Who Decides And At What Cost? Comparing Patient, Surrogate And Oncologist Perspectives On End Of Life Care
Funder
National Health and Medical Research Council
Funding Amount
$260,564.00
Summary
This project will directly compare the preferences for end of life care and involvement in decision making among cancer patients, surrogate decision makers and oncologists; and explore how these preferences change over time. Findings will inform novel strategies to improve the adherence of surrogate decision makers and providers to patient preferences when patients lose the capacity to make these decisions themselves.
Investigating The Inclusion Of Vulnerable Populations In Advance Care Planning: Developing Complex And Sensitive Public Policy
Funder
National Health and Medical Research Council
Funding Amount
$379,368.00
Summary
People from Indigenous, and Culturally and Linguistically Diverse communities, and those living with chronic disease, tell us that current Advance Care Planning (ACP) policy and practice doesn’t meet their needs. This Partnership Project will work with these communities to develop inclusive, sensitive policy and practice for ACP— so all Australians get the care they deserve. It will also establish how to include vulnerable populations in developing health policy on complex and sensitive issues.