Integrated Kids Hubs - Ensuring Equity of Access for Children. The Integrated Kids Hubs - Ensuring Equity of Access for Children project aims to determine if integrated Hubs are effective in increasing access to child and family services for disadvantaged urban and regional families with children aged 3 years and under, thus improving early identification of developmental vulnerability, parental wellbeing and capacity, and addressing unmet psychosocial needs. If these issues are not identified a ....Integrated Kids Hubs - Ensuring Equity of Access for Children. The Integrated Kids Hubs - Ensuring Equity of Access for Children project aims to determine if integrated Hubs are effective in increasing access to child and family services for disadvantaged urban and regional families with children aged 3 years and under, thus improving early identification of developmental vulnerability, parental wellbeing and capacity, and addressing unmet psychosocial needs. If these issues are not identified and addressed early, these children will go on to struggle in school and life. We will use a pragmatic trial design (meaning the research is embedded in our usual practice), determine the social return on investment, and establish what is needed to scale up the Hubs across NSW and Australia.Read moreRead less
Out of the Institution. An investigation of deinstitutionalization, exploring the effectiveness of supported housing for people with psychiatric disabilities leaving care. The project has two objectives. The first is to investigate outcomes of a unique model of supported housing for deinstitutionalised people living in the community. The second is to survey people that are about to be deinstitutionalised along with staff and family and set up a framework for longitudinal analysis of this group. ....Out of the Institution. An investigation of deinstitutionalization, exploring the effectiveness of supported housing for people with psychiatric disabilities leaving care. The project has two objectives. The first is to investigate outcomes of a unique model of supported housing for deinstitutionalised people living in the community. The second is to survey people that are about to be deinstitutionalised along with staff and family and set up a framework for longitudinal analysis of this group. While a major social policy reform, deinstitutionalisation in Australia has been under-researched, despite the potential pitfalls. This project will provide information and analysis that will help government and community agencies to seek and provide better outcomes for clients and communities.Read moreRead less
Post retirement support solutions for people with intellectual disabilities and their parents/carers. The current generation is the first to contain a substantial number of people with intellectual disabilities who have survived to old age. Policy makers have yet to focus on their wellbeing following retirement from supported employment. Evidence cited by agencies such as Centacare, the Industry Partner, indicates that these older people and their ageing parents experience severe disadvantage an ....Post retirement support solutions for people with intellectual disabilities and their parents/carers. The current generation is the first to contain a substantial number of people with intellectual disabilities who have survived to old age. Policy makers have yet to focus on their wellbeing following retirement from supported employment. Evidence cited by agencies such as Centacare, the Industry Partner, indicates that these older people and their ageing parents experience severe disadvantage and worry about retirement. The project aims to redress this situation by investigating ways of preparing people for retirement and mechanisms for enabling supported employment agencies to provide services and supports that optimise post retirement wellbeing.Read moreRead less
Preventing mental health problems in children: a population-based cluster controlled trial. The National Mental Health Survey (2000) found 1 in 7 children have externalising (aggression) and internalising (anxiety, depression) problems. Early mental health problems beget later problems with high costs to society, including clinical, remedial education and criminal justice services. Hence, early prevention is vital for national well-being and productivity. The few preventive early childhood progr ....Preventing mental health problems in children: a population-based cluster controlled trial. The National Mental Health Survey (2000) found 1 in 7 children have externalising (aggression) and internalising (anxiety, depression) problems. Early mental health problems beget later problems with high costs to society, including clinical, remedial education and criminal justice services. Hence, early prevention is vital for national well-being and productivity. The few preventive early childhood programs to date are limited in effectiveness and not truly population-based. The proposed parenting / family support trial aims to overcome these obstacles, by comparing and costing two approaches that can be implemented within whole communities. The trial will help clarify optimal primary care to prevent mental health problems early in life.Read moreRead less
The emotional and social burden of caring for a young child with complex health needs. The National Agenda for Early Childhood and the Stronger Families and Community Strategy provide a framework for achieving efficient and effective outcomes in early childhood. This project will contribute to those strategies by gaining an understanding of the currently unknown issues faced by the group of families of young infants and children with complex health needs in a variety of geographic, community and ....The emotional and social burden of caring for a young child with complex health needs. The National Agenda for Early Childhood and the Stronger Families and Community Strategy provide a framework for achieving efficient and effective outcomes in early childhood. This project will contribute to those strategies by gaining an understanding of the currently unknown issues faced by the group of families of young infants and children with complex health needs in a variety of geographic, community and service settings, and the government supported services required. The identification of risk and resilience factors will enable the early detection of children at 'high-risk' and provide the opportunity to implement preventative and early intervention programs.Read moreRead less
Model of care: A family focussed approach to promote child protection. Childhood neglect and abuse is an issue for all Australians. Models of best practice for child protection services are essential to protect the well-being of these children. This project will draw upon information from consumers and workers to provide a framework for a sustainable model of best practice for child protection that is transferable to other settings. A further benefit of this study is that it will provide insight ....Model of care: A family focussed approach to promote child protection. Childhood neglect and abuse is an issue for all Australians. Models of best practice for child protection services are essential to protect the well-being of these children. This project will draw upon information from consumers and workers to provide a framework for a sustainable model of best practice for child protection that is transferable to other settings. A further benefit of this study is that it will provide insight into occupation health and safety issues associated with working in long term relationships with vulnerable families. Read moreRead less
Dignity Therapy: A Novel Psychotherapeutic Intervention for Motor Neurone Disease (MND) Patients near the End of Life. Considering the scarcity of effective interventions for the kinds of distress and suffering that so commonly occur amongst MND dying patients, this novel therapeutic intervention could become a very easy, practical intervention adopted within palliative care facilities and MND organisations. Unlike most palliative care interventions, this approach, leading to the production of a ....Dignity Therapy: A Novel Psychotherapeutic Intervention for Motor Neurone Disease (MND) Patients near the End of Life. Considering the scarcity of effective interventions for the kinds of distress and suffering that so commonly occur amongst MND dying patients, this novel therapeutic intervention could become a very easy, practical intervention adopted within palliative care facilities and MND organisations. Unlike most palliative care interventions, this approach, leading to the production of a generativity document, has the important added potential benefit of being a powerful bereavement intervention for carers. The potential benefits of this intervention could lead to a reduction in in-patient admissions and a reduced need for respite for both the person with MND and the family carer.Read moreRead less
Both Smart and Healthy: Learning Communities as a Settings-based Approaches to Health Promotion. This project will use a collaborative learning model to build health promotion capacity. The project brings together two innovative approaches to develop new knowledge about how setting-based approaches to health can be implemented in future. This approach could potentially address chronic disease at a national and international level by promoting healthy communities that can effectively manage chr ....Both Smart and Healthy: Learning Communities as a Settings-based Approaches to Health Promotion. This project will use a collaborative learning model to build health promotion capacity. The project brings together two innovative approaches to develop new knowledge about how setting-based approaches to health can be implemented in future. This approach could potentially address chronic disease at a national and international level by promoting healthy communities that can effectively manage chronic disease through collaborative learning and knowledge-building. The project represents an important collaboration between a university and its community with a view to improving health capacity.Read moreRead less
Cluster randomised control trial of an early childhood literacy intervention to improve literacy and language outcomes in preschool aged children. Reading failure disproportionately affects disadvantaged communities in Australia, with nearly 40% of poor children failing to read at the minimum reading benchmark in Grade three. Of more concern is the disturbing trend indicating that prior to first grade, socioeconomic status (SES) differences also exist in important antecedents of reading such as ....Cluster randomised control trial of an early childhood literacy intervention to improve literacy and language outcomes in preschool aged children. Reading failure disproportionately affects disadvantaged communities in Australia, with nearly 40% of poor children failing to read at the minimum reading benchmark in Grade three. Of more concern is the disturbing trend indicating that prior to first grade, socioeconomic status (SES) differences also exist in important antecedents of reading such as letter knowledge and phonological processing skills, yet there remains no universal program to promote early language and literacy practices in the primary care setting. We propose a cluster randomised controlled trial to evaluate the efficacy of a multi injection intervention to improve literacy outcomes of children in disadvantaged communities.Read moreRead less
Psychosocial and economic impacts of rare diseases on Australian children, families and health professionals. Rare childhood diseases have enormous impacts on children and families; health services, and health professionals. This project will enable Australia to lead the international research effort by using a coordinated approach to study the impacts of rare diseases in order to improve psychosocial, health and economic outcomes for children and families.