Regulating Autologous Stem Cell Therapies in Australia. This project aims to develop an ethical and regulatory framework for the use of autologous adult stem cell therapies in Australia. These therapies are increasingly being offered to patients for diseases and conditions that lack scientific evidence of safety and efficacy. This study aims to address this problem using a mixed methods approach to generate empirical data and theoretical, ethical and legal insights that will guide the responsibl ....Regulating Autologous Stem Cell Therapies in Australia. This project aims to develop an ethical and regulatory framework for the use of autologous adult stem cell therapies in Australia. These therapies are increasingly being offered to patients for diseases and conditions that lack scientific evidence of safety and efficacy. This study aims to address this problem using a mixed methods approach to generate empirical data and theoretical, ethical and legal insights that will guide the responsible development, translation and regulation of innovative stem cell therapies in Australia and internationally. Anticipated outcomes will improve patient advocacy and public knowledge about adult stem cell therapies, and facilitate better relationships between patients, researchers and clinicians.Read moreRead less
Big-Picture Bioethics: policy-making and liberal democracy. We live an era of rapid growth in biotechnology generating new and difficult ethical questions that need to be tackled by bioethicists and politicians. This project goes beyond typical approaches in bioethics to explore the "big picture": how policies are generated in ethically-contentious domains. It is important to examine how the values of different stakeholders are reflected in such processes to ensure that they are in accordance wi ....Big-Picture Bioethics: policy-making and liberal democracy. We live an era of rapid growth in biotechnology generating new and difficult ethical questions that need to be tackled by bioethicists and politicians. This project goes beyond typical approaches in bioethics to explore the "big picture": how policies are generated in ethically-contentious domains. It is important to examine how the values of different stakeholders are reflected in such processes to ensure that they are in accordance with Australia's commitment to fostering a multicultural, pluralistic, democratic society. This project will produce practical recommendations for refining public consultation in healthcare policy-making through an examination of three relevant contentious case studies in Australia with comparison to Canada.Read moreRead less
Enhancing Reproductive Opportunity in Australia: Reconsidering Consent, Altruism and the Legal Status of Embryos in ART Processes. This project meets the national research priority of a healthy start to life by enhancing reproductive opportunity while safeguarding the rights and interests of all involved in reproduction with donor gametes. This research will create significant national benefits in the form of an up to date, practical and coherent platform for the reform of all aspects of embryo ....Enhancing Reproductive Opportunity in Australia: Reconsidering Consent, Altruism and the Legal Status of Embryos in ART Processes. This project meets the national research priority of a healthy start to life by enhancing reproductive opportunity while safeguarding the rights and interests of all involved in reproduction with donor gametes. This research will create significant national benefits in the form of an up to date, practical and coherent platform for the reform of all aspects of embryo and gamete donation and embryo disputes. We propose a pro-active consultative model that centres the needs and experiences of gamete and embryo donors and recipients. Our research will inform current and future modes of regulation of gamete and embryo donation and dispute resolution, including legislation, ethics guidelines and codes of practice.Read moreRead less
Ethical and Social Issues in Translating Epigenetics into Antenatal Care. This project aims to investigate how knowledge about the intergenerational transmission of health and disease is shaping antenatal care in Australia. It expects to generate new knowledge about how the science of epigenetics can be used to address social inequality and is anticipated to have impact across the social sciences, bioethics and public health. Expected outcomes of the project include novel theoretical approaches ....Ethical and Social Issues in Translating Epigenetics into Antenatal Care. This project aims to investigate how knowledge about the intergenerational transmission of health and disease is shaping antenatal care in Australia. It expects to generate new knowledge about how the science of epigenetics can be used to address social inequality and is anticipated to have impact across the social sciences, bioethics and public health. Expected outcomes of the project include novel theoretical approaches to the ethics of pregnancy, along with guidance tools to shape the use of epigenetics in antenatal care and social policy to reduce social inequalities. This should provide significant benefits, improving information and support available to vulnerable women as they negotiate maternal health and social services. Read moreRead less
Discovery Early Career Researcher Award - Grant ID: DE240100386
Funder
Australian Research Council
Funding Amount
$435,875.00
Summary
Anti-racist neuroethics for epistemic justice in mental health research. Racial/ethnic minorities are underrepresented in brain and mental health (BMH) research, risking inadequate healthcare for the 9.5 million minorities in Australia. With the $73 billion annual cost of BMH disorders to the country, all Australians should equally benefit from BMH research. This project aims to develop recommendations to make BMH research more diverse and inclusive. It will audit representation of minorities in ....Anti-racist neuroethics for epistemic justice in mental health research. Racial/ethnic minorities are underrepresented in brain and mental health (BMH) research, risking inadequate healthcare for the 9.5 million minorities in Australia. With the $73 billion annual cost of BMH disorders to the country, all Australians should equally benefit from BMH research. This project aims to develop recommendations to make BMH research more diverse and inclusive. It will audit representation of minorities in Australian BMH publications and will conduct surveys, interviews, and workshops with scientists to determine institutional barriers to the inclusion of and engagement with minorities in research. This project will draw from concepts of epistemic justice and anti-racism to develop ethical frameworks for BMH racial equity.Read moreRead less
Getting to the meat of the matter: social and economic issues in animal welfare in Australia's livestock industries. Animal welfare in Australia's livestock industries is an issue of increasing concern to both Australian consumers and meat and livestock producers. This project will provide an understanding of both the social and economic impacts of consumer views on animal welfare and help to foster more productive dialogue between consumers and producers.
Infectious diseases, security and ethics. This project will benefit the nation directly by promoting greater understanding within the community of the national security and ethical implications of infectious disease threats; recommending policies for responding in ways that achieve better public health, national security and human rights outcomes for Australians; helping to strengthen Australia's social and economic fabric; and creating national and international linkages between academics, PhD ....Infectious diseases, security and ethics. This project will benefit the nation directly by promoting greater understanding within the community of the national security and ethical implications of infectious disease threats; recommending policies for responding in ways that achieve better public health, national security and human rights outcomes for Australians; helping to strengthen Australia's social and economic fabric; and creating national and international linkages between academics, PhD students and non-academic professionals.Read moreRead less
Just Rules for Incentivizing Pharmaceutical Research and for Disseminating its Benefits. Intelligent reform of the rules for incentivizing pharmaceutical research and for disseminating its benefits can cost-effectively decimate the global disease burden. Australians would benefit directly, through lower drug prices, enhanced pharmaceutical research employment, and improved public health, as well as indirectly, through reduced threats from foreign diseases and better relations with the developing ....Just Rules for Incentivizing Pharmaceutical Research and for Disseminating its Benefits. Intelligent reform of the rules for incentivizing pharmaceutical research and for disseminating its benefits can cost-effectively decimate the global disease burden. Australians would benefit directly, through lower drug prices, enhanced pharmaceutical research employment, and improved public health, as well as indirectly, through reduced threats from foreign diseases and better relations with the developing countries.Read moreRead less
Better end-of-life care through an optimal, holistic regulatory framework. This project aims to enhance end-of-life care through better regulation. Current regulation does not work as intended and is complex and fragmented. This harms patients, families and health professionals, and wastes health resources across the 100,000 medical end-of-life decisions in Australia annually. Expected outcomes are: (1) the first study internationally to establish in practice how the interaction of conflicting l ....Better end-of-life care through an optimal, holistic regulatory framework. This project aims to enhance end-of-life care through better regulation. Current regulation does not work as intended and is complex and fragmented. This harms patients, families and health professionals, and wastes health resources across the 100,000 medical end-of-life decisions in Australia annually. Expected outcomes are: (1) the first study internationally to establish in practice how the interaction of conflicting law, policies, ethics and training affects the end-of-life care patients receive; and (2) a new holistic regulatory framework to enhance the quality of end-of-life care. Expected benefits are better palliative care, more patient involvement in decisions, reduced patient-doctor conflict and a more efficient health system.Read moreRead less