The transition of care from ageing parents: achieving flexible relationships between adults with cerebral palsy, their siblings and service providers. The Australian community faces a significant challenge in providing life-long care for people with severe disability. We will develop a model that will assist families and service providers to make a smooth, effective transition of care and/or responsibility of adults with cerebral palsy from parents to siblings. Achieving this will increase the ....The transition of care from ageing parents: achieving flexible relationships between adults with cerebral palsy, their siblings and service providers. The Australian community faces a significant challenge in providing life-long care for people with severe disability. We will develop a model that will assist families and service providers to make a smooth, effective transition of care and/or responsibility of adults with cerebral palsy from parents to siblings. Achieving this will increase the quality of life for disabled and nondisabled family members, and ensure a more efficient use of public funding. Our findings will serve as a model for managing the life-long care of people with cerebral palsy and other severe, chronic disabilities, throughout Australia and overseas.Read moreRead less
Maintaining family-based placement for children and young people with disabilities. Aim: To enable families to continue caring at home for children with severe disabilities.
Significance: These families face significant challenges in juggling the demands of work, family and care to the extent that one in four decide to relinquish the care of their child. This leaves more than 37,000 children in Australia at risk of not growing up in their family home.
Expected outcomes: A psychometrically sou ....Maintaining family-based placement for children and young people with disabilities. Aim: To enable families to continue caring at home for children with severe disabilities.
Significance: These families face significant challenges in juggling the demands of work, family and care to the extent that one in four decide to relinquish the care of their child. This leaves more than 37,000 children in Australia at risk of not growing up in their family home.
Expected outcomes: A psychometrically sound instrument that will identify families struggling to care for their children at home, and a family and practitioner guide of innovative solutions to maintaining family-based placements.
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Caring for carers: An enrichment orientation. The key aim of this research is to enhance the sustainability of providing care to another individual in a rural location, in the domains of aged care, disability and mental health. The rationale for this research is that although substantial financial resources are allocated to support services for carers, there exists no evidence that such resource allocation is optimally efficient and effective. We will develop a systematic analytical tool to accu ....Caring for carers: An enrichment orientation. The key aim of this research is to enhance the sustainability of providing care to another individual in a rural location, in the domains of aged care, disability and mental health. The rationale for this research is that although substantial financial resources are allocated to support services for carers, there exists no evidence that such resource allocation is optimally efficient and effective. We will develop a systematic analytical tool to accurately determine the physical, social and psychological needs of carers. The outcome of this project will be an improvement in the health and well-being of carers.Read moreRead less