Telling the truth to seriously ill children. This project aims to investigate how doctors and parents give information to young children who have serious medical conditions. Ethical and clinical guidelines agree that even young children should be given open, accurate and honest information in a developmentally appropriate way. However, doctors find this a challenging and uncertain area, and children do not receive open communication. This project aims to understand factors influencing the doctor ....Telling the truth to seriously ill children. This project aims to investigate how doctors and parents give information to young children who have serious medical conditions. Ethical and clinical guidelines agree that even young children should be given open, accurate and honest information in a developmentally appropriate way. However, doctors find this a challenging and uncertain area, and children do not receive open communication. This project aims to understand factors influencing the doctors and parents‘ real-life decisions of what and when to tell a child; undertake a practical ethical analysis; and produce practical guidelines and educational resources for parents and doctors. This project intends to improve the experience for young children being treated for serious medical conditions and their families.Read moreRead less
Discovery Early Career Researcher Award - Grant ID: DE120100488
Funder
Australian Research Council
Funding Amount
$375,000.00
Summary
When should health professionals override parents' decisions about a child's medical treatment? Doctors and nurses sometimes disagree with parents' decisions about the best treatment for a sick child. This project will establish the ethical responsibilities of both parents and health professionals in relation to medical decision-making for children.
Discovery Early Career Researcher Award - Grant ID: DE240100386
Funder
Australian Research Council
Funding Amount
$435,875.00
Summary
Anti-racist neuroethics for epistemic justice in mental health research. Racial/ethnic minorities are underrepresented in brain and mental health (BMH) research, risking inadequate healthcare for the 9.5 million minorities in Australia. With the $73 billion annual cost of BMH disorders to the country, all Australians should equally benefit from BMH research. This project aims to develop recommendations to make BMH research more diverse and inclusive. It will audit representation of minorities in ....Anti-racist neuroethics for epistemic justice in mental health research. Racial/ethnic minorities are underrepresented in brain and mental health (BMH) research, risking inadequate healthcare for the 9.5 million minorities in Australia. With the $73 billion annual cost of BMH disorders to the country, all Australians should equally benefit from BMH research. This project aims to develop recommendations to make BMH research more diverse and inclusive. It will audit representation of minorities in Australian BMH publications and will conduct surveys, interviews, and workshops with scientists to determine institutional barriers to the inclusion of and engagement with minorities in research. This project will draw from concepts of epistemic justice and anti-racism to develop ethical frameworks for BMH racial equity.Read moreRead less
The Normative Value of Unified Agency. We aim to provide a philosophical account of the normative value of agency by showing (1) how those interpersonal relations which are a central source of value structures our agency, and (2) how our morally valuable engagement in social institutions enables agency. Through reflection on cases of psychopathology, we will present an analysis of the essential normativity of agency by examining what happens when agency breaks down. Our findings will have implic ....The Normative Value of Unified Agency. We aim to provide a philosophical account of the normative value of agency by showing (1) how those interpersonal relations which are a central source of value structures our agency, and (2) how our morally valuable engagement in social institutions enables agency. Through reflection on cases of psychopathology, we will present an analysis of the essential normativity of agency by examining what happens when agency breaks down. Our findings will have implications for standard theoretical accounts in moral psychology and for social and legal policy relating to the treatment of those with psychiatric disorders.Read moreRead less
Implicit persuasion in pharmaceutical marketing: ethical implications for regulators and consumers. The rapid ageing of Australia's population has seen increasing consumption of pharmaceuticals and high rates of hospitalisation to treat adverse effects. Pharmaceutical advertising promotes medication use, yet increasing evidence suggests commercials can alter attitudes outside of awareness. Determining the extent and ethical acceptability of subconscious persuasion in drug marketing will lead to ....Implicit persuasion in pharmaceutical marketing: ethical implications for regulators and consumers. The rapid ageing of Australia's population has seen increasing consumption of pharmaceuticals and high rates of hospitalisation to treat adverse effects. Pharmaceutical advertising promotes medication use, yet increasing evidence suggests commercials can alter attitudes outside of awareness. Determining the extent and ethical acceptability of subconscious persuasion in drug marketing will lead to more appropriate regulation of advertising content and enhance the autonomy of consumer medication choice. The study outcomes will address Australia's priority research goals Ageing Well, Ageing Productively and Preventative Healthcare, and further this country's international reputation in Applied Ethics.Read moreRead less
Framing Marginal Art: Developing an ethical, multi-dimensional framework for exhibiting art by people who experience mental illness and/or psychological trauma. This project develops an ethical, multi-dimensional framework for exhibiting creative works by people who experience mental illness and/or psychological trauma. Providing such a framework will enable these works to be exhibited ethically, which will serve the public interest by enhancing the contribution of creative programs to individua ....Framing Marginal Art: Developing an ethical, multi-dimensional framework for exhibiting art by people who experience mental illness and/or psychological trauma. This project develops an ethical, multi-dimensional framework for exhibiting creative works by people who experience mental illness and/or psychological trauma. Providing such a framework will enable these works to be exhibited ethically, which will serve the public interest by enhancing the contribution of creative programs to individual and social well-being. Furthermore, by educating the public about mental ill-health it lessens stigma and encourages those affected by illness to seek early, preventive treatment. This project, which leads to better understanding of illnesses that affect one-fifth of the population in their lifetime, will create better health outcomes for significant numbers of Australians.Read moreRead less
Caring for Asylum Seekers in Australia: Bioethics and Human Rights. Australia's policy of mandatory detention has been criticised at home and abroad. This research will bring together both empirical and reflective material about that policy by those who have seen its effects first hand, which will make an important contribution to national self-definition. The research process itself will bring together practitioners who have worked in the field, many of whom have expressed the need for recordin ....Caring for Asylum Seekers in Australia: Bioethics and Human Rights. Australia's policy of mandatory detention has been criticised at home and abroad. This research will bring together both empirical and reflective material about that policy by those who have seen its effects first hand, which will make an important contribution to national self-definition. The research process itself will bring together practitioners who have worked in the field, many of whom have expressed the need for recording their experiences, and guidelines as to how to practice in the future when human rights issues form a part of clinical practice. As such, the project will contribute to other areas of healthcare where such issues are present, such as indigenous health, mental health, and the care of other vulnerable populations. Read moreRead less
Health, Freedom and Independent Contracting. The project will offer significant insights into the effects of independent contracts on the key area of rural health. The project will be able to gauge whether independent contracts offer significant improvements to the health and well being of those who use them, as well as the advantages to industry. In addition, the project will also consider the important ethical issue of whether independent contracts enhance the freedom of individual workers and ....Health, Freedom and Independent Contracting. The project will offer significant insights into the effects of independent contracts on the key area of rural health. The project will be able to gauge whether independent contracts offer significant improvements to the health and well being of those who use them, as well as the advantages to industry. In addition, the project will also consider the important ethical issue of whether independent contracts enhance the freedom of individual workers and in what ways.Read moreRead less
Involving children in social research: balancing the risks and benefits. There is a growing consensus that children's involvement in social research is important, but considerable uncertainty remains around children's inclusion in research on 'sensitive' issues, reflecting concerns about how to balance children's protection with their participation. Key to this are deeply embedded assumptions and beliefs about children and childhood, especially concerning notions of capacity, agency, vulnerabili ....Involving children in social research: balancing the risks and benefits. There is a growing consensus that children's involvement in social research is important, but considerable uncertainty remains around children's inclusion in research on 'sensitive' issues, reflecting concerns about how to balance children's protection with their participation. Key to this are deeply embedded assumptions and beliefs about children and childhood, especially concerning notions of capacity, agency, vulnerability, dependency and the like. This project aims to better understand and address the tensions between the protection of children and their participation in research, and to explore how ethics committees, parents, other gatekeepers and children themselves manage and navigate these tensions.Read moreRead less