Our aim is to develop appropriate infrastructures necessary to facilitate access by researchers to the accumulated data, including questionnaires, direct physical measurements, blood, DNA and other tissues collected on over 40,000 people in the Health 2020 Cohort Study (Health 2020) and, subject to proposals being judged sufficiently meritorious by an approved peer review process and gaining HREC approval, to facilitate supervised access to participants as required.
This proposal is to build a new national resource for medical research that will both underpin and enhance the national health and medical research effort in Australia by systematically enabling world-class biobanking capacities and hence the population-based resources in WA for genetics epidemiological research. The WA DNA Bank will also provide national access to WA biospecimen resources, and will facilitate collaboration and research into national priority diseases of childhood and adulthood.
The Australian Twin Registry (ATR) is a volunteer registry of over 30,000 twin pairs willing to consider participation in health research. This national resource was established in the 1980s with NHMRC support because twin studies play a unique, powerful role in research on the impact of genetic and environmental factors on health. Over 400 studies have benefited. The ATR seeks on-going funding to remain internationally competitive and meet increasing demand due to advances in genetic research.
A National Population-based Genetic Epidemiology, Biospecimen And Bioinformatic Resource
Funder
National Health and Medical Research Council
Funding Amount
$1,900,000.00
Summary
This proposal is to build a new national resource for medical research. The project will integrate human medical research resources (including DNA) in WA with the core WA Data Linkage System, with complementary initiatives in bioinformatics and biostatistics. The resulting unique facility will comprise one of the largest and best-characterised population-based enabling facilities for epidemiological and genetic epidemiological research in the world, and will considerably enhance the national res ....This proposal is to build a new national resource for medical research. The project will integrate human medical research resources (including DNA) in WA with the core WA Data Linkage System, with complementary initiatives in bioinformatics and biostatistics. The resulting unique facility will comprise one of the largest and best-characterised population-based enabling facilities for epidemiological and genetic epidemiological research in the world, and will considerably enhance the national research capacity.Read moreRead less
We plan to collect health information from Australian patients with arthritis to monitor the benefits and safety of new treatments. All patients being treated with the new injectable biologic agents and other patients taking conventional drugs will be invited to take part in the follow up program. We will measure the impact of arthritis on quality of life and physical function and the long-term effects of all arthritis drugs. This will be of immense value to the Australian community as this data ....We plan to collect health information from Australian patients with arthritis to monitor the benefits and safety of new treatments. All patients being treated with the new injectable biologic agents and other patients taking conventional drugs will be invited to take part in the follow up program. We will measure the impact of arthritis on quality of life and physical function and the long-term effects of all arthritis drugs. This will be of immense value to the Australian community as this data are not routinely available from any other source. It will help rheumatologists and patients make the best decisions regarding long-term arthritis treatments.Read moreRead less