Discovery Early Career Researcher Award - Grant ID: DE120100488
Funder
Australian Research Council
Funding Amount
$375,000.00
Summary
When should health professionals override parents' decisions about a child's medical treatment? Doctors and nurses sometimes disagree with parents' decisions about the best treatment for a sick child. This project will establish the ethical responsibilities of both parents and health professionals in relation to medical decision-making for children.
Discovery Early Career Researcher Award - Grant ID: DE150101390
Funder
Australian Research Council
Funding Amount
$363,536.00
Summary
Invasive Synthetic Biomedical Brain Device: Ethical and Policy Implications. The use of novel, invasive, synthetic, biomedical brain technologies such as predictable brain devices, 3D printed biomaterials, additive-bio-fabricated materials, and drug delivery systems have raised unprecedented ethical issues for research. Given the therapeutic potential and high risk of harm associated with synthetic biomedical applications, it is critical to identify the ethical issues before these novel applicat ....Invasive Synthetic Biomedical Brain Device: Ethical and Policy Implications. The use of novel, invasive, synthetic, biomedical brain technologies such as predictable brain devices, 3D printed biomaterials, additive-bio-fabricated materials, and drug delivery systems have raised unprecedented ethical issues for research. Given the therapeutic potential and high risk of harm associated with synthetic biomedical applications, it is critical to identify the ethical issues before these novel applications are widely used in human clinical trials. This project aims to explore how research trial guidelines can address the ethical issues raised by these new brain applications.Read moreRead less
Two new strategies that use anti-HIV drugs for prevention have been proven effective in recent trials. This increases prevention options but may pose challenges to ‘safe sex culture’. This fellowship will analyse ethical aspects of new HIV prevention strategies by exploring how Australians with or at high risk of HIV understand and incorporate new forms of HIV prevention into sexual negotiation. It will also examine how new prevention strategies affect laws that criminalise HIV transmission.
Defining disease: Addressing the problem of overdiagnosis. This project will investigate and define the limits of physical disease, to answer questions about when a presentation is a disease, and when it is simply a risk factor or mild condition. The ensuing account of disease will make a practical contribution to growing international concern about asymptomatic people being diagnosed and treated for conditions that will not cause any health problems ("overdiagnosis"). The research will provide ....Defining disease: Addressing the problem of overdiagnosis. This project will investigate and define the limits of physical disease, to answer questions about when a presentation is a disease, and when it is simply a risk factor or mild condition. The ensuing account of disease will make a practical contribution to growing international concern about asymptomatic people being diagnosed and treated for conditions that will not cause any health problems ("overdiagnosis"). The research will provide normative grounds for evaluating disease claims. Results will reduce the harm caused by people receiving treatment that they do not require, make a practical contribution to debates about the scope of health care, and yield findings that can help to reduce the cost-burdens associated with overdiagnosis.Read moreRead less
Patient non-compliance, such as the failure to take prescribed medicines, reduces the potential benefits of healthcare and represents a major cost to the public healthcare system. A financial incentive for patient compliance is one method which has been used to attempt to reduce this public health cost. However, the use of financial incentives has been viewed as unethical. This thesis aims to critically evaluate the main ethical objections to the use of such incentives.
Telling the truth to seriously ill children. This project aims to investigate how doctors and parents give information to young children who have serious medical conditions. Ethical and clinical guidelines agree that even young children should be given open, accurate and honest information in a developmentally appropriate way. However, doctors find this a challenging and uncertain area, and children do not receive open communication. This project aims to understand factors influencing the doctor ....Telling the truth to seriously ill children. This project aims to investigate how doctors and parents give information to young children who have serious medical conditions. Ethical and clinical guidelines agree that even young children should be given open, accurate and honest information in a developmentally appropriate way. However, doctors find this a challenging and uncertain area, and children do not receive open communication. This project aims to understand factors influencing the doctors and parents‘ real-life decisions of what and when to tell a child; undertake a practical ethical analysis; and produce practical guidelines and educational resources for parents and doctors. This project intends to improve the experience for young children being treated for serious medical conditions and their families.Read moreRead less
The ethics of altering children. Parents sometimes request surgery or drug therapy to change a child's physical appearance. This project will provide ethical guidance to doctors and policy makers about ethically appropriate ways to respond to such requests.
Manufacturing consensus: Independence in consensus statements in health. The project plans to conduct the first international systematic inquiry into the value, use and protection of public interest in consensus statements in health. Consensus statements based on scientific evidence are a useful platform to progress policy and practice in an environment of uncertainty. Consensus statements acknowledge both the importance of evidence but also the imperatives for action. However, there is concern ....Manufacturing consensus: Independence in consensus statements in health. The project plans to conduct the first international systematic inquiry into the value, use and protection of public interest in consensus statements in health. Consensus statements based on scientific evidence are a useful platform to progress policy and practice in an environment of uncertainty. Consensus statements acknowledge both the importance of evidence but also the imperatives for action. However, there is concern that they are inefficient, easily co-opted by interest groups and have changed the way the enterprise of science is perceived. The project aims to help inform future processes for improving the incorporation of evidence in policy and practice in a way that balances pragmatic, scientific and public concerns.Read moreRead less