Psychosocial and economic impacts of rare diseases on Australian children, families and health professionals. Rare childhood diseases have enormous impacts on children and families; health services, and health professionals. This project will enable Australia to lead the international research effort by using a coordinated approach to study the impacts of rare diseases in order to improve psychosocial, health and economic outcomes for children and families.
The Kids in Communities Study: national investigation of community level effects on children's developmental outcomes. This project (a cross-disciplinary collaboration) will investigate community level factors influencing early childhood developmental outcomes using a mixed methods approach in up to 10 communities across Australia. This will result in a potential set of measures or indicators that reflect communities that are good for children.
Discovery Early Career Researcher Award - Grant ID: DE120101640
Funder
Australian Research Council
Funding Amount
$375,000.00
Summary
The caregiver bereavement study: determining the effect of caregivers' anticipatory grief on post-bereavement outcome. The study discovers the 'true' impact of caregiving and is situated at the forefront of theoretical and methodological innovation. Furthermore, it will enhance the nation's capacity to provide appropriate services to caregivers pre- and post-bereavement which will promote the wellbeing of the large number of caregivers in our communities.
Dignity Therapy: A Novel Psychotherapeutic Intervention for Motor Neurone Disease (MND) Patients near the End of Life. Considering the scarcity of effective interventions for the kinds of distress and suffering that so commonly occur amongst MND dying patients, this novel therapeutic intervention could become a very easy, practical intervention adopted within palliative care facilities and MND organisations. Unlike most palliative care interventions, this approach, leading to the production of a ....Dignity Therapy: A Novel Psychotherapeutic Intervention for Motor Neurone Disease (MND) Patients near the End of Life. Considering the scarcity of effective interventions for the kinds of distress and suffering that so commonly occur amongst MND dying patients, this novel therapeutic intervention could become a very easy, practical intervention adopted within palliative care facilities and MND organisations. Unlike most palliative care interventions, this approach, leading to the production of a generativity document, has the important added potential benefit of being a powerful bereavement intervention for carers. The potential benefits of this intervention could lead to a reduction in in-patient admissions and a reduced need for respite for both the person with MND and the family carer.Read moreRead less
The neglected dimension of community liveability: Impact on social connectedness and active ageing. Quality of life and well being are essential to maintaining a healthy and socially-engaged population. This project takes an innovative trans-disciplinary approach in addressing the national research priority of Promoting and Maintaining Good Health and the associated goal, Ageing well, ageing productively through research that identifies the attributes of communities that foster or inhibit social ....The neglected dimension of community liveability: Impact on social connectedness and active ageing. Quality of life and well being are essential to maintaining a healthy and socially-engaged population. This project takes an innovative trans-disciplinary approach in addressing the national research priority of Promoting and Maintaining Good Health and the associated goal, Ageing well, ageing productively through research that identifies the attributes of communities that foster or inhibit social engagement. The outcomes of the project will inform policy makers, planners and service deliver organisations about ways to identify, improve or maintain safe housing, transport and community environments for the benefit of all Australians.Read moreRead less
Pathways to better practice: developing human resources in child protection services for Indigenous communities in Western Australia and Queensland. This study addresses the serious and escalating problem of providing child protection services to Indigenous children and their families in rural and remote areas. Service delivery to rural and remote environments in Australia is a high cost exercise and, to date, little research has been conducted to understanding the complex nature of professiona ....Pathways to better practice: developing human resources in child protection services for Indigenous communities in Western Australia and Queensland. This study addresses the serious and escalating problem of providing child protection services to Indigenous children and their families in rural and remote areas. Service delivery to rural and remote environments in Australia is a high cost exercise and, to date, little research has been conducted to understanding the complex nature of professional (non-medical) interventions in communities with high proportions of Indigenous families and children. The study, conducted across two states, will contribute to national benefit in 3 key areas: the health and wellbeing of Indigenous children; skills shortage in rural areas and intergenerational change in professional disciplines.Read moreRead less
Creating and sustaining a strong future for volunteering in Australia. This project seeks to answer the question of how to increase social participation by converting non-volunteers to the benefits of volunteering. In Australia today, communities and governments are increasingly dependent on volunteers to build social capital and deliver an increasing range of services. A world first, this project aims to create new theory by examining three levels of analysis: the micro level of the individual ....Creating and sustaining a strong future for volunteering in Australia. This project seeks to answer the question of how to increase social participation by converting non-volunteers to the benefits of volunteering. In Australia today, communities and governments are increasingly dependent on volunteers to build social capital and deliver an increasing range of services. A world first, this project aims to create new theory by examining three levels of analysis: the micro level of the individual volunteer or non-volunteer; the mezzo level of the volunteer-involving organisation; and the macro level of society. This innovative approach aims to identify, analyse and develop a tool to help organisations build Australia’s civil society and develop policy to create a sustainable volunteer sector into the future.Read moreRead less
The big gamble: an interdisciplinary study of the normalisation of gambling. This project aims to explore industry and socio-cultural factors that contribute to the normalisation of gambling. Gambling is recognised as an urgent public health issue in Australia, posing a health threat to individuals and communities. However, there is limited empirical evidence about the processes that may contribute to the normalisation of different forms of gambling. This project aims to explore the interplay be ....The big gamble: an interdisciplinary study of the normalisation of gambling. This project aims to explore industry and socio-cultural factors that contribute to the normalisation of gambling. Gambling is recognised as an urgent public health issue in Australia, posing a health threat to individuals and communities. However, there is limited empirical evidence about the processes that may contribute to the normalisation of different forms of gambling. This project aims to explore the interplay between the sophisticated promotional tactics used by the gambling industry, and the socio-cultural mechanisms which may interact with these promotional tactics to normalise gambling beliefs in youth, women, and older adults. This project expects to help local governments and related stakeholders develop a comprehensive range of public health strategies aimed at preventing the risks and harms posed by the normalisation of gambling.Read moreRead less
Driving health care efficiencies and patient care outcomes by improving communication in acute to primary transitions of care. Communication problems are a major contributor to poor outcomes for patients transferring from acute to primary care, accounting for 41 per cent of preventable hospital readmissions. This project aims to identify risk factors for readmission and barriers to successful transitions of care for high-risk patient groups (including the elderly, paediatric and mental health pa ....Driving health care efficiencies and patient care outcomes by improving communication in acute to primary transitions of care. Communication problems are a major contributor to poor outcomes for patients transferring from acute to primary care, accounting for 41 per cent of preventable hospital readmissions. This project aims to identify risk factors for readmission and barriers to successful transitions of care for high-risk patient groups (including the elderly, paediatric and mental health patients), it will then apply these findings to provide effective, measurable and cost-efficient protocols to improve discharge transition outcomes for patients, carers and health service providers. Research outcomes will have general relevance to Australian healthcare settings and include the development of ‘The Safe Transition Communications Tool.’Read moreRead less
Pathways, policies and prevention: better outcomes for western Australian children. This project will provide new knowledge to inform and enable future policy and prevention strategies for improving child health and wellbeing. The collaboration between researchers and policy makers across 11 government departments will deliver a new evidence base for understanding child, family and community level factors that increase or reduce vulnerability to poor outcomes through the utilisation of cross-sec ....Pathways, policies and prevention: better outcomes for western Australian children. This project will provide new knowledge to inform and enable future policy and prevention strategies for improving child health and wellbeing. The collaboration between researchers and policy makers across 11 government departments will deliver a new evidence base for understanding child, family and community level factors that increase or reduce vulnerability to poor outcomes through the utilisation of cross-sectoral population data. This collaboration will inform whole of government intervention and prevention strategies to improve outcomes, as well as evaluate and monitor existing initiatives. This project will provide a model for population-based research and policy development both nationally and internationally.Read moreRead less