Lived experiences of treatment for hepatitis C in Australia. This project aims to support uptake of new hepatitis C treatments. With the introduction of new treatments in 2016, the Australian Government adopted the WHO’s goal of eliminating the disease by 2030. While early treatment rates were high, they have since plateaued, with stigma and poor information considered key obstacles. This project will generate new knowledge on treatment decisions and experiences, using a proven qualitative metho ....Lived experiences of treatment for hepatitis C in Australia. This project aims to support uptake of new hepatitis C treatments. With the introduction of new treatments in 2016, the Australian Government adopted the WHO’s goal of eliminating the disease by 2030. While early treatment rates were high, they have since plateaued, with stigma and poor information considered key obstacles. This project will generate new knowledge on treatment decisions and experiences, using a proven qualitative methodology. In doing so, it will produce a website covering personal experiences of treatment, issues in treatment decision-making, and advice on enhancing life on treatment and after. It will tackle hepatitis C-related stigma, and inform and benefit potential treatment users, families and relevant professionals.
Read moreRead less
The Social Life of Death. This project aims to investigate experiences of death, dying and bereavement amidst rapid social, economic and political transformation. In the wake of COVID19, and as Australia’s anticipated ‘death boom’ approaches, how to foster good deaths has never been more uncertain, nor more urgent. Drawing on innovative methods and socio-cultural theory, and working in partnership with families and communities, this project aims to generate new knowledge to better inform and imp ....The Social Life of Death. This project aims to investigate experiences of death, dying and bereavement amidst rapid social, economic and political transformation. In the wake of COVID19, and as Australia’s anticipated ‘death boom’ approaches, how to foster good deaths has never been more uncertain, nor more urgent. Drawing on innovative methods and socio-cultural theory, and working in partnership with families and communities, this project aims to generate new knowledge to better inform and improve policy and spark cultural renewal around the end of life. Expected outcomes include setting the international benchmark for novel scholarly understandings of death, dying and bereavement, and centring community voices in addressing contemporary challenges to dying well.
Read moreRead less
Critical perspectives on serodiscordance in family life. This project aims to produce the first empirical picture of Australian families affected by HIV, hepatitis C or hepatitis B, to shed light on how families manage adversity in diverse households and community contexts. The project plans to conduct qualitative research with individuals, families and other stakeholders to reveal the interplay between diversity in family forms and understandings and experiences of serodiscordance, or mixed inf ....Critical perspectives on serodiscordance in family life. This project aims to produce the first empirical picture of Australian families affected by HIV, hepatitis C or hepatitis B, to shed light on how families manage adversity in diverse households and community contexts. The project plans to conduct qualitative research with individuals, families and other stakeholders to reveal the interplay between diversity in family forms and understandings and experiences of serodiscordance, or mixed infection status. In developing a critical theory of serodiscordance that departs from the biomedical emphasis on ‘risk management’, novel insights are anticipated on accommodating difference and disruption, managing secrets and stigma, and responsibilising care and treatment within families. The project also anticipates the generation of new and important knowledge regarding the contributions of families to community wellbeing.Read moreRead less
Young people shaping livelihoods across three generations. This proposal for a third cohort to the Life Patterns longitudinal study aims to investigate how in a context of technological and structural change a new generation of young Australians builds livelihood-resilience, keeping the focus on those elements that have proven to be enabling for previous generations. The project aims to generate new knowledge about the influences of education, work, housing, relationships, wellbeing on positive ....Young people shaping livelihoods across three generations. This proposal for a third cohort to the Life Patterns longitudinal study aims to investigate how in a context of technological and structural change a new generation of young Australians builds livelihood-resilience, keeping the focus on those elements that have proven to be enabling for previous generations. The project aims to generate new knowledge about the influences of education, work, housing, relationships, wellbeing on positive trajectories. Expected outcomes of this project include systematic evidence and a new holistic livelihood-resilience framework for analysing youth trajectories. This project should provide significant benefits to the national response supporting positive youth transitions through education and work.Read moreRead less
Taking Time: Work-family time pressure, time quality and healthy activities. Australian families report very high time stress. This project explores links between parental time pressure, health and wellbeing, innovatively capturing individual, family and social perspectives. Using new measures, it analyses time diary data from ten countries to discover how amount, composition and gender share of work-family time affect parents' time quality and healthy activities across different societal contex ....Taking Time: Work-family time pressure, time quality and healthy activities. Australian families report very high time stress. This project explores links between parental time pressure, health and wellbeing, innovatively capturing individual, family and social perspectives. Using new measures, it analyses time diary data from ten countries to discover how amount, composition and gender share of work-family time affect parents' time quality and healthy activities across different societal contexts. It also examines whether there are differences in outcomes by socio-economic status and family structure, in Australia and cross-nationally. The results are expected to inform policy, to promote health and wellbeing, and to encourage sustainable employment-childcare practices.Read moreRead less
Youth services in remote communities. This project aims to improve outcomes for high-risk youth in remote communities in Australia and Canada. It will establish a transdisciplinary research network comprising researchers and services experienced in delivering programmes to high-risk youth; develop a universal intervention definition, and a useful, scientifically rigorous evaluation framework; and integrate the intervention and evaluation framework into participating services’ routine service del ....Youth services in remote communities. This project aims to improve outcomes for high-risk youth in remote communities in Australia and Canada. It will establish a transdisciplinary research network comprising researchers and services experienced in delivering programmes to high-risk youth; develop a universal intervention definition, and a useful, scientifically rigorous evaluation framework; and integrate the intervention and evaluation framework into participating services’ routine service delivery. This project expects to increase the number and quality of services available for high-risk youth, improve their social, health and economic outcomes, and generate positive economic benefit for their communities.Read moreRead less
The sociology of health data for sexuality and gender diverse people. This project aims to investigate the sociological dimensions of digital health data for sexuality and gender diverse people with complex health needs. It employs qualitative and co-design methods to engage with sexuality and gender diverse people, advocates, clinicians, decision-makers, and health data designers. The project expects to generate much-needed knowledge about the participation of sexuality and gender diverse peopl ....The sociology of health data for sexuality and gender diverse people. This project aims to investigate the sociological dimensions of digital health data for sexuality and gender diverse people with complex health needs. It employs qualitative and co-design methods to engage with sexuality and gender diverse people, advocates, clinicians, decision-makers, and health data designers. The project expects to generate much-needed knowledge about the participation of sexuality and gender diverse people in health data systems, with respect to trust, disclosure, stigma and prejudice. Expected outcomes include insight for enhancing health data systems for sexuality and gender diverse people. This project should provide significant benefits for the promotion of inclusive, safe and useful health data systems.Read moreRead less
How Australians navigate the healthcare maze: the differential capacity to choose. This project answers the question: how do Australians make choices as they navigate the healthcare maze? An examination of policy, media and marketing materials, and interviews with health professionals and consumers across three Australian states will reveal the most important factors in the capacity to exercise healthcare choice in Australia.
Sick, lonely and left behind? A sociological study of loneliness. Loneliness is a serious and rapidly growing social problem in Australia. Although the negative health effects and mounting healthcare costs of loneliness are known, effective responses to loneliness are not. Taking a sociological approach, this project aims to generate new knowledge about the experience and meanings of loneliness for people and communities, and the social factors implicated in the rise of loneliness in contemporar ....Sick, lonely and left behind? A sociological study of loneliness. Loneliness is a serious and rapidly growing social problem in Australia. Although the negative health effects and mounting healthcare costs of loneliness are known, effective responses to loneliness are not. Taking a sociological approach, this project aims to generate new knowledge about the experience and meanings of loneliness for people and communities, and the social factors implicated in the rise of loneliness in contemporary Australia. By focusing on loneliness in people with long-term health conditions, this knowledge will be used to develop policy and practice recommendations for the health- and community-care sectors in how to support people and communities experiencing loneliness.Read moreRead less
Experiences of addiction, treatment and recovery: An online resource for members of the public, health professionals and policymakers. Alcohol and other drug addiction is a major health and social issue in Australia. Treatment success rates are modest and little is known about how people experience and manage addiction and the stigma that accompanies it. This project will generate new knowledge on alcohol and other drug addiction by applying a proven qualitative methodology to these issues for t ....Experiences of addiction, treatment and recovery: An online resource for members of the public, health professionals and policymakers. Alcohol and other drug addiction is a major health and social issue in Australia. Treatment success rates are modest and little is known about how people experience and manage addiction and the stigma that accompanies it. This project will generate new knowledge on alcohol and other drug addiction by applying a proven qualitative methodology to these issues for the first time. It will produce an effective, innovative online resource for affected Australians, their family and friends, and the wider Australian community including health professionals and policymakers.Read moreRead less