Special Research Initiatives - Grant ID: SR0354803
Funder
Australian Research Council
Funding Amount
$10,000.00
Summary
Interdisciplinary Network for Research into the Ethical, Legal and Social Aspects of Health (ELSAH). Australia lacks a national academic forum to consider issues involving biotechnology, health resource allocation, (bio)ethics and citizenship. This project will
- establish an interdisciplinary network for research into the social, legal and ethical dimensions of healthcare, biotechnology and medical science;
- co-ordinate this expertise in the national interest;
- assist policy makers, resear ....Interdisciplinary Network for Research into the Ethical, Legal and Social Aspects of Health (ELSAH). Australia lacks a national academic forum to consider issues involving biotechnology, health resource allocation, (bio)ethics and citizenship. This project will
- establish an interdisciplinary network for research into the social, legal and ethical dimensions of healthcare, biotechnology and medical science;
- co-ordinate this expertise in the national interest;
- assist policy makers, researchers, technology developers and communities to make informed decisions, and
- make health systems more equitable and socially acceptable.
This in turn will build trust, foster informed debate, increase community input into health policy, and help us understand complex social systems and examine the values embedded in them.
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Big-Picture Bioethics: policy-making and liberal democracy. We live an era of rapid growth in biotechnology generating new and difficult ethical questions that need to be tackled by bioethicists and politicians. This project goes beyond typical approaches in bioethics to explore the "big picture": how policies are generated in ethically-contentious domains. It is important to examine how the values of different stakeholders are reflected in such processes to ensure that they are in accordance wi ....Big-Picture Bioethics: policy-making and liberal democracy. We live an era of rapid growth in biotechnology generating new and difficult ethical questions that need to be tackled by bioethicists and politicians. This project goes beyond typical approaches in bioethics to explore the "big picture": how policies are generated in ethically-contentious domains. It is important to examine how the values of different stakeholders are reflected in such processes to ensure that they are in accordance with Australia's commitment to fostering a multicultural, pluralistic, democratic society. This project will produce practical recommendations for refining public consultation in healthcare policy-making through an examination of three relevant contentious case studies in Australia with comparison to Canada.Read moreRead less
Consent in the void: moral, legal and community values in decisions about human biological donations. This project will improve consent procedures for embryo and organ donation. This will increase the autonomy of those consenting, the quality of consent that is given, and increase public trust in the processes of embryo and organ donation. The legal and moral status of the wishes of the newly dead or embryo donors and will be clarified thereby increasing the quality of consent processes for all ....Consent in the void: moral, legal and community values in decisions about human biological donations. This project will improve consent procedures for embryo and organ donation. This will increase the autonomy of those consenting, the quality of consent that is given, and increase public trust in the processes of embryo and organ donation. The legal and moral status of the wishes of the newly dead or embryo donors and will be clarified thereby increasing the quality of consent processes for all involved. By including community values in addition to the legal and moral issues, this project will make well-founded recommendations for the development of laws, policies and guidelines in relation to decisions about frozen embryos and the newly dead.Read moreRead less
Can and should we link data at a national level? Vaccine safety surveillance: A case study. This project provides many benefits for the community, exploring the legal and ethical issues around consent for data linkage, convening Citizens' Juries to weigh the evidence and make recommendations. It addresses National Research Priorities: Promoting and Maintaining Good Health and Safeguarding Australia as well as National Collaborative Research Infrastructure Strategy priorities. It uses vaccine sa ....Can and should we link data at a national level? Vaccine safety surveillance: A case study. This project provides many benefits for the community, exploring the legal and ethical issues around consent for data linkage, convening Citizens' Juries to weigh the evidence and make recommendations. It addresses National Research Priorities: Promoting and Maintaining Good Health and Safeguarding Australia as well as National Collaborative Research Infrastructure Strategy priorities. It uses vaccine safety surveillance as a case study to evaluate the effectiveness of data linkage (through linking Commonwealth immunisation data to state hospital data) and the methodologies and lessons learnt from cross jurisdictional data linkage can be transferred to other areas. Read moreRead less
Special Research Initiatives - Grant ID: SR0354508
Funder
Australian Research Council
Funding Amount
$10,000.00
Summary
A collaboration to study organisational and social factors of work practice change to reduce risk of harm in healthcare. Preventing harm is a national priority in healthcare and research. Recent studies that quantified the extent of healthcare error has focussed policy attention on technical solutions to manage risk. This focus has not brought hoped-for sustainable improvement because the often-invisible environmental barriers to change have not been identified and addressed. A cross-disciplin ....A collaboration to study organisational and social factors of work practice change to reduce risk of harm in healthcare. Preventing harm is a national priority in healthcare and research. Recent studies that quantified the extent of healthcare error has focussed policy attention on technical solutions to manage risk. This focus has not brought hoped-for sustainable improvement because the often-invisible environmental barriers to change have not been identified and addressed. A cross-disciplinary collaboration of academics, consumers and industry partners will link to investigate the organisational, social and psychological factors that facilitate or impede change and the conditions under which sustainable improvement can be achieved. The collaboration is unique. Economic, industrial, societal and professional outcomes with international implications are expected.Read moreRead less
Citizens' juries: enabling effective influenza pandemic policy through engagement with the community. The project will provide information and practical guidance to assist with South Australian pandemic management specifically and will have implications for the state and national disaster planning generally. The project will provide resources for both state and national policy makers in the form of technical reports and comprehensive public health information modules appropriate for disseminatio ....Citizens' juries: enabling effective influenza pandemic policy through engagement with the community. The project will provide information and practical guidance to assist with South Australian pandemic management specifically and will have implications for the state and national disaster planning generally. The project will provide resources for both state and national policy makers in the form of technical reports and comprehensive public health information modules appropriate for dissemination to the wider Australian community. The project will contribute to increased community awareness of pandemic influenza and enhanced community acceptance of (and cooperation with) pandemic management plans while establishing a mechanism for future pandemic and disaster policy planning and evaluation.Read moreRead less