regimes have ranged from the exclusively formal, or court-based, to a hybrid model (with some matters resolved by tribunals, others by the courts) and finally to an almost exclusively tribunal-governed system. This study seeks to compare ....Landlords, Tenants and Access to Justice: A Longitudinal Study of Residential Tenancies Disputes. The proposed research will compare the strikingly different justice regimes governing residential tenancy disputes over the last 3 decades in New South Wales. These regimes have ranged from the exclusively formal, or court-based, to a hybrid model (with some matters resolved by tribunals, others by the courts) and finally to an almost exclusively tribunal-governed system. This study seeks to compare the effectiveness of these various regimes in delivering justice to all parties. No such study has been conducted in Australia, and the results will provide a basis for informed decision on whether the latest model should remain the preferred one in a sector of the housing market catering for more than 25% of the population of NSW, a large proportion of whom are disadvantaged.Read moreRead less
Entertainment rights in the age of the franchise: a reappraisal of personality rights under Australian intellectual property laws. Global entertainment industry practice is to assert broad rights in creative entertainment concepts and characters. There is huge global merchandising potential for cultural products, as demonstrated by The Wiggles, Harry Potter and Pokemon. In the US, the UK, Japan and Korea there have been developments to enhance the protection of character and personality rights. ....Entertainment rights in the age of the franchise: a reappraisal of personality rights under Australian intellectual property laws. Global entertainment industry practice is to assert broad rights in creative entertainment concepts and characters. There is huge global merchandising potential for cultural products, as demonstrated by The Wiggles, Harry Potter and Pokemon. In the US, the UK, Japan and Korea there have been developments to enhance the protection of character and personality rights. However there is no current study of the status of the entertainment franchise under Australian intellectual property law. With Australian imports of cultural products at an all-time high and with local productions increasingly geared towards worldwide audiences, this study critically evaluates how Australian law fits with the realities of the global entertainment marketplace.Read moreRead less