Developing And Measuring Palliative Care Decision Making Skill
Funder
National Health and Medical Research Council
Funding Amount
$137,000.00
Summary
Relationships and communication skills that health professionals develop with patients are critical to patient involvement in decision making. This project will build on previous decision making research and the development of palliative care education for undergraduate students. The key components of successful decision making skills will be investigated and an education program and skill measures for undergraduate and postgraduate health professional students will be developed and pilot tested ....Relationships and communication skills that health professionals develop with patients are critical to patient involvement in decision making. This project will build on previous decision making research and the development of palliative care education for undergraduate students. The key components of successful decision making skills will be investigated and an education program and skill measures for undergraduate and postgraduate health professional students will be developed and pilot tested.Read moreRead less
Prospective Study Of Medical Emergency Team Calls To Define Issues Of End Of Life Decision Making
Funder
National Health and Medical Research Council
Funding Amount
$48,700.00
Summary
A Medical Emergency Team (MET) is a specialised team of doctors and nurses from the Intensive Care Unit who urgently come to patients on the general wards whose medical condition is very unstable. They have to make crucial decisions about their treatment in a very short time. The previous research in this area has been focussed on improving medical outcomes, however it is also apparent that the patients having MET calls are often seriously ill with life limiting illnesses. This study aims to exp ....A Medical Emergency Team (MET) is a specialised team of doctors and nurses from the Intensive Care Unit who urgently come to patients on the general wards whose medical condition is very unstable. They have to make crucial decisions about their treatment in a very short time. The previous research in this area has been focussed on improving medical outcomes, however it is also apparent that the patients having MET calls are often seriously ill with life limiting illnesses. This study aims to explore the broader aspects of care at this time, which are of paramount importance to patients and their families, such as various aspects of communication, particularly focusing on changing goals of care; and also the symptoms that may be causing significant distress for the patient. This project will provide information that will assist development of interventions that will both aim to improve quality of life and also communication in the setting of medical emergencies in patients with life limiting illness.Read moreRead less
Needs Based Palliative Care: Development And Evaluation Of A Consumer Toolkit
Funder
National Health and Medical Research Council
Funding Amount
$68,500.00
Summary
People with advanced cancer and their caregivers may have a range of unmet physical, emotional, social and spiritual needs. Unfortunately, not everybody receives the type of help they need with these issues, or at the time they most need it. Our study will develop and trial a strategy aimed at helping patients and their caregivers to identify their own levels of unmet needs and to communicate these to their health care team, to improve needs-based palliative care.
An Investigation Of Care Planning Decisions In Advanced Pulmonary And Cardiac Illness In The Bayside Health Care Region
Funder
National Health and Medical Research Council
Funding Amount
$47,726.00
Summary
There has been little Australian research to develop interventions that facilitate end of life decision making. This project will provide a framework for understanding the issues in the planning of end of life care for people with chronic and life limiting illness and the relationship of this planning to organizational policy. The care decisions in hospital records of people with advanced lung and heart disease will be reviewed and people with those diseases interviewed about the issues they exp ....There has been little Australian research to develop interventions that facilitate end of life decision making. This project will provide a framework for understanding the issues in the planning of end of life care for people with chronic and life limiting illness and the relationship of this planning to organizational policy. The care decisions in hospital records of people with advanced lung and heart disease will be reviewed and people with those diseases interviewed about the issues they experience in planning their future care. Professionals from a range of health organisations will be interviewed about their experiences of care planning for people with life limiting lung and heart disease. As a pilot, this project will be used to contribute to the development of a model for a coordinated multidisciplinary process that brings together the health care services in a region and contributes to the systematic, ongoing development of infrastructure to improve end of life care.Read moreRead less
Communication, Quality Of Life And Advance Care Planning For People With Motor Neurone Disease And Their Caregiver.
Funder
National Health and Medical Research Council
Funding Amount
$108,902.00
Summary
People with motor neurone disease experience devastating deterioration in movement, communication, swallowing and ultimately breathing. Research is required to determine if the advance care planning (ACP) process for people with MND is impacted by communication impairment. This study will build evidence to improve the ACP process for this vulnerable patient group. It also aims to investigate the impact communication impairment has on caregivers’ quality of life in order to improve carer support.
End-of-Life Care And Dying-at-Home: Choices And Needs Of People With Intellectual Disability And Their Carers
Funder
National Health and Medical Research Council
Funding Amount
$104,343.00
Summary
With the continued push towards community living for people with intellectual disability, how best to provide support at the end-of-life remains a neglected research area. This occurs against a backdrop of an increasingly ageing population, in an arena where end-of-life care and dying at home is the preferred option for most people. This research breaks new ground, aiming to establish supports such that people with intellectual disability may remain at home until the end of their life.
Investigating The Inclusion Of Vulnerable Populations In Advance Care Planning: Developing Complex And Sensitive Public Policy
Funder
National Health and Medical Research Council
Funding Amount
$379,368.00
Summary
People from Indigenous, and Culturally and Linguistically Diverse communities, and those living with chronic disease, tell us that current Advance Care Planning (ACP) policy and practice doesn’t meet their needs. This Partnership Project will work with these communities to develop inclusive, sensitive policy and practice for ACP— so all Australians get the care they deserve. It will also establish how to include vulnerable populations in developing health policy on complex and sensitive issues.