Improving Outcomes For People With Cancer: Consultation Skills Training With Oncologists
Funder
National Health and Medical Research Council
Funding Amount
$499,070.00
Summary
Each year approximately 30,000 Australians die from cancer and 65,000 new cancers are diagnosed. Despite much research for a cure for cancer, the incidence and mortality from cancer has not changed. New treatments now cause people with cancer to live longer with the disease, so we now need to focus on efforts to optimise the quality of life of these people. Although the emotional burden on patients and families is recognized, there is a sense that this is an inevitable by-product of the disease ....Each year approximately 30,000 Australians die from cancer and 65,000 new cancers are diagnosed. Despite much research for a cure for cancer, the incidence and mortality from cancer has not changed. New treatments now cause people with cancer to live longer with the disease, so we now need to focus on efforts to optimise the quality of life of these people. Although the emotional burden on patients and families is recognized, there is a sense that this is an inevitable by-product of the disease and its management in existing clinical systems. However, this does not need to be the case. There is now ample evidence that the way that doctors interact with their patients can effect the accuracy of diagnosis and prognosis, as well as patients' satisfaction, adherence with treatment instructions and quality of life after being diagnosed with cancer. Both patient advocate groups and clinicians have called for further training for doctors to effectively manage psychosocial aspects of cancer care, however, despite this support, there have been few opportunities for such training in Australia. We have developed an innovative consultation-skills program for oncologists. So that the effectiveness of the project can be evaluated, it will be implemented as a randomised controlled trial with oncologists from major Australian cancer clinics being randomly allocated to an intervention or control group. The training program will be delivered by videoconferencing, to overcome many of the barriers that have impeded busy clinicians from participating in previous training programs. This is the first international study to use videoconferencing between remote locations for this type of consultation skills training. A variety of measures will be used to evaluate the impact of the training, including patients' quality of life, anxiety, depression and perceived needs, and oncologists' burn-out.Read moreRead less
A Parent Education And Skills Training Early Intervention For Children With Autism
Funder
National Health and Medical Research Council
Funding Amount
$305,674.00
Summary
Autism is a severely handicapping disorder adversely affecting social interaction, communication, and behaviour, interests and activities. Over the past 9 years our team has conducted a follow-up study of a large group of 111 Australian children and adolescents with autism. The young people have continued to have very high levels of emotional and behavioural disturbance and generally do not improve. Parents of children with autism are under significant amounts of stress; reporting high levels of ....Autism is a severely handicapping disorder adversely affecting social interaction, communication, and behaviour, interests and activities. Over the past 9 years our team has conducted a follow-up study of a large group of 111 Australian children and adolescents with autism. The young people have continued to have very high levels of emotional and behavioural disturbance and generally do not improve. Parents of children with autism are under significant amounts of stress; reporting high levels of disturbed family functioning and mental health problems. Although there is no cure, children benefit most when early help is provided (under 5 years). There are several promising interventions based on intensive behaviour and educational management, for example requiring 40 hours per week of therapist contact over 2 years. Such programs are costly and impractical as widely available treatment options. Training parents to understand and manage their child also shows promise. This study will evaluate the effectiveness of a parent skills training and education treatment program compared to supportive therapy, and to generally available community services. The therapists will follow a treatment manual that will ensure a consistent and replicable approach. The progress of the children with autism and their families will be reassessed immediately after treatment, and at 1 and 2 years post-treatment in order to ascertain immediate and long-term effects of the treatment. If treatment proves to be of use, we will have established a defined, cost efficient, practical and effective model of early treatment that can be easily taught to professionals and widely disseminated throughout early childhood services.Read moreRead less
Implementation And Evaluation Of A Diabetes Intervention Program In Indigenous Australian Communities.
Funder
National Health and Medical Research Council
Funding Amount
$173,625.00
Summary
Approximately 700,000 Australians have type 2 diabetes (also termed maturity-onset diabetes or non-insulin dependent diabetes), which is a condition associated with reduced lifespan, eye disease, heart disease, renal disease, stroke, and foot complications leading to amputation. Indigenous Australians are at particularly high risk, with over 30% of adults affected by this condition in a number of communities, associated with significant morbidity and mortality. Early diagnosis, healthy lifestyle ....Approximately 700,000 Australians have type 2 diabetes (also termed maturity-onset diabetes or non-insulin dependent diabetes), which is a condition associated with reduced lifespan, eye disease, heart disease, renal disease, stroke, and foot complications leading to amputation. Indigenous Australians are at particularly high risk, with over 30% of adults affected by this condition in a number of communities, associated with significant morbidity and mortality. Early diagnosis, healthy lifestyle modification and tight control of the blood sugar levels, blood pressure and cholesterol are the keys to preventing the complications of diabetes. Self-management is central to success, and education, support and encouragement play an important role. This research project incorporates an education program that has been developed in partnership with the indigenous health team at Cherbourg. Particular strengths include the emphasis on family involvement and community support. The central role of the indigenous health team will ensure continuity of benefit to the community. If proven to be effective, the program could be used as a model for interventions in other community settings to reduce the burden from type 2 diabetes in the indigenous Australian population.Read moreRead less
Evaluation Of Cognitive-behaviour Therapy For Alcohol And Other Drug Problems Among People With A Psychotic Illness
Funder
National Health and Medical Research Council
Funding Amount
$217,465.00
Summary
Abuse of alcohol and other drugs among people with a major psychiatric illness is a serious public health problem and cost-effective treatments need to be developed and assessed. The aim of this project is to evaluate the effectiveness of a counselling intervention. 180 individuals with a psychotic illness and concurrent alcohol and other drug (AOD) problems will be randomly assigned to counselling or usual treatment and followed up for a period of 12 months. The indicators of interest include: ....Abuse of alcohol and other drugs among people with a major psychiatric illness is a serious public health problem and cost-effective treatments need to be developed and assessed. The aim of this project is to evaluate the effectiveness of a counselling intervention. 180 individuals with a psychotic illness and concurrent alcohol and other drug (AOD) problems will be randomly assigned to counselling or usual treatment and followed up for a period of 12 months. The indicators of interest include: current drug use; psychiatric symptoms; self-harm; social functioning; and use of health services. Findings from the proposed study will assist in the selection of particular treatment strategies and will aid the overall development of services for people with both major mental illness and substance abuse.Read moreRead less
Evaluation Of Family Well Being Empowerment Program: A Participatory Action Research Initiative
Funder
National Health and Medical Research Council
Funding Amount
$487,920.00
Summary
We have shown that family well being empowerment training in Indigenous communities can significantly enhance program participants' sense of control and responsibility for the conditions affecting their health and well being (Tsey and Every, 2000a;Tsey and Every, 2000b). Following this, there has been a great deal of interest and demand for the family well being program not only in Indigenous Australia, but also among Maori people in New Zealand. Presently, we are involved in four collaborative ....We have shown that family well being empowerment training in Indigenous communities can significantly enhance program participants' sense of control and responsibility for the conditions affecting their health and well being (Tsey and Every, 2000a;Tsey and Every, 2000b). Following this, there has been a great deal of interest and demand for the family well being program not only in Indigenous Australia, but also among Maori people in New Zealand. Presently, we are involved in four collaborative initiatives with indigenous communities in response to growing interest and demand for the program. The current proposal is a joint initiative between University of Queensland, Apunipima Cape York Health Council and Gurriny Yealamucka Health Services which aims to: a. Consolidate and extend the existing family well being initiatives in Hopevale and Yarrabah to two other north Queensland communities (yet to be selected from several that have expressed an interest), using a participatory action research process b. Undertake a meta evaluation of outcomes across all four sites This proposal aims to increase our understanding about ways in which individuals and groups of people can be better supported in their efforts to bring about changes in personal and social life.Read moreRead less
Evaluation Of Family WellBeing Empowerment Program: A Follow-up Study
Funder
National Health and Medical Research Council
Funding Amount
$82,940.00
Summary
Although relative powerlessnes resulting from colonisation has long been recognised as a major factor shaping Indigenous health, it is difficult to find tested and validated empowerment programs in the Indigenous health literature. The current project will follow-up a previous evaluation of a Family WellBeing empowerment training course which was implemented in Alice Springs in 1998-9. The aim is to find out the extent to which course participants have been able to sustain the high levels of per ....Although relative powerlessnes resulting from colonisation has long been recognised as a major factor shaping Indigenous health, it is difficult to find tested and validated empowerment programs in the Indigenous health literature. The current project will follow-up a previous evaluation of a Family WellBeing empowerment training course which was implemented in Alice Springs in 1998-9. The aim is to find out the extent to which course participants have been able to sustain the high levels of personal empowerment demonstrated at the time of the original evaluation on the medium-long term basis. Among other things, this study will provide valuable insights and understandings about the pathways and conditions under which individuals and groups of people might use personal empowerment skills, especially better analytical and problem-solving skills to achieve greater control in life.Read moreRead less