Can and should we link data at a national level? Vaccine safety surveillance: A case study. This project provides many benefits for the community, exploring the legal and ethical issues around consent for data linkage, convening Citizens' Juries to weigh the evidence and make recommendations. It addresses National Research Priorities: Promoting and Maintaining Good Health and Safeguarding Australia as well as National Collaborative Research Infrastructure Strategy priorities. It uses vaccine sa ....Can and should we link data at a national level? Vaccine safety surveillance: A case study. This project provides many benefits for the community, exploring the legal and ethical issues around consent for data linkage, convening Citizens' Juries to weigh the evidence and make recommendations. It addresses National Research Priorities: Promoting and Maintaining Good Health and Safeguarding Australia as well as National Collaborative Research Infrastructure Strategy priorities. It uses vaccine safety surveillance as a case study to evaluate the effectiveness of data linkage (through linking Commonwealth immunisation data to state hospital data) and the methodologies and lessons learnt from cross jurisdictional data linkage can be transferred to other areas. Read moreRead less
Growing up with Cancer: A mixed method examination of how cancer influences the transition from adolescence to adulthood. In the last decade, over 10,000 of Australia's adolescents and young adults were diagnosed with cancer. Over the last 30 years, improvements in survival for 15 - 30 year olds have been the lowest of all age groups.Despite this, few health care facilities have the specialised infrastructure needed for dedicated psychosocial support of adolescents.
In finding out from adolescen ....Growing up with Cancer: A mixed method examination of how cancer influences the transition from adolescence to adulthood. In the last decade, over 10,000 of Australia's adolescents and young adults were diagnosed with cancer. Over the last 30 years, improvements in survival for 15 - 30 year olds have been the lowest of all age groups.Despite this, few health care facilities have the specialised infrastructure needed for dedicated psychosocial support of adolescents.
In finding out from adolescents with cancer what is most important in their care, we aim to identify and develop a range of services dedicated not only to addressing some of their needs, but also to building upon aspects of the cancer experience thought by adolescents as having a positive impact on their lives.Read moreRead less
Regulating Autologous Stem Cell Therapies in Australia. This project aims to develop an ethical and regulatory framework for the use of autologous adult stem cell therapies in Australia. These therapies are increasingly being offered to patients for diseases and conditions that lack scientific evidence of safety and efficacy. This study aims to address this problem using a mixed methods approach to generate empirical data and theoretical, ethical and legal insights that will guide the responsibl ....Regulating Autologous Stem Cell Therapies in Australia. This project aims to develop an ethical and regulatory framework for the use of autologous adult stem cell therapies in Australia. These therapies are increasingly being offered to patients for diseases and conditions that lack scientific evidence of safety and efficacy. This study aims to address this problem using a mixed methods approach to generate empirical data and theoretical, ethical and legal insights that will guide the responsible development, translation and regulation of innovative stem cell therapies in Australia and internationally. Anticipated outcomes will improve patient advocacy and public knowledge about adult stem cell therapies, and facilitate better relationships between patients, researchers and clinicians.Read moreRead less
Human Oöcytes for Stem Cell Research: donation and regulation in Australia. This study will contribute to the development of workable, ethical guidelines and practices for Australian research oöcyte donation. It will contribute to the protection of women's health and autonomy and the design of sound donation practices and support services. It will contribute to the national and international debate about the ethics of stem cell research, and improve the knowledge base available to regulators and ....Human Oöcytes for Stem Cell Research: donation and regulation in Australia. This study will contribute to the development of workable, ethical guidelines and practices for Australian research oöcyte donation. It will contribute to the protection of women's health and autonomy and the design of sound donation practices and support services. It will contribute to the national and international debate about the ethics of stem cell research, and improve the knowledge base available to regulators and other stakeholders to frame adequate and comprehensive regulation.Read moreRead less
When informed consent goes poorly: A descriptive study of health care complaints and medical negligence claims. To correct process failures effectively, one must understand them. This project will improve knowledge of problems and disputes that arise when patients are 'consented' for medical treatment -- an enterprise in which thousands of Australians, many at very vulnerable stages of their lives, are engaged daily. Study findings will advance understanding of breakdowns in the informed conse ....When informed consent goes poorly: A descriptive study of health care complaints and medical negligence claims. To correct process failures effectively, one must understand them. This project will improve knowledge of problems and disputes that arise when patients are 'consented' for medical treatment -- an enterprise in which thousands of Australians, many at very vulnerable stages of their lives, are engaged daily. Study findings will advance understanding of breakdowns in the informed consent process and help shape strategies for reducing them. Our partner organisations are extraordinarily well-placed to carry insights from this work to health professionals in the field, enhancing opportunities for real benefits to patients from the research. The project fits with the national research priority of promoting and maintaining good health.Read moreRead less
On the cutting edge: promoting best practice in surgical innovation. Surgical innovation leads to beneficial healthcare outcomes, but frequently at an ethical, legal and regulatory cost. This project aims to address these challenges by developing conceptual tools and regulatory mechanisms which promote patient safety and support those who practice, manage and govern surgery.
An Integrity System for Victoria Police. Through a critical examination of current integrity systems and sub-systems across a range of police forces, in depth empirical explorations at the primary research site (VicPol)and analyses of practical ethical problems, a high performance integrity system will be designed and tested. The significance of this project is its comprehensiveness, its use of a reliable theory of organisational ethical health, and of a methodology that allows for the full inc ....An Integrity System for Victoria Police. Through a critical examination of current integrity systems and sub-systems across a range of police forces, in depth empirical explorations at the primary research site (VicPol)and analyses of practical ethical problems, a high performance integrity system will be designed and tested. The significance of this project is its comprehensiveness, its use of a reliable theory of organisational ethical health, and of a methodology that allows for the full incorporation of practitioner views. Outcomes of the project will include data generating arrangements that provide evidence of achieved levels of compliance, integrity and performance.Read moreRead less
Ethical Excellence in the Public Sector in New South Wales. The benefits are to the public sector, and to the public at large in dealing with public sector organisations. Ethical performance is commonly identified as a deliverable from the public service; and the public trust in this aspect of public service performance is critical. The project will help to establish and identify ethical best practice, allowing those organisations and the public to be aware of and to refer to indicators and tr ....Ethical Excellence in the Public Sector in New South Wales. The benefits are to the public sector, and to the public at large in dealing with public sector organisations. Ethical performance is commonly identified as a deliverable from the public service; and the public trust in this aspect of public service performance is critical. The project will help to establish and identify ethical best practice, allowing those organisations and the public to be aware of and to refer to indicators and transparent performance. It will produce rigorous analysis, and offer recommendations which will have practical implementations.Read moreRead less
Generating knowledge and avoiding plagiarism: Smart information use by secondary students. Schools and tertiary institutions across Australia and the world are struggling to deal with the increasing problem of plagiarism. Public discussion tends to revolve around detection. By focusing on dealing with the roots of the problem through innovative teaching at the secondary level, the project supports recent school curriculum efforts in all Australian states, in International Baccalaureate schools a ....Generating knowledge and avoiding plagiarism: Smart information use by secondary students. Schools and tertiary institutions across Australia and the world are struggling to deal with the increasing problem of plagiarism. Public discussion tends to revolve around detection. By focusing on dealing with the roots of the problem through innovative teaching at the secondary level, the project supports recent school curriculum efforts in all Australian states, in International Baccalaureate schools and in the educational sector worldwide. The flow-on effect at tertiary levels will contribute to the national benefits from the project. A toolkit that provides positive solutions to plagiarism will benefit any educator who is concerned about plagiarism and knowledge generation.Read moreRead less
Ethics and Regulation in the Information and Communications Technology (ICT) Industry. The broad aim of this project is to provide a comprehensive analysis of the current integrity system of the ICT industry, that is, the ethical standards and goals, accountability and disciplinary mechanisms and preventative and promotional processes, eg. ethics training, reduced opportunity for inappropriate behaviour, and to define a new integrity system including standards of professional competency and ethi ....Ethics and Regulation in the Information and Communications Technology (ICT) Industry. The broad aim of this project is to provide a comprehensive analysis of the current integrity system of the ICT industry, that is, the ethical standards and goals, accountability and disciplinary mechanisms and preventative and promotional processes, eg. ethics training, reduced opportunity for inappropriate behaviour, and to define a new integrity system including standards of professional competency and ethical conduct, and a regulatory model applicable to the whole industry. As ICT becomes ever more ubiquitous, it is vital that a comprehensive and integrated system is developed that recognises the requirements of the ICT industry, the profession and business organisations.Read moreRead less