Moving beyond crisis management: Creating a future for people with disabilities living with ageing parents. The needs of thousands of people with disabilities being cared for by ageing parents are beyond the capacity of our existing formal mechanisms for providing care. In order to mitigate this national crisis in support, this research will establish effective, resource efficient support strategies where there are currently no plans in place for future care arrangements. By enhancing the capaci ....Moving beyond crisis management: Creating a future for people with disabilities living with ageing parents. The needs of thousands of people with disabilities being cared for by ageing parents are beyond the capacity of our existing formal mechanisms for providing care. In order to mitigate this national crisis in support, this research will establish effective, resource efficient support strategies where there are currently no plans in place for future care arrangements. By enhancing the capacity of the community to provide support the benefit of existing formal supports will be extended to address the needs of more families. This project will position Australian disability research and support at the forefront of international efforts to legitimize the claim of people with disabilities and their families on community resources.Read moreRead less
Negotiating caring and employment - the impact on carers' wellbeing. Work and caring compete for carers? time. Little is known about the difficulties of combining work with the care of adults or children with disabilities. Between 40 and 60 percent of Australian carers combine employment with caring responsibilities. The project proposes to adopt a life-course perspective to study the effect of caring on income security, social participation and the health of employed carers. It makes innovative ....Negotiating caring and employment - the impact on carers' wellbeing. Work and caring compete for carers? time. Little is known about the difficulties of combining work with the care of adults or children with disabilities. Between 40 and 60 percent of Australian carers combine employment with caring responsibilities. The project proposes to adopt a life-course perspective to study the effect of caring on income security, social participation and the health of employed carers. It makes innovative use of existing data sources, including new longitudinal survey data, supported by a specially designed program of qualitative research to study key transitions, possible workplace solutions and the effective provision of human services.Read moreRead less
The transition of care from ageing parents: achieving flexible relationships between adults with cerebral palsy, their siblings and service providers. The Australian community faces a significant challenge in providing life-long care for people with severe disability. We will develop a model that will assist families and service providers to make a smooth, effective transition of care and/or responsibility of adults with cerebral palsy from parents to siblings. Achieving this will increase the ....The transition of care from ageing parents: achieving flexible relationships between adults with cerebral palsy, their siblings and service providers. The Australian community faces a significant challenge in providing life-long care for people with severe disability. We will develop a model that will assist families and service providers to make a smooth, effective transition of care and/or responsibility of adults with cerebral palsy from parents to siblings. Achieving this will increase the quality of life for disabled and nondisabled family members, and ensure a more efficient use of public funding. Our findings will serve as a model for managing the life-long care of people with cerebral palsy and other severe, chronic disabilities, throughout Australia and overseas.Read moreRead less
Maintaining family-based placement for children and young people with disabilities. Aim: To enable families to continue caring at home for children with severe disabilities.
Significance: These families face significant challenges in juggling the demands of work, family and care to the extent that one in four decide to relinquish the care of their child. This leaves more than 37,000 children in Australia at risk of not growing up in their family home.
Expected outcomes: A psychometrically sou ....Maintaining family-based placement for children and young people with disabilities. Aim: To enable families to continue caring at home for children with severe disabilities.
Significance: These families face significant challenges in juggling the demands of work, family and care to the extent that one in four decide to relinquish the care of their child. This leaves more than 37,000 children in Australia at risk of not growing up in their family home.
Expected outcomes: A psychometrically sound instrument that will identify families struggling to care for their children at home, and a family and practitioner guide of innovative solutions to maintaining family-based placements.
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Classifying support needs of people with disabilities. The aim of this research is to develop a valid and reliable assessment and classification system of the support needs of people with diverse disabilities. Current methods are found wanting due to neglect of the complex interactions between health condition, activity and context and inability to account for type and intensities of supports needed. The development of a robust system which can be used to assess and classify the support needs of ....Classifying support needs of people with disabilities. The aim of this research is to develop a valid and reliable assessment and classification system of the support needs of people with diverse disabilities. Current methods are found wanting due to neglect of the complex interactions between health condition, activity and context and inability to account for type and intensities of supports needed. The development of a robust system which can be used to assess and classify the support needs of people with a wide range of disabilities and across settings will enable human service agencies to be responsive and tailor their services to individual needs.Read moreRead less