Consent in the void: moral, legal and community values in decisions about human biological donations. This project will improve consent procedures for embryo and organ donation. This will increase the autonomy of those consenting, the quality of consent that is given, and increase public trust in the processes of embryo and organ donation. The legal and moral status of the wishes of the newly dead or embryo donors and will be clarified thereby increasing the quality of consent processes for all ....Consent in the void: moral, legal and community values in decisions about human biological donations. This project will improve consent procedures for embryo and organ donation. This will increase the autonomy of those consenting, the quality of consent that is given, and increase public trust in the processes of embryo and organ donation. The legal and moral status of the wishes of the newly dead or embryo donors and will be clarified thereby increasing the quality of consent processes for all involved. By including community values in addition to the legal and moral issues, this project will make well-founded recommendations for the development of laws, policies and guidelines in relation to decisions about frozen embryos and the newly dead.Read moreRead less
Knowledge and attitudes about life extension technology: public and stakeholder perspectives. This comprehensive investigation will contribute new knowledge that will help Australians to better cope with the social and economic consequences of an ageing population. New developments in the biosciences promise the possibility of extending human life past 120 years. This study will assist government, healthcare providers and researchers to understand the public reaction to such developments and en ....Knowledge and attitudes about life extension technology: public and stakeholder perspectives. This comprehensive investigation will contribute new knowledge that will help Australians to better cope with the social and economic consequences of an ageing population. New developments in the biosciences promise the possibility of extending human life past 120 years. This study will assist government, healthcare providers and researchers to understand the public reaction to such developments and enable them to plan for the future. The study will contribute to future strategic research and train a future researcher in the priority health goal of ageing well, ageing productively.Read moreRead less
Special Research Initiatives - Grant ID: SR0354765
Funder
Australian Research Council
Funding Amount
$10,000.00
Summary
Developing a multidisciplinary international research network focussed on maximizing the social and health benefits to Australia of human genetic technologies. The initiative will build upon the Centre for Law and Genetics' existing informal networks, resources and infrastructure with the aim of constructing an Australian based multidisciplinary research network, with extensive functional global links. The network will be designed to facilitate and coordinate collaboration across disciplines, in ....Developing a multidisciplinary international research network focussed on maximizing the social and health benefits to Australia of human genetic technologies. The initiative will build upon the Centre for Law and Genetics' existing informal networks, resources and infrastructure with the aim of constructing an Australian based multidisciplinary research network, with extensive functional global links. The network will be designed to facilitate and coordinate collaboration across disciplines, institutions and geographic boundaries to address the legal, ethical, social, and policy implications of human genetic technologies. It will aim to maximise the social and health benefits in the most effective, efficient and economic manner; avoiding duplication and promoting the free exchange of ideas and information, and fostering cooperative effort on a global scale.Read moreRead less
Human Oöcytes for Stem Cell Research: donation and regulation in Australia. This study will contribute to the development of workable, ethical guidelines and practices for Australian research oöcyte donation. It will contribute to the protection of women's health and autonomy and the design of sound donation practices and support services. It will contribute to the national and international debate about the ethics of stem cell research, and improve the knowledge base available to regulators and ....Human Oöcytes for Stem Cell Research: donation and regulation in Australia. This study will contribute to the development of workable, ethical guidelines and practices for Australian research oöcyte donation. It will contribute to the protection of women's health and autonomy and the design of sound donation practices and support services. It will contribute to the national and international debate about the ethics of stem cell research, and improve the knowledge base available to regulators and other stakeholders to frame adequate and comprehensive regulation.Read moreRead less
Infectious diseases, security and ethics. This project will benefit the nation directly by promoting greater understanding within the community of the national security and ethical implications of infectious disease threats; recommending policies for responding in ways that achieve better public health, national security and human rights outcomes for Australians; helping to strengthen Australia's social and economic fabric; and creating national and international linkages between academics, PhD ....Infectious diseases, security and ethics. This project will benefit the nation directly by promoting greater understanding within the community of the national security and ethical implications of infectious disease threats; recommending policies for responding in ways that achieve better public health, national security and human rights outcomes for Australians; helping to strengthen Australia's social and economic fabric; and creating national and international linkages between academics, PhD students and non-academic professionals.Read moreRead less
When informed consent goes poorly: A descriptive study of health care complaints and medical negligence claims. To correct process failures effectively, one must understand them. This project will improve knowledge of problems and disputes that arise when patients are 'consented' for medical treatment -- an enterprise in which thousands of Australians, many at very vulnerable stages of their lives, are engaged daily. Study findings will advance understanding of breakdowns in the informed conse ....When informed consent goes poorly: A descriptive study of health care complaints and medical negligence claims. To correct process failures effectively, one must understand them. This project will improve knowledge of problems and disputes that arise when patients are 'consented' for medical treatment -- an enterprise in which thousands of Australians, many at very vulnerable stages of their lives, are engaged daily. Study findings will advance understanding of breakdowns in the informed consent process and help shape strategies for reducing them. Our partner organisations are extraordinarily well-placed to carry insights from this work to health professionals in the field, enhancing opportunities for real benefits to patients from the research. The project fits with the national research priority of promoting and maintaining good health.Read moreRead less
Citizens' juries: enabling effective influenza pandemic policy through engagement with the community. The project will provide information and practical guidance to assist with South Australian pandemic management specifically and will have implications for the state and national disaster planning generally. The project will provide resources for both state and national policy makers in the form of technical reports and comprehensive public health information modules appropriate for disseminatio ....Citizens' juries: enabling effective influenza pandemic policy through engagement with the community. The project will provide information and practical guidance to assist with South Australian pandemic management specifically and will have implications for the state and national disaster planning generally. The project will provide resources for both state and national policy makers in the form of technical reports and comprehensive public health information modules appropriate for dissemination to the wider Australian community. The project will contribute to increased community awareness of pandemic influenza and enhanced community acceptance of (and cooperation with) pandemic management plans while establishing a mechanism for future pandemic and disaster policy planning and evaluation.Read moreRead less