The Ethics of Voluntary Assisted Dying: Promoting Constructive Debate. This project aims to analyze core concepts that play key roles in emerging debates about the ethics of Voluntary Assisted Dying (VAD) in Australia. The project expects to make constructive contributions to these debates, promoting respectful dialogue and reducing polarization. Expected outcomes include a new model for managing VAD in Australia which is ethically appropriate and consistent with community values. This model wil ....The Ethics of Voluntary Assisted Dying: Promoting Constructive Debate. This project aims to analyze core concepts that play key roles in emerging debates about the ethics of Voluntary Assisted Dying (VAD) in Australia. The project expects to make constructive contributions to these debates, promoting respectful dialogue and reducing polarization. Expected outcomes include a new model for managing VAD in Australia which is ethically appropriate and consistent with community values. This model will also benefit other countries where the ethics of VAD is under consideration. The project will promote the dignity and autonomy of all and ensure that issues about the conscientious refusal of healthcare professionals to participate in the provision of VAD are handled in an ethically appropriate and effective manner.Read moreRead less
Rethinking animals in research: Developing a novel ethical framework. Current approaches to animal ethics face challenges addressing significant problems in animal research. These problems include: harms to research workers and animals, poor translation of results from animals to humans leading to ineffective treatments and poorly directed future research efforts. This project addresses these challenges by developing an innovative, empirically-informed relational approach to animal ethics. The n ....Rethinking animals in research: Developing a novel ethical framework. Current approaches to animal ethics face challenges addressing significant problems in animal research. These problems include: harms to research workers and animals, poor translation of results from animals to humans leading to ineffective treatments and poorly directed future research efforts. This project addresses these challenges by developing an innovative, empirically-informed relational approach to animal ethics. The new approach will deliver a novel framework that minimises harms to humans and animals, and improves the quality of results obtained from experiments. Benefits include a more ethically robust practice of animal research and more targeted deployment of finite research resources.Read moreRead less
Religion, pluralism, and healthcare practice: a philosophical assessment. This project aims to develop a systematic approach to accommodating religious values and practices in healthcare. Current approaches are ad hoc and discriminatory, and in an increasingly religiously diverse contemporary Australia, a systematic approach is needed. This project will consider and provide policy advice on how healthcare could be reformed so that the issue of accommodation of religious values and practices is t ....Religion, pluralism, and healthcare practice: a philosophical assessment. This project aims to develop a systematic approach to accommodating religious values and practices in healthcare. Current approaches are ad hoc and discriminatory, and in an increasingly religiously diverse contemporary Australia, a systematic approach is needed. This project will consider and provide policy advice on how healthcare could be reformed so that the issue of accommodation of religious values and practices is treated in a consistent and ethical manner. The benefit of the project will be a better, cost effective, model for healthcare management that reduces disparities for disadvantaged and vulnerable groups.Read moreRead less
Defining disease: Addressing the problem of overdiagnosis. This project will investigate and define the limits of physical disease, to answer questions about when a presentation is a disease, and when it is simply a risk factor or mild condition. The ensuing account of disease will make a practical contribution to growing international concern about asymptomatic people being diagnosed and treated for conditions that will not cause any health problems ("overdiagnosis"). The research will provide ....Defining disease: Addressing the problem of overdiagnosis. This project will investigate and define the limits of physical disease, to answer questions about when a presentation is a disease, and when it is simply a risk factor or mild condition. The ensuing account of disease will make a practical contribution to growing international concern about asymptomatic people being diagnosed and treated for conditions that will not cause any health problems ("overdiagnosis"). The research will provide normative grounds for evaluating disease claims. Results will reduce the harm caused by people receiving treatment that they do not require, make a practical contribution to debates about the scope of health care, and yield findings that can help to reduce the cost-burdens associated with overdiagnosis.Read moreRead less
How do we know what works: ethics and evidence in surgical research. This project will make surgery safer for patients by improving our understanding of evidence in surgery. We will look at the question "what works" in surgery. The resources we develop will help practitioners and regulators to better navigate and manage the complex ethical and practical challenges in this field.
Big-Picture Bioethics: policy-making and liberal democracy. We live an era of rapid growth in biotechnology generating new and difficult ethical questions that need to be tackled by bioethicists and politicians. This project goes beyond typical approaches in bioethics to explore the "big picture": how policies are generated in ethically-contentious domains. It is important to examine how the values of different stakeholders are reflected in such processes to ensure that they are in accordance wi ....Big-Picture Bioethics: policy-making and liberal democracy. We live an era of rapid growth in biotechnology generating new and difficult ethical questions that need to be tackled by bioethicists and politicians. This project goes beyond typical approaches in bioethics to explore the "big picture": how policies are generated in ethically-contentious domains. It is important to examine how the values of different stakeholders are reflected in such processes to ensure that they are in accordance with Australia's commitment to fostering a multicultural, pluralistic, democratic society. This project will produce practical recommendations for refining public consultation in healthcare policy-making through an examination of three relevant contentious case studies in Australia with comparison to Canada.Read moreRead less
Ethical and Social Issues in Translating Epigenetics into Antenatal Care. This project aims to investigate how knowledge about the intergenerational transmission of health and disease is shaping antenatal care in Australia. It expects to generate new knowledge about how the science of epigenetics can be used to address social inequality and is anticipated to have impact across the social sciences, bioethics and public health. Expected outcomes of the project include novel theoretical approaches ....Ethical and Social Issues in Translating Epigenetics into Antenatal Care. This project aims to investigate how knowledge about the intergenerational transmission of health and disease is shaping antenatal care in Australia. It expects to generate new knowledge about how the science of epigenetics can be used to address social inequality and is anticipated to have impact across the social sciences, bioethics and public health. Expected outcomes of the project include novel theoretical approaches to the ethics of pregnancy, along with guidance tools to shape the use of epigenetics in antenatal care and social policy to reduce social inequalities. This should provide significant benefits, improving information and support available to vulnerable women as they negotiate maternal health and social services. Read moreRead less
Growing up with Cancer: A mixed method examination of how cancer influences the transition from adolescence to adulthood. In the last decade, over 10,000 of Australia's adolescents and young adults were diagnosed with cancer. Over the last 30 years, improvements in survival for 15 - 30 year olds have been the lowest of all age groups.Despite this, few health care facilities have the specialised infrastructure needed for dedicated psychosocial support of adolescents.
In finding out from adolescen ....Growing up with Cancer: A mixed method examination of how cancer influences the transition from adolescence to adulthood. In the last decade, over 10,000 of Australia's adolescents and young adults were diagnosed with cancer. Over the last 30 years, improvements in survival for 15 - 30 year olds have been the lowest of all age groups.Despite this, few health care facilities have the specialised infrastructure needed for dedicated psychosocial support of adolescents.
In finding out from adolescents with cancer what is most important in their care, we aim to identify and develop a range of services dedicated not only to addressing some of their needs, but also to building upon aspects of the cancer experience thought by adolescents as having a positive impact on their lives.Read moreRead less
Regulating Autologous Stem Cell Therapies in Australia. This project aims to develop an ethical and regulatory framework for the use of autologous adult stem cell therapies in Australia. These therapies are increasingly being offered to patients for diseases and conditions that lack scientific evidence of safety and efficacy. This study aims to address this problem using a mixed methods approach to generate empirical data and theoretical, ethical and legal insights that will guide the responsibl ....Regulating Autologous Stem Cell Therapies in Australia. This project aims to develop an ethical and regulatory framework for the use of autologous adult stem cell therapies in Australia. These therapies are increasingly being offered to patients for diseases and conditions that lack scientific evidence of safety and efficacy. This study aims to address this problem using a mixed methods approach to generate empirical data and theoretical, ethical and legal insights that will guide the responsible development, translation and regulation of innovative stem cell therapies in Australia and internationally. Anticipated outcomes will improve patient advocacy and public knowledge about adult stem cell therapies, and facilitate better relationships between patients, researchers and clinicians.Read moreRead less
A study of the Australian thoroughbred and racing industry and the construction of 'nature'. The thoroughbred breeding and racing industry contributes significantly to national export income, regional development and national identity in Australia. Studying the physical and discursive construction and use of 'nature' (including, soil, grass, water, reproduction and the necessity of the unpredictability of nature) in different phases of breeding and racing improves understandings of technology ad ....A study of the Australian thoroughbred and racing industry and the construction of 'nature'. The thoroughbred breeding and racing industry contributes significantly to national export income, regional development and national identity in Australia. Studying the physical and discursive construction and use of 'nature' (including, soil, grass, water, reproduction and the necessity of the unpredictability of nature) in different phases of breeding and racing improves understandings of technology adoption, human-animal relations, sport and nature. Research outcomes will improve our understanding of this traditionally resilient but now vulnerable industry, thereby enhancing its capacity to adapt to change and remain internationally competitive.Read moreRead less