Young People with Disability & Young Carers: Opportunities & Contributions. This project aims to examine opportunities that young people with disability and young carers (aged 12-24) value and access, and contributions they make to families, communities and society. Using novel conceptual framing, qualitative research and large-scale survey data, the project expects to provide new knowledge on how policy can support access to valued opportunities and contributions for young people with disabilit ....Young People with Disability & Young Carers: Opportunities & Contributions. This project aims to examine opportunities that young people with disability and young carers (aged 12-24) value and access, and contributions they make to families, communities and society. Using novel conceptual framing, qualitative research and large-scale survey data, the project expects to provide new knowledge on how policy can support access to valued opportunities and contributions for young people with disability and young carers to support them to reach their full potential. Young people are centrally involved as co-researchers and the project is guided by a Policy Advisory Group. Benefits include evidence for a strengths-based policy approach to disability and care, longer-term economic gains and improved social cohesion.Read moreRead less
Early Career Industry Fellowships - Grant ID: IE230100675
Funder
Australian Research Council
Funding Amount
$443,486.00
Summary
Improving carer’s quality of life and quality of care. This project will improve the ability of Carers Australia and the Department of Social Services to evaluate and enhance the success of services they implement to support Australia’s 2.7 million unpaid carers. Currently little is known about which support and services most help improve quality of life for carers, and the quality of care they provide, despite strong evidence of a quality of life crisis amongst carers. By collecting cross secti ....Improving carer’s quality of life and quality of care. This project will improve the ability of Carers Australia and the Department of Social Services to evaluate and enhance the success of services they implement to support Australia’s 2.7 million unpaid carers. Currently little is known about which support and services most help improve quality of life for carers, and the quality of care they provide, despite strong evidence of a quality of life crisis amongst carers. By collecting cross sectional and longitudinal data to build on an existing data set, this project will enable evidence-based design and delivery of services that support carers socially, emotionally and financially while enabling them to provide high quality care.Read moreRead less
When caring ends: Understanding and supporting informal care trajectories. This project aims to advance understandings of how, why, when, and for whom caring ends, including the socio-cultural and relational factors that shape experiences before, during, and after caring. Using an innovative, multi-method sociological approach, and foregrounding carers’ voices, this project expects to generate new knowledge on the meaning and experience of care and caring. This project is significant in bringing ....When caring ends: Understanding and supporting informal care trajectories. This project aims to advance understandings of how, why, when, and for whom caring ends, including the socio-cultural and relational factors that shape experiences before, during, and after caring. Using an innovative, multi-method sociological approach, and foregrounding carers’ voices, this project expects to generate new knowledge on the meaning and experience of care and caring. This project is significant in bringing together leading researchers and key carer-focused organisations, spanning service sectors and moving across care relationships, life stages and contexts. Expected outcomes include enhanced service capacity with tangible policy and practice benefits that will enable sustainable and fulfilling informal caring experiences.Read moreRead less
Classifying support needs of people with disabilities. The aim of this research is to develop a valid and reliable assessment and classification system of the support needs of people with diverse disabilities. Current methods are found wanting due to neglect of the complex interactions between health condition, activity and context and inability to account for type and intensities of supports needed. The development of a robust system which can be used to assess and classify the support needs of ....Classifying support needs of people with disabilities. The aim of this research is to develop a valid and reliable assessment and classification system of the support needs of people with diverse disabilities. Current methods are found wanting due to neglect of the complex interactions between health condition, activity and context and inability to account for type and intensities of supports needed. The development of a robust system which can be used to assess and classify the support needs of people with a wide range of disabilities and across settings will enable human service agencies to be responsive and tailor their services to individual needs.Read moreRead less
Caring for carers: An enrichment orientation. The key aim of this research is to enhance the sustainability of providing care to another individual in a rural location, in the domains of aged care, disability and mental health. The rationale for this research is that although substantial financial resources are allocated to support services for carers, there exists no evidence that such resource allocation is optimally efficient and effective. We will develop a systematic analytical tool to accu ....Caring for carers: An enrichment orientation. The key aim of this research is to enhance the sustainability of providing care to another individual in a rural location, in the domains of aged care, disability and mental health. The rationale for this research is that although substantial financial resources are allocated to support services for carers, there exists no evidence that such resource allocation is optimally efficient and effective. We will develop a systematic analytical tool to accurately determine the physical, social and psychological needs of carers. The outcome of this project will be an improvement in the health and well-being of carers.Read moreRead less
Full Time Workers Caring for Children with Chronic Illness: A National Study. With advances in medical technology more Australian children with chronic illness are surviving. The support needs of full time workers who care for these children are under acknowledged. This three-phased study will identify these support needs from the workers' perspective. In-depth interviews and population survey will provide data. Synthesised data will provide recommendations that health workers, employers and ....Full Time Workers Caring for Children with Chronic Illness: A National Study. With advances in medical technology more Australian children with chronic illness are surviving. The support needs of full time workers who care for these children are under acknowledged. This three-phased study will identify these support needs from the workers' perspective. In-depth interviews and population survey will provide data. Synthesised data will provide recommendations that health workers, employers and support services can use to develop home, community, employment and information support for these workers. Policy makers and the community can use the findings to address this complex problem of the support needs of full time workers caring for chronically ill children.Read moreRead less
The Development Of Guidelines And An Intervention For Carers Of People With Bipolar Disorder
Funder
National Health and Medical Research Council
Funding Amount
$104,018.00
Summary
This project aims to use a consensus method involving expert carers, consumers and professionals to develop easily accessible information specifically to assist family members in understanding and coping with a loved one's bipolar disorder. It will include things they can do to help reduce bipolar relapse and enhance their own quality of life. This information will be expanded to develop a brief supportive intervention aimed at bolstering the coping skills and wellbeing of family members.