Disaster risk reduction practices that leave nobody behind. This project aims to answer critical questions about how to assist people with disabilities (PWD) in disasters, what their support needs are and how they might help themselves to better prepare for disasters. Significance includes coupling a person-centred emergency preparedness tool with cross-sectoral processes to collect and use data about the support needs of PWD in emergencies, increase cross-sector communication and collaboration ....Disaster risk reduction practices that leave nobody behind. This project aims to answer critical questions about how to assist people with disabilities (PWD) in disasters, what their support needs are and how they might help themselves to better prepare for disasters. Significance includes coupling a person-centred emergency preparedness tool with cross-sectoral processes to collect and use data about the support needs of PWD in emergencies, increase cross-sector communication and collaboration between emergency managers and community services, and improve equitable access for PWD to community-level disaster risk reduction (DRR). The expected outcome will be the co-design of effective mechanisms that state & federal decision makers can use to scale-up disability-inclusive DRR across Australia.Read moreRead less
NDIS: Rhetoric versus Reality? This project aims to explore the realities of living with intellectual disability in Australia, and the impact of individualised funding arising from the introduction of the NDIS. The study will examine, within this era of disability reform, how people with intellectual disability are having their needs met, and the extent to which they are involved in decision-making about their lives. The study will be conducted over three years using a mixed method design. It wi ....NDIS: Rhetoric versus Reality? This project aims to explore the realities of living with intellectual disability in Australia, and the impact of individualised funding arising from the introduction of the NDIS. The study will examine, within this era of disability reform, how people with intellectual disability are having their needs met, and the extent to which they are involved in decision-making about their lives. The study will be conducted over three years using a mixed method design. It will specifically examine the relationship between self-directed individualised funding and its effect on personal well-being, self-esteem and voice, choice and control. People with intellectual disability will act as co-researchers within the study.Read moreRead less
Boosting organ donation registration in diverse communities. This project aims to increase the number and diversity of people on the Australian Organ Donor Register. Transplant success can increase when organs are matched between people of similar ethnic backgrounds, but diverse communities have historically low registration rates. This project is significant because it focuses on this disparity to co-create with two diverse communities interactive media and community dissemination strategies th ....Boosting organ donation registration in diverse communities. This project aims to increase the number and diversity of people on the Australian Organ Donor Register. Transplant success can increase when organs are matched between people of similar ethnic backgrounds, but diverse communities have historically low registration rates. This project is significant because it focuses on this disparity to co-create with two diverse communities interactive media and community dissemination strategies that respect cultural and religious beliefs while addressing concerns about donation raised in our previous research. Tested with a third diverse community, the outcome will be a model that can be both scaled and tailored to ensure equitable access to transplantation for all, benefiting the lives of many. Read moreRead less
Understanding the implications of pandemic delays for the end of life. The untold toll of Covid-19 is emerging in ‘avoidable deaths’ linked to late(r) diagnosis or treatment due to pandemic-related delay. How delays are experienced and felt across families and communities requires urgent attention. This project aims to understand the implications of pandemic delay for dying and bereavement, including the sociocultural factors that shape experiences of illness and care amid delay. The significanc ....Understanding the implications of pandemic delays for the end of life. The untold toll of Covid-19 is emerging in ‘avoidable deaths’ linked to late(r) diagnosis or treatment due to pandemic-related delay. How delays are experienced and felt across families and communities requires urgent attention. This project aims to understand the implications of pandemic delay for dying and bereavement, including the sociocultural factors that shape experiences of illness and care amid delay. The significance of this project lies in its innovative sociological approach; expected outcomes include the generation of new knowledge on needs at the end of life that move across contexts and settings. Benefits include provision of findings that will inform social and health policy and practice improvements to enable good deaths.Read moreRead less
Integrated Kids Hubs - Ensuring Equity of Access for Children. The Integrated Kids Hubs - Ensuring Equity of Access for Children project aims to determine if integrated Hubs are effective in increasing access to child and family services for disadvantaged urban and regional families with children aged 3 years and under, thus improving early identification of developmental vulnerability, parental wellbeing and capacity, and addressing unmet psychosocial needs. If these issues are not identified a ....Integrated Kids Hubs - Ensuring Equity of Access for Children. The Integrated Kids Hubs - Ensuring Equity of Access for Children project aims to determine if integrated Hubs are effective in increasing access to child and family services for disadvantaged urban and regional families with children aged 3 years and under, thus improving early identification of developmental vulnerability, parental wellbeing and capacity, and addressing unmet psychosocial needs. If these issues are not identified and addressed early, these children will go on to struggle in school and life. We will use a pragmatic trial design (meaning the research is embedded in our usual practice), determine the social return on investment, and establish what is needed to scale up the Hubs across NSW and Australia.Read moreRead less
Fostering lifelong connections for children in permanent care. The out-of-home care sector in Australia is undergoing transformation to ensure children who cannot be restored to birth families exit care to permanent families. New South Wales is leading the way on these reforms. The emerging Australian policy model, permanency with lifelong connection to birth families, is distinctly different from the policy models in similar Western nations. While the Australian policy goal is clear, practices ....Fostering lifelong connections for children in permanent care. The out-of-home care sector in Australia is undergoing transformation to ensure children who cannot be restored to birth families exit care to permanent families. New South Wales is leading the way on these reforms. The emerging Australian policy model, permanency with lifelong connection to birth families, is distinctly different from the policy models in similar Western nations. While the Australian policy goal is clear, practices for achieving this goal are under-developed. This action research project will engage the New South Wales out-of-home care sector to design and trial relationship-building practices that promote positive relationships between children and their birth families.Read moreRead less
Understanding communication about advance care planning across the lifespan. This project aims to understand how people communicate about advance care planning for children, adolescents, and adults. This project expects to generate new knowledge by using leading social scientific and linguistic methods to analyse real-world advance care planning conversations and documents. Expected outcomes include detailed knowledge about challenges people encounter in these conversations and how to manage the ....Understanding communication about advance care planning across the lifespan. This project aims to understand how people communicate about advance care planning for children, adolescents, and adults. This project expects to generate new knowledge by using leading social scientific and linguistic methods to analyse real-world advance care planning conversations and documents. Expected outcomes include detailed knowledge about challenges people encounter in these conversations and how to manage these challenges. Over 170,000 Australians die each year, most from serious illness. This project should provide significant benefits to future initiatives for enhancing communication about advance care planning, especially in relation to young Australians, older Australians, and Australians with disabilities.Read moreRead less
The production, use and effect of social work research. This project aims to reform social work research to improve the quality and effectiveness of human services. The human services industry is vital to many people’s quality of life, but lacks innovation and struggles to demonstrate its effectiveness. Crucially for social work, research expands thinking about how to respond to social disadvantage. This project intends to examine the scope and quality of Australian social work research in child ....The production, use and effect of social work research. This project aims to reform social work research to improve the quality and effectiveness of human services. The human services industry is vital to many people’s quality of life, but lacks innovation and struggles to demonstrate its effectiveness. Crucially for social work, research expands thinking about how to respond to social disadvantage. This project intends to examine the scope and quality of Australian social work research in child protection, disability services, and aged care; assess the use of this research to the human services sector and its effect on generating innovation; and develop strategies to advance the production, uptake, and effect of social work research.Read moreRead less
Engaging the forgotten public health workforce. This Fellowship project aims to provide the first in-depth, coordinated, critical public health examination and application of consumer behaviour-informed methodology to examine health promotion and complementary medicine. The project aims to build on novel analyses and critical engagement with community members, health professionals and policymakers to advance public health scholarship of health information-seeking and chronic illness prevention. ....Engaging the forgotten public health workforce. This Fellowship project aims to provide the first in-depth, coordinated, critical public health examination and application of consumer behaviour-informed methodology to examine health promotion and complementary medicine. The project aims to build on novel analyses and critical engagement with community members, health professionals and policymakers to advance public health scholarship of health information-seeking and chronic illness prevention. It seeks to identify challenges and opportunities to improve Australian health promotion initiatives; provide an evidence-base to inform coordinated implementation of the National Preventive Health Strategy; and optimise the primary care workforce to benefit health promotion for Australians.Read moreRead less
3D Printed Food for People with Swallowing Disability. This project aims to identify ways that 3D food printing (additive manufacturing using real food in a device like a ink-jet printer) could be used to improve the visual appeal of puree meals for people with swallowing difficulty, who make up ~8% of the world's population. This study will be the first to include people with swallowing disability (e.g., related to cerebral palsy, stroke, older age) and their supporters in examining the views a ....3D Printed Food for People with Swallowing Disability. This project aims to identify ways that 3D food printing (additive manufacturing using real food in a device like a ink-jet printer) could be used to improve the visual appeal of puree meals for people with swallowing difficulty, who make up ~8% of the world's population. This study will be the first to include people with swallowing disability (e.g., related to cerebral palsy, stroke, older age) and their supporters in examining the views and experiences of stakeholders on the impact of 3D food printing on quality of life, enjoyment, participation, and safety. Outcomes include new knowledge on factors affecting the implementation of 3D food printing in disability and aged care services, to inform policy, practice, and future research.Read moreRead less