Accommodating the Needs of People with Lifelong Intellectual Disability in Residential Aged Care. Unique challenges face the residential aged care system because of the increased life expectancy of people with life-long intellectual disability and the likelihood of their premature ageing. Although this group is recognised by Federal and State governments as requiring specific and special service arrangements, little is known about adapting disability and aged care services to their needs, thus p ....Accommodating the Needs of People with Lifelong Intellectual Disability in Residential Aged Care. Unique challenges face the residential aged care system because of the increased life expectancy of people with life-long intellectual disability and the likelihood of their premature ageing. Although this group is recognised by Federal and State governments as requiring specific and special service arrangements, little is known about adapting disability and aged care services to their needs, thus program development is in its early stages. This research will inform the development of policy and programs in the Aged Care, Disability and Health sectors with the aim of improving the quality of life for people with intellectual disability as they age.Read moreRead less
The 1-in-4 Poll: Inclusion of people with a disability and carers in social and political deliberative processes. This proposed project will benefit Australia by developing a method that includes ongoing quarterly topical surveys through which people with a disability and their carers, approximately one in four Australians, can effectively participate in social and political processes. It will also test the efficacy of 'influencing activities' that derive from those surveys. Additionally, the pr ....The 1-in-4 Poll: Inclusion of people with a disability and carers in social and political deliberative processes. This proposed project will benefit Australia by developing a method that includes ongoing quarterly topical surveys through which people with a disability and their carers, approximately one in four Australians, can effectively participate in social and political processes. It will also test the efficacy of 'influencing activities' that derive from those surveys. Additionally, the project will establish a data set that will provide regular and reliable information from and about people with a disability in Australia. This is a unique and much needed contribution to social justice within Australia. Read moreRead less
Realising an 'ordinary life' for people with intellectual disabilities: Developing a theoretical framework for group home outcomes. Explaining why group homes produce variable outcomes for people with intellectual disabilities will make it more likely they live healthy, productive and fulfilling lives. Such outcomes are central to policies of inclusion and fundamental to human rights. The Australian community will be enriched by the inclusion of all people with disabilities and become a more jus ....Realising an 'ordinary life' for people with intellectual disabilities: Developing a theoretical framework for group home outcomes. Explaining why group homes produce variable outcomes for people with intellectual disabilities will make it more likely they live healthy, productive and fulfilling lives. Such outcomes are central to policies of inclusion and fundamental to human rights. The Australian community will be enriched by the inclusion of all people with disabilities and become a more just society. The research will support the translation of social policy into practice and adoption of good management practices. It will enable more effective use of the $2 billion spent on disability accommodation, and will bolster the arguments for community rather than institutional living, demonstrating investment in community services is a sound use of public moneyRead moreRead less
Comparison of interventions for families from rural communities who have a child with an intellectual disability and problem behaviour. The project comprises two studies. The first aims at evaluating the relative effectiveness of two modes of supporting families from rural areas who have a child with an intellectual disability and problem behaviour. Both modes involve providing the families with written and videotape materials containing advice about how to manage the problem behaviour, but one ....Comparison of interventions for families from rural communities who have a child with an intellectual disability and problem behaviour. The project comprises two studies. The first aims at evaluating the relative effectiveness of two modes of supporting families from rural areas who have a child with an intellectual disability and problem behaviour. Both modes involve providing the families with written and videotape materials containing advice about how to manage the problem behaviour, but one mode also includes the addition of regular telephone calls. The second study focuses on examining the child, parent, practitioner, and contextual variables associated with families being able to benefit from support through the use of the written and videotape materials.Read moreRead less
Developing an Integrative Active Ageing Model for Policy Makers and Service Providers to Support Older People with Lifelong Intellectual Disability. 'Active ageing' is increasingly gaining international currency and it underpins Australia's national focus on healthy ageing. However, its meaning for older people with intellectual disability, who represent about 0.13% of Australia's older population, is unclear, as little is known about the impact of ageing upon this group. This exciting resear ....Developing an Integrative Active Ageing Model for Policy Makers and Service Providers to Support Older People with Lifelong Intellectual Disability. 'Active ageing' is increasingly gaining international currency and it underpins Australia's national focus on healthy ageing. However, its meaning for older people with intellectual disability, who represent about 0.13% of Australia's older population, is unclear, as little is known about the impact of ageing upon this group. This exciting research project aims to address these knowledge gaps through a series of case studies comprising key stakeholder groups in rural and urban Victoria and Queensland. An Integrative Model of Active Ageing for policy makers and service providers will be developed to facilitate the planning and appropriate distribution of resources for this population. Read moreRead less
Intellectual disability, victimisation, challenging behaviour and offending. The expected national benefits that will arise from this research will include significant advances to policy and practice in the field, which will impact on service users and service providers at both individual and community levels. At the same time, this unique collaboration will foster research excellence, further develop interagency collaborations and thus advance Australia's research and clinical leadership in the ....Intellectual disability, victimisation, challenging behaviour and offending. The expected national benefits that will arise from this research will include significant advances to policy and practice in the field, which will impact on service users and service providers at both individual and community levels. At the same time, this unique collaboration will foster research excellence, further develop interagency collaborations and thus advance Australia's research and clinical leadership in the field of intellectual disability and community safety. Taken altogether, this research has a strong potential to lead to further collaborations focussing on research priorities of national and international significance. Read moreRead less
Vision impairment and quality of life: The development of a new education and self-management program. Vision impairment affects participation in daily living and quality of life. To encourage health aging and meet the needs of an increasing number of older people requiring vision-related services, a self-management program is proposed. It aims to educate participants about low vision, self-management strategies (problem-solving skills, ways of coping emotionally), and self-care. The program ....Vision impairment and quality of life: The development of a new education and self-management program. Vision impairment affects participation in daily living and quality of life. To encourage health aging and meet the needs of an increasing number of older people requiring vision-related services, a self-management program is proposed. It aims to educate participants about low vision, self-management strategies (problem-solving skills, ways of coping emotionally), and self-care. The program is a bio-psychosocial approach designed to empower individuals to manage low vision effectively, increase self-efficacy, maintain good health and improve life quality. The results will be used to develop an improved model of care for people with impaired vision.Read moreRead less
Withholding and withdrawing life-sustaining treatment from adults lacking capacity: Enhancing medical decision-making through doctors' compliance with the law. This project will enhance medical decision-making about the provision of life-sustaining treatment to adults without decision-making capacity through improved compliance with the law. This will advance patients' autonomy and dignity, protect vulnerable adults whose lives may be wrongly ended because of inappropriate treatment decisions a ....Withholding and withdrawing life-sustaining treatment from adults lacking capacity: Enhancing medical decision-making through doctors' compliance with the law. This project will enhance medical decision-making about the provision of life-sustaining treatment to adults without decision-making capacity through improved compliance with the law. This will advance patients' autonomy and dignity, protect vulnerable adults whose lives may be wrongly ended because of inappropriate treatment decisions and avoid litigation for doctors and hospitals. The project also aims to improve the quality of the law by resolving legal ambiguity and proposing reforms. This will further enhance the quality of decision-making, and will reduce defensive medicine and the cost of complying with the law, leading to savings in health expenditure.Read moreRead less
Transition to retirement by adults with chronic disabilities: increasing community capacity. This project will contribute to healthy, productive ageing by people with chronic disabilities. This group are living longer and will retire from their disability-specific supported employment and day program services. They then risk social exclusion, loneliness and associated poor health outcomes. This project will provide training and support to local community groups and voluntary work settings, to in ....Transition to retirement by adults with chronic disabilities: increasing community capacity. This project will contribute to healthy, productive ageing by people with chronic disabilities. This group are living longer and will retire from their disability-specific supported employment and day program services. They then risk social exclusion, loneliness and associated poor health outcomes. This project will provide training and support to local community groups and voluntary work settings, to increase community capacity to support this group to participate actively in and contribute to their community in retirement. This will result in increased participation by this group and improvements in their well-being. Training resources developed by the project will be available to disability service providers nationally.Read moreRead less