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The Impact Of Sleep Disturbance On Daytime Functioning, Mood And Quality Of Life In Children And Adolescents With Cystic Fibrosis.
Funder
National Health and Medical Research Council
Funding Amount
$62,146.00
Summary
Cystic fibrosis(CF) is the most common inherited chronic disease affecting Australian children. In adults with CF sleep complaints are common and associated with depression and reduced quality of life(QOL). There is a paucity of international data however regarding sleep in children with CF and assessment of paediatric sleep problems in CF is not routine. The aim of this study is to determine sleep patterns in children with CF and to examine the relationship between sleep quality, QOL and mood.
Questions Of Autonomy And Patient Protection In Respect Of Refusals Of Medical Treatment.
Funder
National Health and Medical Research Council
Funding Amount
$78,492.00
Summary
The aim of the research is to critically evaluate: 1) the right to autonomy in health care, and the parameters of countervailing ethical considerations including the need to protect vulnerable people; and 2) the current legal framework through which these competing ethical considerations above are balanced, including the law of consent to medical treatment and mental health schemes providing for involuntary treatment of patients.
Development Of A Transdiagnostic Intervention For Patients With Cancer Experiencing Anxiety In The Context Of Ongoing Uncertainty
Funder
National Health and Medical Research Council
Funding Amount
$72,768.00
Summary
Surprisingly little work has been done to explain how anxiety develops and persists in patients with cancer. A model was recently developed to explain how fears of cancer recurrence develop and persist, which led to a new intervention. This study proposes to extend that work for patients with ongoing cancer threat or poor prognosis. The proposed study will develop a model of cancer-related anxiety and develop and test an intervention for anxiety in cancer patients with ongoing uncertainty.
The Development, Implementation And Evaluation Of A Randomised Controlled Trial Of Dietary Improvement As A Treatment Strategy For Major Depression.
Funder
National Health and Medical Research Council
Funding Amount
$71,047.00
Summary
The SMILES trial: “Supporting the Modification of lifestyle In Lowered Emotional States" is a randomised controlled trial that aims to investigate the efficacy and cost-efficacy of dietary improvement in the treatment of Major Depressive Episodes (MDE). My PhD is embedded within this RCT. We hypothesise that a structured dietary intervention, focusing on dietary improvement (a Modified Mediterranean diet), will be superior to a control condition (social support) in the treatment of MDE.
Cognitive And Psychosocial Functioning In Patients With Idiopathic Generalized Epilepsies
Funder
National Health and Medical Research Council
Funding Amount
$123,143.00
Summary
Children born extremely preterm are at risk of struggling at school and falling behind normal educational milestones, and having emotional problems such as anxiety. This study aims to see whether anxiety affects these children’s ability to learn and use new information. It will also determine whether an intervention targeting these thinking skills is less useful in children with higher levels of anxiety.
Does Rehabilitation Increase The Functional Independence Of People With Friedreich Ataxia?
Funder
National Health and Medical Research Council
Funding Amount
$81,811.00
Summary
Friedreich Ataxia (FRDA) is a disease which reduces the ability to walk. People decline rapidly and are usually dependent on a wheel-chair by 20-30 years of age. This research will examine the impact of changes in leg function, including strength and balance, on the capacity to walk. This research will determine if rehabilitation can improve walking ability and reduce the decline in FRDA. The results of this research will ensure people with FRDA are provided with the most appropriate care.
Clinical Genetics Studies Of Speech And Language Disorders In Large Families.
Funder
National Health and Medical Research Council
Funding Amount
$160,368.00
Summary
Childhood speech and language disorders are common and may have negative long term outcomes. We have a limited understanding of what causes these disorders, which impacts our ability to manage and treat those affected. This project will utilise large families to investigate causes and clinical features of speech and language disorders. This is an exciting and relatively under-research area, and has the potential to lead to improved outcomes for children affected with speech and language disorder ....Childhood speech and language disorders are common and may have negative long term outcomes. We have a limited understanding of what causes these disorders, which impacts our ability to manage and treat those affected. This project will utilise large families to investigate causes and clinical features of speech and language disorders. This is an exciting and relatively under-research area, and has the potential to lead to improved outcomes for children affected with speech and language disorder.Read moreRead less
Social Functioning And Autism Spectrum Disorder In Children With Neurofibromatosis Type 1: A Multimodal Study.
Funder
National Health and Medical Research Council
Funding Amount
$107,204.00
Summary
Social difficulties and symptoms of autism spectrum disorder (ASD) are frequently found in children with neurofibromatosis type 1 (NF1), a common genetic condition. The current study will examine (1) prevalence and characteristics of ASD and social impairment in children with NF1, (2) cognitive factors contributing to ASD symptoms and (3) associated compromise to brain structure. Findings are expected to guide development of treatments to improve social functioning in children with NF1.
High Speed Video To Assess Eye Movements In Vestibular Dysfunction - A Validation Study
Funder
National Health and Medical Research Council
Funding Amount
$133,351.00
Summary
Dizziness affects a third of the population during their lives. Abnormal eye movements are often the best guide as to what has gone wrong in the dizzy person. The problem is that these eye movements can be difficult to see, and hence measure, as a way of diagnosing and then treating the dizziness. Video-oculography holds great promise for helping doctors identify the cause, and in many cases offer simple curative treatment, for dizziness.
The Incidence And Genetics Of The Infantile Epileptic Encephalopathies
Funder
National Health and Medical Research Council
Funding Amount
$175,224.00
Summary
Severe epilepsies with frequent seizures and cognitive impairments in the first 18 months of life are known as ‘infantile epileptic encephalopathies’ (IEE). The cause of IEE is unknown in many patients, although presumed genetic. This study of patients with IEE in Victoria aims to describe the incidence of IEE, and understand the genetic causes of IEE. Understanding the causes of IEE will be the first step towards development of urgently-needed novel therapies for these devastating conditions.