Maintaining family-based placement for children and young people with disabilities. Aim: To enable families to continue caring at home for children with severe disabilities.
Significance: These families face significant challenges in juggling the demands of work, family and care to the extent that one in four decide to relinquish the care of their child. This leaves more than 37,000 children in Australia at risk of not growing up in their family home.
Expected outcomes: A psychometrically sou ....Maintaining family-based placement for children and young people with disabilities. Aim: To enable families to continue caring at home for children with severe disabilities.
Significance: These families face significant challenges in juggling the demands of work, family and care to the extent that one in four decide to relinquish the care of their child. This leaves more than 37,000 children in Australia at risk of not growing up in their family home.
Expected outcomes: A psychometrically sound instrument that will identify families struggling to care for their children at home, and a family and practitioner guide of innovative solutions to maintaining family-based placements.
Read moreRead less
An evaluation of concerns, self-perceived needs, and supportive interventions, for informal cancer carers: A comparative study of female and male carers. Informal cancer carers experience high levels of anxiety, depression, and unmet support needs, with women carers at higher risk than men. However, little is known about the factors underlying this gender difference, and existing support services have not specifically targeted the needs of female and male cancer carers. This study will explore t ....An evaluation of concerns, self-perceived needs, and supportive interventions, for informal cancer carers: A comparative study of female and male carers. Informal cancer carers experience high levels of anxiety, depression, and unmet support needs, with women carers at higher risk than men. However, little is known about the factors underlying this gender difference, and existing support services have not specifically targeted the needs of female and male cancer carers. This study will explore the concerns, self-perceived needs, and psychological wellbeing of informal cancer carers living in New South Wales, comparing the experiences of female and male carers, at different stages of the care-giving journey. Based on these findings, a program of targeted supportive interventions will be developed, and then systematically evaluated within a controlled trial.Read moreRead less
Meeting the needs of cancer support group leaders. Social support plays a pivotal role in the psychological adjustment of people with cancer. Support groups provide unique input, but their outcomes are reliant on the quality and sustainability of the leaders. Internationally, little is known about the challenges and unmet needs of cancer support group leaders, or how to best support them. This study will:
a) clarify the needs of cancer group leaders
b) design and evaluate two interventions (mi ....Meeting the needs of cancer support group leaders. Social support plays a pivotal role in the psychological adjustment of people with cancer. Support groups provide unique input, but their outcomes are reliant on the quality and sustainability of the leaders. Internationally, little is known about the challenges and unmet needs of cancer support group leaders, or how to best support them. This study will:
a) clarify the needs of cancer group leaders
b) design and evaluate two interventions (minimal and intense) to meet the needs of leaders.
If successful, this study will provide the evidence on which cancer organizations around the world can base interventions to sustain cancer support group leaders and thus hopefully improve psychological outcomes for cancer patients and their carers.Read moreRead less
Multiple perspectives on sexuality and intimacy post-cancer, leading to the development and evaluation of supportive interventions. In 2006, over 106,000 new cases of cancer were diagnosed in Australia, impacting on the quality of life of patients and their partners. A significant proportion of couples report cessation of sexual and intimate contact post-cancer, resulting in considerable distress. To date, there has been no examination of this important health concern across a broad range of can ....Multiple perspectives on sexuality and intimacy post-cancer, leading to the development and evaluation of supportive interventions. In 2006, over 106,000 new cases of cancer were diagnosed in Australia, impacting on the quality of life of patients and their partners. A significant proportion of couples report cessation of sexual and intimate contact post-cancer, resulting in considerable distress. To date, there has been no examination of this important health concern across a broad range of cancer types, from the perspective of patients and their partners. Equally, support services rarely address sexuality issues post-cancer. This project will benefit people with cancer and their partners through examining pathways to distress, and developing programs to facilitate re-negotiation of sexuality and intimacy, post-cancer.Read moreRead less
A Model of Integrated Care for Dependant Older People Living in the Community. This research offers significant economic, health and social benefits. Promoting and maintaining good health and ageing well, ageing productively are national priority areas. Case management and telemedicine are both recognised strategies to support chronic disease self-management. Early intervention can offer significant benefits in morbidity and mortality. Enhanced service delivery using an integrated model encompas ....A Model of Integrated Care for Dependant Older People Living in the Community. This research offers significant economic, health and social benefits. Promoting and maintaining good health and ageing well, ageing productively are national priority areas. Case management and telemedicine are both recognised strategies to support chronic disease self-management. Early intervention can offer significant benefits in morbidity and mortality. Enhanced service delivery using an integrated model encompassing general practitioners, practice nurses and community carers, could improve chronic and complex disease management and reduce health costs.Read moreRead less
Negotiating the Challenge of Cultural Diversity in Children's Health Care: The Australian Context. The increasing population of culturally and linguistically diverse (CALD) Australians creates challenges which research to date has only partially identified and addressed. In particular, family dynamics, parenting practices and culturally specific beliefs regarding illness in childhood influence and at times severely inhibit effective access to all aspects of our health care system. Employing qual ....Negotiating the Challenge of Cultural Diversity in Children's Health Care: The Australian Context. The increasing population of culturally and linguistically diverse (CALD) Australians creates challenges which research to date has only partially identified and addressed. In particular, family dynamics, parenting practices and culturally specific beliefs regarding illness in childhood influence and at times severely inhibit effective access to all aspects of our health care system. Employing qualitative and quantitative methods, this project will generate Australian evidence-based research by mapping the range of cultural practices at the interface of health service provision, providing culturally appropriate and relevant data to inform policy, planning and resourcing of health services for CALD children and parents/carers in NSW.Read moreRead less
The emotional and social burden of caring for a young child with complex health needs. The National Agenda for Early Childhood and the Stronger Families and Community Strategy provide a framework for achieving efficient and effective outcomes in early childhood. This project will contribute to those strategies by gaining an understanding of the currently unknown issues faced by the group of families of young infants and children with complex health needs in a variety of geographic, community and ....The emotional and social burden of caring for a young child with complex health needs. The National Agenda for Early Childhood and the Stronger Families and Community Strategy provide a framework for achieving efficient and effective outcomes in early childhood. This project will contribute to those strategies by gaining an understanding of the currently unknown issues faced by the group of families of young infants and children with complex health needs in a variety of geographic, community and service settings, and the government supported services required. The identification of risk and resilience factors will enable the early detection of children at 'high-risk' and provide the opportunity to implement preventative and early intervention programs.Read moreRead less
Cluster randomised control trial of an early childhood literacy intervention to improve literacy and language outcomes in preschool aged children. Reading failure disproportionately affects disadvantaged communities in Australia, with nearly 40% of poor children failing to read at the minimum reading benchmark in Grade three. Of more concern is the disturbing trend indicating that prior to first grade, socioeconomic status (SES) differences also exist in important antecedents of reading such as ....Cluster randomised control trial of an early childhood literacy intervention to improve literacy and language outcomes in preschool aged children. Reading failure disproportionately affects disadvantaged communities in Australia, with nearly 40% of poor children failing to read at the minimum reading benchmark in Grade three. Of more concern is the disturbing trend indicating that prior to first grade, socioeconomic status (SES) differences also exist in important antecedents of reading such as letter knowledge and phonological processing skills, yet there remains no universal program to promote early language and literacy practices in the primary care setting. We propose a cluster randomised controlled trial to evaluate the efficacy of a multi injection intervention to improve literacy outcomes of children in disadvantaged communities.Read moreRead less
Cultural Diversity, Community and Family Services: Experiences among Culturally and Linguistically Diverse parents of local early childhood services. The evidence is clear that strong communities and effective early intervention strategies play a key role in preventing social disadvantage later in a child's life. Through the provision of high quality training to a doctoral student, this project will have significant benefits at many levels of policy and government. Local, state and federal gover ....Cultural Diversity, Community and Family Services: Experiences among Culturally and Linguistically Diverse parents of local early childhood services. The evidence is clear that strong communities and effective early intervention strategies play a key role in preventing social disadvantage later in a child's life. Through the provision of high quality training to a doctoral student, this project will have significant benefits at many levels of policy and government. Local, state and federal governments and family service providers will have the opportunity to see the effectiveness of their services on parents over an extended period of time and to learn from the project about new strategies that may be deployed to assist culturally diverse families in their communities. Read moreRead less
Pharmaceutical Promotion: Productive or Problematic? Pharmaceutical promotion is an issue of importance for all Australians. Pharmaceuticals are central to maintaining the health of Australians and with factors such as an ageing population and technological advances the centrality of pharmaceuticals is likely to be consolidated. A major future challenge will be how to provide pharmaceuticals efficiently, equitably and sustainably. Problematic pharmaceutical promotion such as 'disease-mongering' ....Pharmaceutical Promotion: Productive or Problematic? Pharmaceutical promotion is an issue of importance for all Australians. Pharmaceuticals are central to maintaining the health of Australians and with factors such as an ageing population and technological advances the centrality of pharmaceuticals is likely to be consolidated. A major future challenge will be how to provide pharmaceuticals efficiently, equitably and sustainably. Problematic pharmaceutical promotion such as 'disease-mongering' potentially compromises PBS efficiency and threatens sustainability. The proposed project represents a significant empirical contribution to understanding the impact of pharmaceutical promotion on the PBS and will make a significant contribution towards making the PBS sustainableRead moreRead less