Improving The Mental Health Outcomes Of People With Intellectual Disability
Funder
National Health and Medical Research Council
Funding Amount
$1,189,979.00
Summary
Australians with intellectual disability (ID) have very high rates of mental illness but experience very poor access to mental health services. Our research will develop a sound evidence base on the profile of mental ill health, service use, pathways to care and mental health policy for people with intellectual disability. Together with consumers and support persons we will examine ways to improve mental health services for people with intellectual disability.
Quality and outcomes of individual supported living arrangements for adults with intellectual and developmental disabilities. This project identifies service quality aspects contributing to positive outcomes in individual supported living arrangements that enable adults with developmental disabilities to live in their own homes. 150 arrangements will be evaluated across Western Australia, New South Wales and Victoria, providing evidence of service quality in support of people with disability hav ....Quality and outcomes of individual supported living arrangements for adults with intellectual and developmental disabilities. This project identifies service quality aspects contributing to positive outcomes in individual supported living arrangements that enable adults with developmental disabilities to live in their own homes. 150 arrangements will be evaluated across Western Australia, New South Wales and Victoria, providing evidence of service quality in support of people with disability having choice and control in their living arrangements.Read moreRead less
3D Printed Food for People with Swallowing Disability. This project aims to identify ways that 3D food printing (additive manufacturing using real food in a device like a ink-jet printer) could be used to improve the visual appeal of puree meals for people with swallowing difficulty, who make up ~8% of the world's population. This study will be the first to include people with swallowing disability (e.g., related to cerebral palsy, stroke, older age) and their supporters in examining the views a ....3D Printed Food for People with Swallowing Disability. This project aims to identify ways that 3D food printing (additive manufacturing using real food in a device like a ink-jet printer) could be used to improve the visual appeal of puree meals for people with swallowing difficulty, who make up ~8% of the world's population. This study will be the first to include people with swallowing disability (e.g., related to cerebral palsy, stroke, older age) and their supporters in examining the views and experiences of stakeholders on the impact of 3D food printing on quality of life, enjoyment, participation, and safety. Outcomes include new knowledge on factors affecting the implementation of 3D food printing in disability and aged care services, to inform policy, practice, and future research.Read moreRead less
Disaster risk reduction practices that leave nobody behind. This project aims to answer critical questions about how to assist people with disabilities (PWD) in disasters, what their support needs are and how they might help themselves to better prepare for disasters. Significance includes coupling a person-centred emergency preparedness tool with cross-sectoral processes to collect and use data about the support needs of PWD in emergencies, increase cross-sector communication and collaboration ....Disaster risk reduction practices that leave nobody behind. This project aims to answer critical questions about how to assist people with disabilities (PWD) in disasters, what their support needs are and how they might help themselves to better prepare for disasters. Significance includes coupling a person-centred emergency preparedness tool with cross-sectoral processes to collect and use data about the support needs of PWD in emergencies, increase cross-sector communication and collaboration between emergency managers and community services, and improve equitable access for PWD to community-level disaster risk reduction (DRR). The expected outcome will be the co-design of effective mechanisms that state & federal decision makers can use to scale-up disability-inclusive DRR across Australia.Read moreRead less
Global dementias: Examining structural vulnerability and dementia outcomes. This project aims to examine the social and cultural dimensions of dementia by using a comparative ethnographic approach to examine the experiences of people living with dementia in Australia, Malaysia and India. The project expects to generate new anthropological knowledge about structural inequalities by examining how dementia is responded to in diverse geographic, cultural and social settings. Expected outcomes of thi ....Global dementias: Examining structural vulnerability and dementia outcomes. This project aims to examine the social and cultural dimensions of dementia by using a comparative ethnographic approach to examine the experiences of people living with dementia in Australia, Malaysia and India. The project expects to generate new anthropological knowledge about structural inequalities by examining how dementia is responded to in diverse geographic, cultural and social settings. Expected outcomes of this project include the creation of a new evidence-base on dementia and the production of briefing documents to guide global health frameworks. The project should provide significant benefits for people living with dementia by providing locally-relevant strategies to respond to dementia and resultant disability.Read moreRead less
A toolkit to build the capacity of disability staff to assist adults with intellectual disability to understand and plan for their end of life. Adults with intellectual disability lack information about death and opportunities to discuss their concerns and wishes. This project will develop and trial a toolkit about end of life to train disability staff. Trained staff will use the toolkit with adults with intellectual disability to help them to understand and plan for end of life and death.
Post-parental housing transitions among adults with intellectual disability. This project aims to address the urgent issue of growing numbers of older people with intellectual disability (ID) outliving their parent carers who have not put future care plans in place. This project expects to generate a national evidence-based framework for ensuring successful post-parental housing and care transitions. By using a three-phase mixed methodology design in three Australian cities, expected outcomes of ....Post-parental housing transitions among adults with intellectual disability. This project aims to address the urgent issue of growing numbers of older people with intellectual disability (ID) outliving their parent carers who have not put future care plans in place. This project expects to generate a national evidence-based framework for ensuring successful post-parental housing and care transitions. By using a three-phase mixed methodology design in three Australian cities, expected outcomes of the project include the development of an Australian-first evidence-based resource kit which should provide significant benefits for older people with ID, their family carers and the disability sector, in terms of planning for post-parental housing and care transitions.Read moreRead less
Discovery Early Career Researcher Award - Grant ID: DE190101512
Funder
Australian Research Council
Funding Amount
$383,960.00
Summary
Inclusive community planning for people with disabilities in regional areas. This project aims to produce new knowledge to foster inclusion of people with disabilities in local community planning practice in regional areas. Exclusion of people with disabilities in local communities persists despite the national disability reform agenda. This project will place spatial justice thinking and critical disability theory within a community planning and development context to examine the concept as a s ....Inclusive community planning for people with disabilities in regional areas. This project aims to produce new knowledge to foster inclusion of people with disabilities in local community planning practice in regional areas. Exclusion of people with disabilities in local communities persists despite the national disability reform agenda. This project will place spatial justice thinking and critical disability theory within a community planning and development context to examine the concept as a scaled phenomenon. Using participatory research methods, the project will directly engage persons with disabilities and community planners in co-producing an adaptive model of practice. The project outcomes will help to create more inclusive, healthy, and resilient communities that enable people with disabilities to lead ordinary and fulfilling lives.Read moreRead less
NDIS: Rhetoric versus Reality? This project aims to explore the realities of living with intellectual disability in Australia, and the impact of individualised funding arising from the introduction of the NDIS. The study will examine, within this era of disability reform, how people with intellectual disability are having their needs met, and the extent to which they are involved in decision-making about their lives. The study will be conducted over three years using a mixed method design. It wi ....NDIS: Rhetoric versus Reality? This project aims to explore the realities of living with intellectual disability in Australia, and the impact of individualised funding arising from the introduction of the NDIS. The study will examine, within this era of disability reform, how people with intellectual disability are having their needs met, and the extent to which they are involved in decision-making about their lives. The study will be conducted over three years using a mixed method design. It will specifically examine the relationship between self-directed individualised funding and its effect on personal well-being, self-esteem and voice, choice and control. People with intellectual disability will act as co-researchers within the study.Read moreRead less
Centre Of Research Excellence In Disability And Health
Funder
National Health and Medical Research Council
Funding Amount
$2,487,345.00
Summary
The first research centre of its kind internationally, the CRE in Disability and Health brings together a first-rate team of national and international researchers with influential stakeholders. We will create the evidence needed to guide social and health policy reform with the explicit intent of improving the health of working age disabled Australians. We will produce an exceptional research workforce equipped to make large-scale, ongoing contributions to the field of disability and health.