Telling the truth to seriously ill children. This project aims to investigate how doctors and parents give information to young children who have serious medical conditions. Ethical and clinical guidelines agree that even young children should be given open, accurate and honest information in a developmentally appropriate way. However, doctors find this a challenging and uncertain area, and children do not receive open communication. This project aims to understand factors influencing the doctor ....Telling the truth to seriously ill children. This project aims to investigate how doctors and parents give information to young children who have serious medical conditions. Ethical and clinical guidelines agree that even young children should be given open, accurate and honest information in a developmentally appropriate way. However, doctors find this a challenging and uncertain area, and children do not receive open communication. This project aims to understand factors influencing the doctors and parents‘ real-life decisions of what and when to tell a child; undertake a practical ethical analysis; and produce practical guidelines and educational resources for parents and doctors. This project intends to improve the experience for young children being treated for serious medical conditions and their families.Read moreRead less
Ethical frameworks for responsible innovation of neurotechnology. This project aims to ensure the ethical and efficient innovation of emerging neurotechnologies, including implantable brain devices, synthetic drugs and direct-to-consumer brain devices. This project expects to generate Australian’s first responsible innovation framework through extensive community engagement. Expected outcomes of this project include: guidelines for the development of neurotechnologies; a national framework for r ....Ethical frameworks for responsible innovation of neurotechnology. This project aims to ensure the ethical and efficient innovation of emerging neurotechnologies, including implantable brain devices, synthetic drugs and direct-to-consumer brain devices. This project expects to generate Australian’s first responsible innovation framework through extensive community engagement. Expected outcomes of this project include: guidelines for the development of neurotechnologies; a national framework for responsible innovation; partnerships with international brain initiatives; and enhanced interdisciplinary capacity. The proposed research should provide significant benefits: innovation of technologies that meet Australians' needs, reduced misuse and harm, and greater social support for innovation in neuroscience.Read moreRead less
Implicit persuasion in pharmaceutical marketing: ethical implications for regulators and consumers. The rapid ageing of Australia's population has seen increasing consumption of pharmaceuticals and high rates of hospitalisation to treat adverse effects. Pharmaceutical advertising promotes medication use, yet increasing evidence suggests commercials can alter attitudes outside of awareness. Determining the extent and ethical acceptability of subconscious persuasion in drug marketing will lead to ....Implicit persuasion in pharmaceutical marketing: ethical implications for regulators and consumers. The rapid ageing of Australia's population has seen increasing consumption of pharmaceuticals and high rates of hospitalisation to treat adverse effects. Pharmaceutical advertising promotes medication use, yet increasing evidence suggests commercials can alter attitudes outside of awareness. Determining the extent and ethical acceptability of subconscious persuasion in drug marketing will lead to more appropriate regulation of advertising content and enhance the autonomy of consumer medication choice. The study outcomes will address Australia's priority research goals Ageing Well, Ageing Productively and Preventative Healthcare, and further this country's international reputation in Applied Ethics.Read moreRead less
A new understanding of responsibility in the ethics of human reproduction. New developments in reproductive medicine and prenatal testing technologies are transforming pregnancy and generating difficult moral and policy questions for parents and the Australian community. This project will provide a new framework for reproductive responsibility that helps to ensure a healthy start to life for all Australians.
Can and should we link data at a national level? Vaccine safety surveillance: A case study. This project provides many benefits for the community, exploring the legal and ethical issues around consent for data linkage, convening Citizens' Juries to weigh the evidence and make recommendations. It addresses National Research Priorities: Promoting and Maintaining Good Health and Safeguarding Australia as well as National Collaborative Research Infrastructure Strategy priorities. It uses vaccine sa ....Can and should we link data at a national level? Vaccine safety surveillance: A case study. This project provides many benefits for the community, exploring the legal and ethical issues around consent for data linkage, convening Citizens' Juries to weigh the evidence and make recommendations. It addresses National Research Priorities: Promoting and Maintaining Good Health and Safeguarding Australia as well as National Collaborative Research Infrastructure Strategy priorities. It uses vaccine safety surveillance as a case study to evaluate the effectiveness of data linkage (through linking Commonwealth immunisation data to state hospital data) and the methodologies and lessons learnt from cross jurisdictional data linkage can be transferred to other areas. Read moreRead less