Support services for people with intellectual disability: the cost of meeting and not meeting the need. Presently, governments in Australia operate in the absence of rigorous empirical data on the real cost of providing and not providing the support that people with intellectual disability need in order to participate in the life of our community. This research will provide unique information which will be of value to governments as they assess policy frameworks and budget priorities associate ....Support services for people with intellectual disability: the cost of meeting and not meeting the need. Presently, governments in Australia operate in the absence of rigorous empirical data on the real cost of providing and not providing the support that people with intellectual disability need in order to participate in the life of our community. This research will provide unique information which will be of value to governments as they assess policy frameworks and budget priorities associated with the provision of support services that people with intellectual disability and their families need. The contribution this research will make to government decision making will ultimately benefit all people with intellectual disability, their families and our community.Read moreRead less
Investigating and promoting resilience in children with intellectual disabilities. Disability is a significant risk factor that threatens health and well-being. For the estimated 4% of 0-14 year old children with diagnosed intellectual disabilities in Australia, early intervention is crucial for promoting resilience and preventing an accumulation of risk. By promoting resilience and thereby reducing the cost of lifelong support, evidence-based interventions produce huge social and economic benef ....Investigating and promoting resilience in children with intellectual disabilities. Disability is a significant risk factor that threatens health and well-being. For the estimated 4% of 0-14 year old children with diagnosed intellectual disabilities in Australia, early intervention is crucial for promoting resilience and preventing an accumulation of risk. By promoting resilience and thereby reducing the cost of lifelong support, evidence-based interventions produce huge social and economic benefits for the nation, as well as for individuals, families and communities.Read moreRead less
Withholding and withdrawing life-sustaining treatment from adults lacking capacity: Enhancing medical decision-making through doctors' compliance with the law. This project will enhance medical decision-making about the provision of life-sustaining treatment to adults without decision-making capacity through improved compliance with the law. This will advance patients' autonomy and dignity, protect vulnerable adults whose lives may be wrongly ended because of inappropriate treatment decisions a ....Withholding and withdrawing life-sustaining treatment from adults lacking capacity: Enhancing medical decision-making through doctors' compliance with the law. This project will enhance medical decision-making about the provision of life-sustaining treatment to adults without decision-making capacity through improved compliance with the law. This will advance patients' autonomy and dignity, protect vulnerable adults whose lives may be wrongly ended because of inappropriate treatment decisions and avoid litigation for doctors and hospitals. The project also aims to improve the quality of the law by resolving legal ambiguity and proposing reforms. This will further enhance the quality of decision-making, and will reduce defensive medicine and the cost of complying with the law, leading to savings in health expenditure.Read moreRead less
People with Mental Health Disorders and Cognitive Disabilities in the Criminal Justice System. Over 40 000 people are imprisoned in Australia each year, almost half of them in NSW. 40% males and 60% females involved in the NSW CJS have a MHD or CD with many having a dual diagnosis. The appropriateness of the arrest and imprisonment of many people with MHDCD is currently of serious public, social and professional concern. Interventions are hampered by lack of an overall and longitudinal appreciat ....People with Mental Health Disorders and Cognitive Disabilities in the Criminal Justice System. Over 40 000 people are imprisoned in Australia each year, almost half of them in NSW. 40% males and 60% females involved in the NSW CJS have a MHD or CD with many having a dual diagnosis. The appropriateness of the arrest and imprisonment of many people with MHDCD is currently of serious public, social and professional concern. Interventions are hampered by lack of an overall and longitudinal appreciation of the CJS's impact upon and interaction with such people.This study will provide integrated information for the first time in Australia and give CJS and human service agencies a coherent picture of the involvement of people with MHDCD in the CJS, which will assist development of new interventions to address duty of care and human rights.Read moreRead less
Vision impairment and quality of life: The development of a new education and self-management program. Vision impairment affects participation in daily living and quality of life. To encourage health aging and meet the needs of an increasing number of older people requiring vision-related services, a self-management program is proposed. It aims to educate participants about low vision, self-management strategies (problem-solving skills, ways of coping emotionally), and self-care. The program ....Vision impairment and quality of life: The development of a new education and self-management program. Vision impairment affects participation in daily living and quality of life. To encourage health aging and meet the needs of an increasing number of older people requiring vision-related services, a self-management program is proposed. It aims to educate participants about low vision, self-management strategies (problem-solving skills, ways of coping emotionally), and self-care. The program is a bio-psychosocial approach designed to empower individuals to manage low vision effectively, increase self-efficacy, maintain good health and improve life quality. The results will be used to develop an improved model of care for people with impaired vision.Read moreRead less
Accommodating the Needs of People with Lifelong Intellectual Disability in Residential Aged Care. Unique challenges face the residential aged care system because of the increased life expectancy of people with life-long intellectual disability and the likelihood of their premature ageing. Although this group is recognised by Federal and State governments as requiring specific and special service arrangements, little is known about adapting disability and aged care services to their needs, thus p ....Accommodating the Needs of People with Lifelong Intellectual Disability in Residential Aged Care. Unique challenges face the residential aged care system because of the increased life expectancy of people with life-long intellectual disability and the likelihood of their premature ageing. Although this group is recognised by Federal and State governments as requiring specific and special service arrangements, little is known about adapting disability and aged care services to their needs, thus program development is in its early stages. This research will inform the development of policy and programs in the Aged Care, Disability and Health sectors with the aim of improving the quality of life for people with intellectual disability as they age.Read moreRead less
Moving beyond crisis management: Creating a future for people with disabilities living with ageing parents. The needs of thousands of people with disabilities being cared for by ageing parents are beyond the capacity of our existing formal mechanisms for providing care. In order to mitigate this national crisis in support, this research will establish effective, resource efficient support strategies where there are currently no plans in place for future care arrangements. By enhancing the capaci ....Moving beyond crisis management: Creating a future for people with disabilities living with ageing parents. The needs of thousands of people with disabilities being cared for by ageing parents are beyond the capacity of our existing formal mechanisms for providing care. In order to mitigate this national crisis in support, this research will establish effective, resource efficient support strategies where there are currently no plans in place for future care arrangements. By enhancing the capacity of the community to provide support the benefit of existing formal supports will be extended to address the needs of more families. This project will position Australian disability research and support at the forefront of international efforts to legitimize the claim of people with disabilities and their families on community resources.Read moreRead less
Maintaining family-based placement for children and young people with disabilities. Aim: To enable families to continue caring at home for children with severe disabilities.
Significance: These families face significant challenges in juggling the demands of work, family and care to the extent that one in four decide to relinquish the care of their child. This leaves more than 37,000 children in Australia at risk of not growing up in their family home.
Expected outcomes: A psychometrically sou ....Maintaining family-based placement for children and young people with disabilities. Aim: To enable families to continue caring at home for children with severe disabilities.
Significance: These families face significant challenges in juggling the demands of work, family and care to the extent that one in four decide to relinquish the care of their child. This leaves more than 37,000 children in Australia at risk of not growing up in their family home.
Expected outcomes: A psychometrically sound instrument that will identify families struggling to care for their children at home, and a family and practitioner guide of innovative solutions to maintaining family-based placements.
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Implementing and evaluating the Life Needs Model for young people with cerebral palsy. This study will provide evidence of a quantitative and qualitative nature about the access and engagement of people with cerebral palsy utilising a life needs model approach. The benefits are expected to be a decrease in dependency and a move towards greater interdependency, social inclusion, productivity and sustainability for people with cerebral palsy.
Novel Early Warning System for Hypoglycaemia. An innovative technique will be developed for early detection of low blood glucose level (hypoglycaemia), a life-threatening complication affecting millions of people with Type 1 diabetes worldwide. Real-time analysis of the effectiveness of skin impedance, ECG (in particular heart rate and QT interval), and EEG (alpha wave) will be combined with robust adaptive neural networks to provide a novel theoretical and practical basis for developing a non-i ....Novel Early Warning System for Hypoglycaemia. An innovative technique will be developed for early detection of low blood glucose level (hypoglycaemia), a life-threatening complication affecting millions of people with Type 1 diabetes worldwide. Real-time analysis of the effectiveness of skin impedance, ECG (in particular heart rate and QT interval), and EEG (alpha wave) will be combined with robust adaptive neural networks to provide a novel theoretical and practical basis for developing a non-invasive hypoglycaemia monitor. This device has the potential to save lives, improve quality of life for people with diabetes and their carers, and put Australia at the forefront in this $US5 billion pa industry.Read moreRead less