Improving QOL At The End Of Life: A Randomised Controlled Trial Of A Doctor-nurse-patient Intervention.
Funder
National Health and Medical Research Council
Funding Amount
$687,655.00
Summary
This project aims to promote mutual understanding between patients with incurable disease, carers and clinicians about prognosis, end of life issues and treatment goals in order to improve the quality of remaining life. Currently many patients do not understand their prognosis and make poor decisions about treatment, receiving costly, futile and invasive treatments just days before death. This project will empower patients and doctors to better discuss these issues.
Can Self-management Education Programs Improve Outcomes Of People With Osteoarthritis?
Funder
National Health and Medical Research Council
Funding Amount
$343,874.00
Summary
Arthritis is a very common disease associated with pain, disability and poor quality of life. An important way that people with arthritis can deal with the disease is through using a variety of self-management behaviours and coping strategies as well as becoming well informed about the best available treatments. A specific course was developed in he US to help people self-manage. It has been available in Australia for 20 years through Arthritis Foundations and has become their core business. Tre ....Arthritis is a very common disease associated with pain, disability and poor quality of life. An important way that people with arthritis can deal with the disease is through using a variety of self-management behaviours and coping strategies as well as becoming well informed about the best available treatments. A specific course was developed in he US to help people self-manage. It has been available in Australia for 20 years through Arthritis Foundations and has become their core business. Treatment guidelines used by doctors to treat people with arthritis regularly recommend that patients should be referred to such courses. Although the course is widely distributed, the evidence scientific evidence regarding its effectiveness is patchy, and some overviews suggest it is not useful at all. Confusion exists regarding the value of the course. While treatment guidelines advise doctors to refer patients to the program by very few GPs, Rheumatologist or Orthopaedic surgeons do refer. The proposed study is a large controlled trial which will provide essential evidence to inform patients, doctors and policy makers on the benefits of the course. It will involve people with well defined moderate to severe arthritis who have consulted a surgeon or rheumatologist. People will be randomised to receive the intervention (two hours per week, six session course including an 'arthritis self-help' book) will be compared with people in a control group (who only receive the book without instruction). People will be followed for 1 year to see if the course improves quality of life, health behaviours, and whether less health care resources (ie attendance at doctors or less medication use) are used. The results of this study will be influential in determining government policy as the number of people with chronic diseases like arthritis is rapidly growing and the acute healthcare system, including hospitals, are poorly equipped to deal with this growing problem.Read moreRead less
Indigenous Men Taking Their Rightful Place In Society?: A Participatory Action Research Process.
Funder
National Health and Medical Research Council
Funding Amount
$705,750.00
Summary
Men's health groups are increasingly being accepted as important strategies in improving health and wellbeing, especially in Indigenous communities. However, it is hard to find systematic documentation and evaluation of such initiatives in the literature. Since August 2001, we have been facilitating and analysing a Participatory Action Research (PAR) process designed to support members of a men's health group in Yarrabah, a rural Aboriginal community near Cairns (north Queensland), take greater ....Men's health groups are increasingly being accepted as important strategies in improving health and wellbeing, especially in Indigenous communities. However, it is hard to find systematic documentation and evaluation of such initiatives in the literature. Since August 2001, we have been facilitating and analysing a Participatory Action Research (PAR) process designed to support members of a men's health group in Yarrabah, a rural Aboriginal community near Cairns (north Queensland), take greater control and responsibility for the factors influencing their health and wellbeing. The PAR process is providing initial evidence indicating that the development of men's health groups in Indigenous settings can lead to social and behavioural change and that PAR is potentially a useful tool in working towards social change. The current proposal is a joint initiative between the academic partners and the men's group leadership and proposes among other things to: a) consolidate and extend the existing PAR initiative with members of the Yarrabah Men's Health Group and their community; b) adapt and pilot the PAR model in another north Queensland community; and c) undertake a systematic and comparative evaluation across the two sites to determine the medium -long term usefulness of men's health groups as health promotion strategies especially in rural-remote Indigenous settings. These types of micro-level studies have important implications for the way community development is perceived and approached in Indigenous settings.Read moreRead less
Empowerment As A Strategy For Wellbeing In Indigenous Settings: Developing Tools To Systematically Evaluate Outcomes
Funder
National Health and Medical Research Council
Funding Amount
$403,100.00
Summary
This project will add significant strength to one of Australia's key initiatives in the promotion of health and well-being, namely the Family Well Being Program . This program was developed by a group of Aboriginal people based in Adelaide in order to specifically address the effects of colonisation on the emotional health and wellbeing of Indigenous Australians. It is a nationally accredited course and has been delivered in a wide variety of settings and participating groups. Previous evaluatio ....This project will add significant strength to one of Australia's key initiatives in the promotion of health and well-being, namely the Family Well Being Program . This program was developed by a group of Aboriginal people based in Adelaide in order to specifically address the effects of colonisation on the emotional health and wellbeing of Indigenous Australians. It is a nationally accredited course and has been delivered in a wide variety of settings and participating groups. Previous evaluation using in-depth interviews, focus groups and course evaluation forms have revealed long lasting increases in participants' life skills and problem-solving capacity, thereby making them better able to help themselves and the young people around them to deal with emotions and life's challenges. Changes are particularly profound among individuals who have completed the full Four Stage Program (40 week course) and their families and communities. Up to now, the impact and outcome of the Family Well Being Program has not had a way of being objectively measured in the way that other health promotion programs have. This is partly due to the complexity of its aims; empowering people to take control of their lives, as opposed to trying to directly change behaviours that place them at risk of illness. It is also because the definition, pathway and results of becoming an empowered person, group and community are not completely understood and are likely to be expressed differently from one social and cultural group to another. This current project aims to gain a clearer understanding of the meaning, experience, outcomes and values people attach to empowerment; then use this information to design tools to help assess the effectiveness of programs that seek to stimulate empowerment. Activities will include further analysis of existing qualitative data, workshop discussions, piloting tools and implementing them within communities with ongoing Family Well Being programs.Read moreRead less
Evaluation Of Family Well Being Empowerment Program: A Participatory Action Research Initiative
Funder
National Health and Medical Research Council
Funding Amount
$487,920.00
Summary
We have shown that family well being empowerment training in Indigenous communities can significantly enhance program participants' sense of control and responsibility for the conditions affecting their health and well being (Tsey and Every, 2000a;Tsey and Every, 2000b). Following this, there has been a great deal of interest and demand for the family well being program not only in Indigenous Australia, but also among Maori people in New Zealand. Presently, we are involved in four collaborative ....We have shown that family well being empowerment training in Indigenous communities can significantly enhance program participants' sense of control and responsibility for the conditions affecting their health and well being (Tsey and Every, 2000a;Tsey and Every, 2000b). Following this, there has been a great deal of interest and demand for the family well being program not only in Indigenous Australia, but also among Maori people in New Zealand. Presently, we are involved in four collaborative initiatives with indigenous communities in response to growing interest and demand for the program. The current proposal is a joint initiative between University of Queensland, Apunipima Cape York Health Council and Gurriny Yealamucka Health Services which aims to: a. Consolidate and extend the existing family well being initiatives in Hopevale and Yarrabah to two other north Queensland communities (yet to be selected from several that have expressed an interest), using a participatory action research process b. Undertake a meta evaluation of outcomes across all four sites This proposal aims to increase our understanding about ways in which individuals and groups of people can be better supported in their efforts to bring about changes in personal and social life.Read moreRead less
Evaluation Of Family WellBeing Empowerment Program: A Follow-up Study
Funder
National Health and Medical Research Council
Funding Amount
$82,940.00
Summary
Although relative powerlessnes resulting from colonisation has long been recognised as a major factor shaping Indigenous health, it is difficult to find tested and validated empowerment programs in the Indigenous health literature. The current project will follow-up a previous evaluation of a Family WellBeing empowerment training course which was implemented in Alice Springs in 1998-9. The aim is to find out the extent to which course participants have been able to sustain the high levels of per ....Although relative powerlessnes resulting from colonisation has long been recognised as a major factor shaping Indigenous health, it is difficult to find tested and validated empowerment programs in the Indigenous health literature. The current project will follow-up a previous evaluation of a Family WellBeing empowerment training course which was implemented in Alice Springs in 1998-9. The aim is to find out the extent to which course participants have been able to sustain the high levels of personal empowerment demonstrated at the time of the original evaluation on the medium-long term basis. Among other things, this study will provide valuable insights and understandings about the pathways and conditions under which individuals and groups of people might use personal empowerment skills, especially better analytical and problem-solving skills to achieve greater control in life.Read moreRead less