Models And Quality Of Genetic Health Services For Aboriginal And Torres Strait Islander People
Funder
National Health and Medical Research Council
Funding Amount
$351,240.00
Summary
Genetic health services are playing an increasingly important role in improving human health. Aboriginal people are underrepresented in such services despite a higher prevalence of a number of genetically determined conditions and evidence of willingness to access these services. Our grant will inform the development of effective models of genetic health service provision for Aboriginal people. This will improve health equity both now and in the future.
Preconception Carrier Screening: Providing Genetically At Risk Families With A Chance To Have Healthy Children
Funder
National Health and Medical Research Council
Funding Amount
$857,443.00
Summary
Current preconception carrier screening is not widely accessible and has no public funding. We will develop a model of the social and economic impacts of genetic disorders on families and government and the cost of a range of genomic technologies to determine the social and economic benefits that could be realised by the introduction of accessible and affordable preconception carrier screening using existing technologies: gene panels and advances in whole genome sequencing (WGS).
What Is The Influence Of Alcohol Outlet Density, Price And Promotion On Trends In Adolescents' Drinking Behaviours
Funder
National Health and Medical Research Council
Funding Amount
$308,551.00
Summary
This study examines how changes in alcohol availability as indicated by density of alcohol outlets, alcohol taxation rates, alcohol advertising, media coverage about alcohol issues and alcohol control policies influence trends in adolescents' alcohol use over the period 1993 to 2011. Findings from this study will provide evidence for the development of alcohol-related policies to curb alcohol misuse among adolescents at a time of increasing demand for governments to take action in this area.
Notifications To The Australian Health Practitioner Regulation Agency: Identifying ‘hot Spots’ Of Risk To Help Improve The Quality And Safety Of Healthcare
Funder
National Health and Medical Research Council
Funding Amount
$276,072.00
Summary
Health practitioners with performance, health or conduct concerns can present a serious risk to patients. Yet we lack reliable methods for identifying these practitioners at an early stage. Each year the Australian Health Practitioner Regulation Agency receives 1,000s of notifications about individual practitioners. We will use this data to identify “hot spots” of risk among different groups of practitioners and help target interventions to support practitioners and protect patients from harm.
Early Identification Of Disability To Inform Better Care And Outcomes In High Risk Patients
Funder
National Health and Medical Research Council
Funding Amount
$97,000.00
Summary
Australia has achieved marked improvement in hospital survivorship. We face the challenge of an ageing population, and healthcare resources need to prioritise good value care, clearly identifying high-risk patients who will not benefit from invasive and expensive interventions. This proposal takes the required next step to enable health providers to predict patients at risk of ongoing disability, optimise discharge planning, and to measure long-term health outcomes.
Targeting At Risk Relatives Of Glaucoma Patients For Early Diagnosis And Treatment (TARRGET)
Funder
National Health and Medical Research Council
Funding Amount
$595,375.00
Summary
Glaucoma is the second leading cause of blindness in Australia but early detection and treatment can prevent blindness. We will recruit patients with advanced glaucoma from an Australia wide registry and refer their close relatives to have an eye exam and genetic testing to see if they are at risk of glaucoma. We will evaluate how a coordinator can improve the uptake of this screening program referring people to local eye care providers and in rural WA providing screening in 16 remote locations.
Building The Evidence Base For Suicide Prevention: The Victorian Suicide Register
Funder
National Health and Medical Research Council
Funding Amount
$189,238.00
Summary
This partnership between the Coroners Court of Victoria, the Lifeline Foundation for Suicide Prevention, the University of Melbourne and Monash University will develop and evaluate a suicide register. The register will contain detailed information on those who die and the circumstances surrounding their deaths. This information is not systematically collected elsewhere, and will help prevent future suicides by informing coroners’ recommendations and strengthening the broader evidence base.
An Intervention To Improve The Detection And Management Of Familial Hypercholesterolaemia In Primary Care
Funder
National Health and Medical Research Council
Funding Amount
$518,588.00
Summary
Familial hypercholesterolaemia (FH) is an inherited condition affecting 45,000 Australians, with 10% diagnosed. FH has been managed mainly through hospital clinics with the majority under-treated despite effective primary care treatment being available. The application integrates specialist and primary care management with data fed into the new national FH registry. It is a partnership between 7 Universities and 5 States: service providers; community organisations; policy managers and industry.
Health And Fertility Of Young Men Conceived Using Intra-cytoplasmic Sperm Injection
Funder
National Health and Medical Research Council
Funding Amount
$362,570.00
Summary
The injection of a single sperm into the egg (ICSI) has been the main IVF treatment for men with poor sperm quality since 1993 but is now often used for other types of infertility. Concern has been raised about the health of the children. We will approach >800 parents and their adult sons conceived using ICSI and will assess his general health and development, and fertility. This work will improve patient counselling and practice guidelines, and direct research into the safety of ICSI.
Guidance Of Heart Failure Management Programs By Risk Assessment
Funder
National Health and Medical Research Council
Funding Amount
$991,654.00
Summary
After admission with acute heart failure (HF), readmissions to hospital are frequent. This Partnership project aims to reduce HF readmissions by using data linkage to target community services, developing a HF readmission prediction score, and applying this to a novel, variable intensity HF management program, so resources are directed towards the highest risk patients. The study will evaluate the cost-effectiveness of this approach and provide educate community-based providers on the process.