Improved Support For Regional And Remote Paediatric Oncology Families: A Randomised Controlled Trial Of Videotelephony
Funder
National Health and Medical Research Council
Funding Amount
$304,843.00
Summary
Childhood cancer presents a major life stressor for the entire family. Significant changes to the everyday lives of families, practically, socially and emotionally cause major disruption. There is evidence that this disruption results in isolation and poor communication between family members, anxiety, low self-esteem and school problems for siblings and anxiety, post-traumatic stress symptoms and risk of depression for parents. Providing ongoing support to these families is an essential part of ....Childhood cancer presents a major life stressor for the entire family. Significant changes to the everyday lives of families, practically, socially and emotionally cause major disruption. There is evidence that this disruption results in isolation and poor communication between family members, anxiety, low self-esteem and school problems for siblings and anxiety, post-traumatic stress symptoms and risk of depression for parents. Providing ongoing support to these families is an essential part of care. The Royal Children's Hospital (RCH) Paediatric Oncology Service in Brisbane is the major tertiary paediatric referral centre for Queensland, northern New South Wales and the southwest Pacific. A multidisciplinary team of medical, nursing, and allied health professionals provides care and support to children with cancer, as well as their families. Each year around 100 newly diagnosed patients are cared for. Around 60% of the families cared for by the service live in regional and remote areas. There are a number of challenges which inhibit the equitable provision of specialist health services to these areas including availability of health care professionals and accessibility due to distance, time, cost and transport. For paediatric oncology families, opportunities to receive support are limited. One possible solution is the use of online support mechanisms, such as videotelephony, to facilitate the provision of much needed support to patients, parents, siblings and the family as a whole. The objective of this research is to see if videotelephony can be used to support regional and remote families of the Royal Children's Hospital Paediatric Oncology Service providing indizidualised communication, education, counselling and monitoring. This will present a new and innovative use of videophone technology as well as a new method for supporting regional and remote oncology patients and their families.Read moreRead less
Constructing futures: an investigation of the aspirations of young adults with an intellectual disability and their parents. This project aims to develop a better understanding of the aspirations for adult life held by young adults with an intellectual disability and their parents. Organisations that provide services to this vulnerable group will use the results to examine current, and guide future, service provision.
Furthering Positive Futures for Children with Intellectual Disabilities: A Longitudinal Investigation. This project will address the paucity of empirical research on drivers of psychosocial and physical well-being (PPW; for example self-concept, depression, behavioural problems, physical fitness, weight) of children with Intellectual Disabilities (ID). This proposal presents an extensive research program aimed at understanding the effects of school life and Physical Activity (PA) on PPW for Aust ....Furthering Positive Futures for Children with Intellectual Disabilities: A Longitudinal Investigation. This project will address the paucity of empirical research on drivers of psychosocial and physical well-being (PPW; for example self-concept, depression, behavioural problems, physical fitness, weight) of children with Intellectual Disabilities (ID). This proposal presents an extensive research program aimed at understanding the effects of school life and Physical Activity (PA) on PPW for Australian children with ID. This program examines: the relations between school life and PPW; the benefits, barriers and predictors of PA; moderators (personal characteristics, educational settings). The overarching objective is to advance theory and research in this area, and to inform intervention strategies furthering more positive futures for children with ID.Read moreRead less
Linkage Infrastructure, Equipment And Facilities - Grant ID: LE140100148
Funder
Australian Research Council
Funding Amount
$460,000.00
Summary
TrISMA - Tracking Infrastructure for Social Media Analysis. Tracking infrastructure for social media analysis: The tracking infrastructure for social media analysis (TrISMA) project establishes state-of-the-art technical and organisational infrastructure for the tracking of public communication by Australian users of social media, at large scale, in real time, and for the long term, addressing a significant gap in national research infrastructure. Social media are increasingly embedded in the Au ....TrISMA - Tracking Infrastructure for Social Media Analysis. Tracking infrastructure for social media analysis: The tracking infrastructure for social media analysis (TrISMA) project establishes state-of-the-art technical and organisational infrastructure for the tracking of public communication by Australian users of social media, at large scale, in real time, and for the long term, addressing a significant gap in national research infrastructure. Social media are increasingly embedded in the Australian media ecology, and systematic analyses of how public communication takes place via social media provide rich insights into a range of issues and debates of high importance to our society.Read moreRead less
New Media and Public Communication: Mapping Australian User-Created Content in Online Social Networks. Understanding the ways people contribute to and use the Internet for a wide range of purposes is important to Australia's future from both a social and an economic perspective. Effective, evidence-based policy depends on developing a vastly improved understanding of the current level of Australians' online activities and interests. This project provides crucial, detailed baseline data on the so ....New Media and Public Communication: Mapping Australian User-Created Content in Online Social Networks. Understanding the ways people contribute to and use the Internet for a wide range of purposes is important to Australia's future from both a social and an economic perspective. Effective, evidence-based policy depends on developing a vastly improved understanding of the current level of Australians' online activities and interests. This project provides crucial, detailed baseline data on the social, cultural and technological dynamics of Australian online public communication, which can inform further government initiatives to strengthen the country's digital economy and to maximise civic engagement through media participation.Read moreRead less
Soft Infrastructure, New Media and Creative Clusters: Developing Capacity in China and Australia. The project will position Australia at the forefront of the creative industries internationally and enhance national capacities in the rejuvenation and design of creative urban precincts. A greater appreciation of, and strong links with China, particularly its design and urban sectors, will result. Australian firms will benefit through greater trade opportunities as a result.
Regulating The Secretion Of Inflammatory Cytokines
Funder
National Health and Medical Research Council
Funding Amount
$558,441.00
Summary
Cytokines or chemical messengers released by cells are essential for controlling immune responses but, in excess, they cause Crohn's disease and arthritis. Our research aims to block cytokine release as a novel way to ameliorate disease. We have identified specific cellular proteins, called golgins, that can be targeted to reduce cytokines. Here, characterization of golgin mediated cytokine transport in cells and in a mouse disease model is necessary to translate these findings for human benefit
The uses of romance for new demographics and multimedia platforms: A model of media innovation in international women's fiction publishing. The national benefit of this project is both economic and socio-cultural. Economically, it investigates new ways to produce and distribute Australian creative content for local and export markets. It identifies how branch offices of global firms can be creative offices. Culturally, it develops scenarios for maximizing the acceptance, uptake and use of digita ....The uses of romance for new demographics and multimedia platforms: A model of media innovation in international women's fiction publishing. The national benefit of this project is both economic and socio-cultural. Economically, it investigates new ways to produce and distribute Australian creative content for local and export markets. It identifies how branch offices of global firms can be creative offices. Culturally, it develops scenarios for maximizing the acceptance, uptake and use of digital technologies by both large-scale publishers and young Australians. It investigates agents along the length of the creative value chain - from authors to audiences - to determine the uses of creative fiction, identifying the features that attract / repel users of published fiction in these genres. Finally it extends the capabilities of users to create their own romance content.Read moreRead less
Social media in times of crisis: learning from recent natural disasters to improve future strategies. This project will analyse and evaluate how social media was used by emergency authorities, media organisations and citizens during recent natural disasters, including the January 2011 Queensland floods and Tropical Cyclone Yasi. The project will develop a framework for longer-term strategies for public communication during emergencies.