Support needs assessment: a developmental model for use in support, training and funding for individuals with single and multiple disabilities. This research project aims to construct and trial a new model for the assessment of the support needs of persons with disabilities. It addresses a number of critical deficiencies which recent research has shown to undermine the reliability, validity and usefulness of existing support needs instruments. Specifically, it is proposed to collect data that ....Support needs assessment: a developmental model for use in support, training and funding for individuals with single and multiple disabilities. This research project aims to construct and trial a new model for the assessment of the support needs of persons with disabilities. It addresses a number of critical deficiencies which recent research has shown to undermine the reliability, validity and usefulness of existing support needs instruments. Specifically, it is proposed to collect data that will inform the determination of the support needs of people with different kinds and combinations of disabilities. Variations in maintenance and intervention supports over time and context will be considered. The assessment system planned will have the flexibility to meet a number of potential user objectives.Read moreRead less
Negotiating caring and employment - the impact on carers' wellbeing. Work and caring compete for carers? time. Little is known about the difficulties of combining work with the care of adults or children with disabilities. Between 40 and 60 percent of Australian carers combine employment with caring responsibilities. The project proposes to adopt a life-course perspective to study the effect of caring on income security, social participation and the health of employed carers. It makes innovative ....Negotiating caring and employment - the impact on carers' wellbeing. Work and caring compete for carers? time. Little is known about the difficulties of combining work with the care of adults or children with disabilities. Between 40 and 60 percent of Australian carers combine employment with caring responsibilities. The project proposes to adopt a life-course perspective to study the effect of caring on income security, social participation and the health of employed carers. It makes innovative use of existing data sources, including new longitudinal survey data, supported by a specially designed program of qualitative research to study key transitions, possible workplace solutions and the effective provision of human services.Read moreRead less
Accommodating the Needs of People with Lifelong Intellectual Disability in Residential Aged Care. Unique challenges face the residential aged care system because of the increased life expectancy of people with life-long intellectual disability and the likelihood of their premature ageing. Although this group is recognised by Federal and State governments as requiring specific and special service arrangements, little is known about adapting disability and aged care services to their needs, thus p ....Accommodating the Needs of People with Lifelong Intellectual Disability in Residential Aged Care. Unique challenges face the residential aged care system because of the increased life expectancy of people with life-long intellectual disability and the likelihood of their premature ageing. Although this group is recognised by Federal and State governments as requiring specific and special service arrangements, little is known about adapting disability and aged care services to their needs, thus program development is in its early stages. This research will inform the development of policy and programs in the Aged Care, Disability and Health sectors with the aim of improving the quality of life for people with intellectual disability as they age.Read moreRead less
The 1-in-4 Poll: Inclusion of people with a disability and carers in social and political deliberative processes. This proposed project will benefit Australia by developing a method that includes ongoing quarterly topical surveys through which people with a disability and their carers, approximately one in four Australians, can effectively participate in social and political processes. It will also test the efficacy of 'influencing activities' that derive from those surveys. Additionally, the pr ....The 1-in-4 Poll: Inclusion of people with a disability and carers in social and political deliberative processes. This proposed project will benefit Australia by developing a method that includes ongoing quarterly topical surveys through which people with a disability and their carers, approximately one in four Australians, can effectively participate in social and political processes. It will also test the efficacy of 'influencing activities' that derive from those surveys. Additionally, the project will establish a data set that will provide regular and reliable information from and about people with a disability in Australia. This is a unique and much needed contribution to social justice within Australia. Read moreRead less
The transition of care from ageing parents: achieving flexible relationships between adults with cerebral palsy, their siblings and service providers. The Australian community faces a significant challenge in providing life-long care for people with severe disability. We will develop a model that will assist families and service providers to make a smooth, effective transition of care and/or responsibility of adults with cerebral palsy from parents to siblings. Achieving this will increase the ....The transition of care from ageing parents: achieving flexible relationships between adults with cerebral palsy, their siblings and service providers. The Australian community faces a significant challenge in providing life-long care for people with severe disability. We will develop a model that will assist families and service providers to make a smooth, effective transition of care and/or responsibility of adults with cerebral palsy from parents to siblings. Achieving this will increase the quality of life for disabled and nondisabled family members, and ensure a more efficient use of public funding. Our findings will serve as a model for managing the life-long care of people with cerebral palsy and other severe, chronic disabilities, throughout Australia and overseas.Read moreRead less
An examination of issues around the support and supervision of Kinship Carers, with a particular focus on NSW. This project will be the first in-depth exploration of issues around provisions of support for and supervision of, kinship carers. The exploration will include an analysis of paradigms influencing child welfare provisions. It will also include a study of characteristics and experiences of formal kinship carers, informal kinship carers and foster carers in NSW. The findings of this stu ....An examination of issues around the support and supervision of Kinship Carers, with a particular focus on NSW. This project will be the first in-depth exploration of issues around provisions of support for and supervision of, kinship carers. The exploration will include an analysis of paradigms influencing child welfare provisions. It will also include a study of characteristics and experiences of formal kinship carers, informal kinship carers and foster carers in NSW. The findings of this study will be examined in the context of the paradigm analysis. The findings will contribute to knowledge for policy development on kinship care generally, and in particular, enable ACWA to contribute to the development of kinship care policy in NSW.Read moreRead less
Maintaining family-based placement for children and young people with disabilities. Aim: To enable families to continue caring at home for children with severe disabilities.
Significance: These families face significant challenges in juggling the demands of work, family and care to the extent that one in four decide to relinquish the care of their child. This leaves more than 37,000 children in Australia at risk of not growing up in their family home.
Expected outcomes: A psychometrically sou ....Maintaining family-based placement for children and young people with disabilities. Aim: To enable families to continue caring at home for children with severe disabilities.
Significance: These families face significant challenges in juggling the demands of work, family and care to the extent that one in four decide to relinquish the care of their child. This leaves more than 37,000 children in Australia at risk of not growing up in their family home.
Expected outcomes: A psychometrically sound instrument that will identify families struggling to care for their children at home, and a family and practitioner guide of innovative solutions to maintaining family-based placements.
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Classifying support needs of people with disabilities. The aim of this research is to develop a valid and reliable assessment and classification system of the support needs of people with diverse disabilities. Current methods are found wanting due to neglect of the complex interactions between health condition, activity and context and inability to account for type and intensities of supports needed. The development of a robust system which can be used to assess and classify the support needs of ....Classifying support needs of people with disabilities. The aim of this research is to develop a valid and reliable assessment and classification system of the support needs of people with diverse disabilities. Current methods are found wanting due to neglect of the complex interactions between health condition, activity and context and inability to account for type and intensities of supports needed. The development of a robust system which can be used to assess and classify the support needs of people with a wide range of disabilities and across settings will enable human service agencies to be responsive and tailor their services to individual needs.Read moreRead less
Implementing and evaluating the Life Needs Model for young people with cerebral palsy. This study will provide evidence of a quantitative and qualitative nature about the access and engagement of people with cerebral palsy utilising a life needs model approach. The benefits are expected to be a decrease in dependency and a move towards greater interdependency, social inclusion, productivity and sustainability for people with cerebral palsy.
Inclusion of young children with disabilities in mainstream early childhood services. The aim of this APAI doctoral project is to investigage the barriers to, and factors which facilitate effective inclusion of young children with disabilities in mainstream early childhood services in the Australian funding, policy and practice context. The proposed project combines quantitative and qualitative methods to examine the process and outcomes of inclusion in long day care, preschool and family day ca ....Inclusion of young children with disabilities in mainstream early childhood services. The aim of this APAI doctoral project is to investigage the barriers to, and factors which facilitate effective inclusion of young children with disabilities in mainstream early childhood services in the Australian funding, policy and practice context. The proposed project combines quantitative and qualitative methods to examine the process and outcomes of inclusion in long day care, preschool and family day care. The findings will inform policy and practice by enabling early childhood agencies to be more responsive and to better tailor their services to individual child and family needs.Read moreRead less