Enabling engagement and inclusion: organisational factors that embed active support in accommodation services for people with intellectual disability. The study will investigate the processes and structures necessary to ensure frontline staff deliver high quality support to people with intellectual disability, which enables them to engage in meaningful activity. This knowledge will inform disability service organisation processes and provide indicators of structures necessary for effective servi ....Enabling engagement and inclusion: organisational factors that embed active support in accommodation services for people with intellectual disability. The study will investigate the processes and structures necessary to ensure frontline staff deliver high quality support to people with intellectual disability, which enables them to engage in meaningful activity. This knowledge will inform disability service organisation processes and provide indicators of structures necessary for effective services.Read moreRead less
Lost in Transition: supporting young people with complex support needs. This project seeks to improve the lives of young people with complex support needs who experience overlapping forms of disadvantage. It intends to investigate how best to support their frequent transitions between services, institutions and care environments. These transitions are particularly problematic for this group, and if poorly supported, have significant social and economic costs. The project aims to analyse early li ....Lost in Transition: supporting young people with complex support needs. This project seeks to improve the lives of young people with complex support needs who experience overlapping forms of disadvantage. It intends to investigate how best to support their frequent transitions between services, institutions and care environments. These transitions are particularly problematic for this group, and if poorly supported, have significant social and economic costs. The project aims to analyse early life transitions and the supports available and to suggest best practice for transition support and a framework for how to track transitions using existing data. Intended outcomes will inform policy and practice in how best to invest in supports for young people with complex needs as they make multiple transitions.Read moreRead less
Effective Decision Making Support for People with Cognitive Disability. This project aims to produce and test evidence-based education resources that boost the ability of supporters of people with cognitive disability to put the supported person’s own desires and values at the centre of decisions, as required by treaty obligations and best practice. The project aims to develop innovative education resources, and to then investigate the impact of the resources on the practices of decision-making ....Effective Decision Making Support for People with Cognitive Disability. This project aims to produce and test evidence-based education resources that boost the ability of supporters of people with cognitive disability to put the supported person’s own desires and values at the centre of decisions, as required by treaty obligations and best practice. The project aims to develop innovative education resources, and to then investigate the impact of the resources on the practices of decision-making supporters and the person being supported in a randomised control trial in three jurisdictions. The anticipated outcome is a demonstrably effective capacity-building tool, able to cater for all types of cognitive disabilities and the full spectrum of support contexts from guardianship to informal support.Read moreRead less
Disaster risk reduction practices that leave nobody behind. This project aims to answer critical questions about how to assist people with disabilities (PWD) in disasters, what their support needs are and how they might help themselves to better prepare for disasters. Significance includes coupling a person-centred emergency preparedness tool with cross-sectoral processes to collect and use data about the support needs of PWD in emergencies, increase cross-sector communication and collaboration ....Disaster risk reduction practices that leave nobody behind. This project aims to answer critical questions about how to assist people with disabilities (PWD) in disasters, what their support needs are and how they might help themselves to better prepare for disasters. Significance includes coupling a person-centred emergency preparedness tool with cross-sectoral processes to collect and use data about the support needs of PWD in emergencies, increase cross-sector communication and collaboration between emergency managers and community services, and improve equitable access for PWD to community-level disaster risk reduction (DRR). The expected outcome will be the co-design of effective mechanisms that state & federal decision makers can use to scale-up disability-inclusive DRR across Australia.Read moreRead less
Confronting everyday harms: preventing abuse of people with disability. The findings of the Disability Royal Commission necessitate new approaches to prevent violence, abuse, neglect and exploitation. Framed by recognition theory, this project proposes empirical research with young people with cognitive disability, using a new concept of ‘everyday harms’ in their paid relationships. The results will inform early responses to poor quality interactions in disability support. The strategic alliance ....Confronting everyday harms: preventing abuse of people with disability. The findings of the Disability Royal Commission necessitate new approaches to prevent violence, abuse, neglect and exploitation. Framed by recognition theory, this project proposes empirical research with young people with cognitive disability, using a new concept of ‘everyday harms’ in their paid relationships. The results will inform early responses to poor quality interactions in disability support. The strategic alliances with the government, industry and community partners will develop a practice framework to prevent everyday harms and the escalation to abuse, and to promote safety and wellbeing. The research has policy benefits for capacity-building in the sector to act on the rights and voices of people with disability. Read moreRead less
Understanding 'encounter' as a dimension of social inclusion for people with intellectual disability. People with intellectual disability are among the most socially excluded. This study will help to understand the meaning of social inclusion for this group and how local communities can support it. The findings will help urban designers, local governments and disability staff to facilitate social inclusion of people with intellectual disability.
Post-parental care planning for rural people with intellectual disabilities. This project addresses the urgent issue of post-parental care plans for people with an intellectual disability and their older parental carers in rural areas. The project aims to co-design a post-parental care planning approach and resources in collaboration with people with an intellectual disability, older parental carers and disability services. The results will be used by the researchers to generate new knowledge on ....Post-parental care planning for rural people with intellectual disabilities. This project addresses the urgent issue of post-parental care plans for people with an intellectual disability and their older parental carers in rural areas. The project aims to co-design a post-parental care planning approach and resources in collaboration with people with an intellectual disability, older parental carers and disability services. The results will be used by the researchers to generate new knowledge on post-parental care transitions and how to construct post-parental care plans within the context of the National Disability Insurance Scheme. The planning approach and resources will assist families and services to avert crisis transitions through improved coordination, preparation and support for post-parental care. Read moreRead less
NDIS: Rhetoric versus Reality? This project aims to explore the realities of living with intellectual disability in Australia, and the impact of individualised funding arising from the introduction of the NDIS. The study will examine, within this era of disability reform, how people with intellectual disability are having their needs met, and the extent to which they are involved in decision-making about their lives. The study will be conducted over three years using a mixed method design. It wi ....NDIS: Rhetoric versus Reality? This project aims to explore the realities of living with intellectual disability in Australia, and the impact of individualised funding arising from the introduction of the NDIS. The study will examine, within this era of disability reform, how people with intellectual disability are having their needs met, and the extent to which they are involved in decision-making about their lives. The study will be conducted over three years using a mixed method design. It will specifically examine the relationship between self-directed individualised funding and its effect on personal well-being, self-esteem and voice, choice and control. People with intellectual disability will act as co-researchers within the study.Read moreRead less
Post-parental housing transitions among adults with intellectual disability. This project aims to address the urgent issue of growing numbers of older people with intellectual disability (ID) outliving their parent carers who have not put future care plans in place. This project expects to generate a national evidence-based framework for ensuring successful post-parental housing and care transitions. By using a three-phase mixed methodology design in three Australian cities, expected outcomes of ....Post-parental housing transitions among adults with intellectual disability. This project aims to address the urgent issue of growing numbers of older people with intellectual disability (ID) outliving their parent carers who have not put future care plans in place. This project expects to generate a national evidence-based framework for ensuring successful post-parental housing and care transitions. By using a three-phase mixed methodology design in three Australian cities, expected outcomes of the project include the development of an Australian-first evidence-based resource kit which should provide significant benefits for older people with ID, their family carers and the disability sector, in terms of planning for post-parental housing and care transitions.Read moreRead less