A Randomised Clinical Trial To Test A Pain Education Program For Patients With Cancer And Their Family Carers
Funder
National Health and Medical Research Council
Funding Amount
$150,000.00
Summary
This study seeks to improve cancer patients' and family carers' knowledge and attitudes toward pain management. A pain education program will be offered to patients with recurrent or progressive cancer and their primary family carers. The study addresses a palliative care concern that impacts upon a large number of Australians each year. The study has the potential to provide a brief, standardised protocol that could be taught and integrated into usual practice and to reduce health care costs fo ....This study seeks to improve cancer patients' and family carers' knowledge and attitudes toward pain management. A pain education program will be offered to patients with recurrent or progressive cancer and their primary family carers. The study addresses a palliative care concern that impacts upon a large number of Australians each year. The study has the potential to provide a brief, standardised protocol that could be taught and integrated into usual practice and to reduce health care costs for advanced cancer patients.Read moreRead less
Accommodating the Needs of People with Lifelong Intellectual Disability in Residential Aged Care. Unique challenges face the residential aged care system because of the increased life expectancy of people with life-long intellectual disability and the likelihood of their premature ageing. Although this group is recognised by Federal and State governments as requiring specific and special service arrangements, little is known about adapting disability and aged care services to their needs, thus p ....Accommodating the Needs of People with Lifelong Intellectual Disability in Residential Aged Care. Unique challenges face the residential aged care system because of the increased life expectancy of people with life-long intellectual disability and the likelihood of their premature ageing. Although this group is recognised by Federal and State governments as requiring specific and special service arrangements, little is known about adapting disability and aged care services to their needs, thus program development is in its early stages. This research will inform the development of policy and programs in the Aged Care, Disability and Health sectors with the aim of improving the quality of life for people with intellectual disability as they age.Read moreRead less
The individual, the family and the state: expectations, intergenerational obligations and constraints in providing for old age. Intergenerational equity is a principle underpinning policy debates around financing retirement and care in older age. Enhanced understanding of this cohort's expectations and obligations will assist in policy development around financing retirement and paying for care that takes account of this cohort's expectations and obligations. Further, exploring the expectations ....The individual, the family and the state: expectations, intergenerational obligations and constraints in providing for old age. Intergenerational equity is a principle underpinning policy debates around financing retirement and care in older age. Enhanced understanding of this cohort's expectations and obligations will assist in policy development around financing retirement and paying for care that takes account of this cohort's expectations and obligations. Further, exploring the expectations underpinning intergenerational exchanges from this cohort's perspective will assist in understanding the dynamics around these exchanges and lay the ground work for future research into factors that facilitate cross-generation family functioning.Read moreRead less
The 1-in-4 Poll: Inclusion of people with a disability and carers in social and political deliberative processes. This proposed project will benefit Australia by developing a method that includes ongoing quarterly topical surveys through which people with a disability and their carers, approximately one in four Australians, can effectively participate in social and political processes. It will also test the efficacy of 'influencing activities' that derive from those surveys. Additionally, the pr ....The 1-in-4 Poll: Inclusion of people with a disability and carers in social and political deliberative processes. This proposed project will benefit Australia by developing a method that includes ongoing quarterly topical surveys through which people with a disability and their carers, approximately one in four Australians, can effectively participate in social and political processes. It will also test the efficacy of 'influencing activities' that derive from those surveys. Additionally, the project will establish a data set that will provide regular and reliable information from and about people with a disability in Australia. This is a unique and much needed contribution to social justice within Australia. Read moreRead less
Development of an intervention to enhance rural and regional service delivery to human service clients. A proactive program managing organisational stress and isolation in rural community service organisations is urgently needed to reduce unplanned absences and costly staff turnover among professionals working in a difficult environment. The intervention program focuses on extremely high risk regional workers - professional staff having daily contact with potentially difficult clients (e.g., per ....Development of an intervention to enhance rural and regional service delivery to human service clients. A proactive program managing organisational stress and isolation in rural community service organisations is urgently needed to reduce unplanned absences and costly staff turnover among professionals working in a difficult environment. The intervention program focuses on extremely high risk regional workers - professional staff having daily contact with potentially difficult clients (e.g., persons suffering from neglect, abuse, drugs). Strategies at both organisational and individual levels will be aimed at preventing rather than merely reducing stress. An educational package will be developed, subjected to two cycles of process and outcome evaluation, and prepared for use in this and other regional/rural organisations.Read moreRead less
Caring for carers: An enrichment orientation. The key aim of this research is to enhance the sustainability of providing care to another individual in a rural location, in the domains of aged care, disability and mental health. The rationale for this research is that although substantial financial resources are allocated to support services for carers, there exists no evidence that such resource allocation is optimally efficient and effective. We will develop a systematic analytical tool to accu ....Caring for carers: An enrichment orientation. The key aim of this research is to enhance the sustainability of providing care to another individual in a rural location, in the domains of aged care, disability and mental health. The rationale for this research is that although substantial financial resources are allocated to support services for carers, there exists no evidence that such resource allocation is optimally efficient and effective. We will develop a systematic analytical tool to accurately determine the physical, social and psychological needs of carers. The outcome of this project will be an improvement in the health and well-being of carers.Read moreRead less
Managing Older People's Financial Assets in Aged Care Facilities: The Intersection of Legal and Care Requirements and Financial Management Practices. This project will provide important new knowledge and propose changes to policy, practice and legislation that will promote older people's independence and choice in how their financial affairs are managed. The physical and cognitive frailty of aged care facility residents is increasing and their capacity to manage their assets and income is often ....Managing Older People's Financial Assets in Aged Care Facilities: The Intersection of Legal and Care Requirements and Financial Management Practices. This project will provide important new knowledge and propose changes to policy, practice and legislation that will promote older people's independence and choice in how their financial affairs are managed. The physical and cognitive frailty of aged care facility residents is increasing and their capacity to manage their assets and income is often limited. This study will address financial elder abuse and problems with how decisions are made on behalf of older people. Improving the legislative, policy and practice frameworks that govern the risks, rights and responsibilities of care staff and family members will assist them to appropriately support and protect older people in residential care.Read moreRead less
Strengthening Relationships for Young People in Residential Care. Young people in residential care face major challenges in forming positive relationships, many having experienced adults as a source of threat rather than safety. This project aims to investigate practices within therapeutic residential care that enable or limit young people’s identity formation, positive social connections, safety and wellbeing. This research will generate nuanced knowledge informing interpersonal and institution ....Strengthening Relationships for Young People in Residential Care. Young people in residential care face major challenges in forming positive relationships, many having experienced adults as a source of threat rather than safety. This project aims to investigate practices within therapeutic residential care that enable or limit young people’s identity formation, positive social connections, safety and wellbeing. This research will generate nuanced knowledge informing interpersonal and institutional change. Expected outcomes include improved approaches to therapeutic care and to methods for enabling the participation of young people in care in matters that may change their life trajectory on exiting care. Expected benefits include more responsive policies and frameworks for practice.Read moreRead less
When caring ends: Understanding and supporting informal care trajectories. This project aims to advance understandings of how, why, when, and for whom caring ends, including the socio-cultural and relational factors that shape experiences before, during, and after caring. Using an innovative, multi-method sociological approach, and foregrounding carers’ voices, this project expects to generate new knowledge on the meaning and experience of care and caring. This project is significant in bringing ....When caring ends: Understanding and supporting informal care trajectories. This project aims to advance understandings of how, why, when, and for whom caring ends, including the socio-cultural and relational factors that shape experiences before, during, and after caring. Using an innovative, multi-method sociological approach, and foregrounding carers’ voices, this project expects to generate new knowledge on the meaning and experience of care and caring. This project is significant in bringing together leading researchers and key carer-focused organisations, spanning service sectors and moving across care relationships, life stages and contexts. Expected outcomes include enhanced service capacity with tangible policy and practice benefits that will enable sustainable and fulfilling informal caring experiences.Read moreRead less
Grandparent childcare: negotiating work and care across generations. This project aims to investigate how and why parents and grandparents share childcare responsibilities in contemporary Australia. Using mixed methods and an innovative conceptual approach with a central focus on parent-grandparent care dyads, it expects to generate critical new knowledge of intra-family negotiations about employment and childcare provision across generations, and their relationship with social and economic poli ....Grandparent childcare: negotiating work and care across generations. This project aims to investigate how and why parents and grandparents share childcare responsibilities in contemporary Australia. Using mixed methods and an innovative conceptual approach with a central focus on parent-grandparent care dyads, it expects to generate critical new knowledge of intra-family negotiations about employment and childcare provision across generations, and their relationship with social and economic policy. The project expects to identify sustainable employment-childcare practices that meet the needs of children, parents and grandparents. Significant benefits include informing new policies aimed to enhance both gender and generational equity, promote women’s workforce participation, and boost national productivity.Read moreRead less