Regulating Autologous Stem Cell Therapies in Australia. This project aims to develop an ethical and regulatory framework for the use of autologous adult stem cell therapies in Australia. These therapies are increasingly being offered to patients for diseases and conditions that lack scientific evidence of safety and efficacy. This study aims to address this problem using a mixed methods approach to generate empirical data and theoretical, ethical and legal insights that will guide the responsibl ....Regulating Autologous Stem Cell Therapies in Australia. This project aims to develop an ethical and regulatory framework for the use of autologous adult stem cell therapies in Australia. These therapies are increasingly being offered to patients for diseases and conditions that lack scientific evidence of safety and efficacy. This study aims to address this problem using a mixed methods approach to generate empirical data and theoretical, ethical and legal insights that will guide the responsible development, translation and regulation of innovative stem cell therapies in Australia and internationally. Anticipated outcomes will improve patient advocacy and public knowledge about adult stem cell therapies, and facilitate better relationships between patients, researchers and clinicians.Read moreRead less
Consent in the void: moral, legal and community values in decisions about human biological donations. This project will improve consent procedures for embryo and organ donation. This will increase the autonomy of those consenting, the quality of consent that is given, and increase public trust in the processes of embryo and organ donation. The legal and moral status of the wishes of the newly dead or embryo donors and will be clarified thereby increasing the quality of consent processes for all ....Consent in the void: moral, legal and community values in decisions about human biological donations. This project will improve consent procedures for embryo and organ donation. This will increase the autonomy of those consenting, the quality of consent that is given, and increase public trust in the processes of embryo and organ donation. The legal and moral status of the wishes of the newly dead or embryo donors and will be clarified thereby increasing the quality of consent processes for all involved. By including community values in addition to the legal and moral issues, this project will make well-founded recommendations for the development of laws, policies and guidelines in relation to decisions about frozen embryos and the newly dead.Read moreRead less
Discovery Early Career Researcher Award - Grant ID: DE150101390
Funder
Australian Research Council
Funding Amount
$363,536.00
Summary
Invasive Synthetic Biomedical Brain Device: Ethical and Policy Implications. The use of novel, invasive, synthetic, biomedical brain technologies such as predictable brain devices, 3D printed biomaterials, additive-bio-fabricated materials, and drug delivery systems have raised unprecedented ethical issues for research. Given the therapeutic potential and high risk of harm associated with synthetic biomedical applications, it is critical to identify the ethical issues before these novel applicat ....Invasive Synthetic Biomedical Brain Device: Ethical and Policy Implications. The use of novel, invasive, synthetic, biomedical brain technologies such as predictable brain devices, 3D printed biomaterials, additive-bio-fabricated materials, and drug delivery systems have raised unprecedented ethical issues for research. Given the therapeutic potential and high risk of harm associated with synthetic biomedical applications, it is critical to identify the ethical issues before these novel applications are widely used in human clinical trials. This project aims to explore how research trial guidelines can address the ethical issues raised by these new brain applications.Read moreRead less
Ethical, Social and Regulatory Issues in Advanced Prenatal Testing. This project aims to investigate the social, ethical and regulatory issues arising with the rapid advancement and increased use of genomic non-invasive prenatal testing in early pregnancy in Australia. It expects to generate new insight into key issues such as consumer information before and after testing, consent, and equitable access to genomic health technologies in human reproduction. Expected outcomes include recommendation ....Ethical, Social and Regulatory Issues in Advanced Prenatal Testing. This project aims to investigate the social, ethical and regulatory issues arising with the rapid advancement and increased use of genomic non-invasive prenatal testing in early pregnancy in Australia. It expects to generate new insight into key issues such as consumer information before and after testing, consent, and equitable access to genomic health technologies in human reproduction. Expected outcomes include recommendations for addressing these issues, supported by ground-breaking social research and ethical and regulatory analysis. The project is expected to have major benefits, addressing the gap between policy and practice that has emerged in prenatal testing in Australia and shaping the ethics and regulation of pregnancy care.
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Reproductive Autonomy in the Genomic Age. This project aims to provide a better way to help people to think and reflect about new genetic tests in pregnancy. These tests are on the rise. Yet they are occurring in a setting that is overly individualistic and underplays problems that can come from increased information and choice. This project will involve an interdisciplinary team to generate new theoretical and practical knowledge to re-frame the concept of 'reproductive autonomy'. Expected outc ....Reproductive Autonomy in the Genomic Age. This project aims to provide a better way to help people to think and reflect about new genetic tests in pregnancy. These tests are on the rise. Yet they are occurring in a setting that is overly individualistic and underplays problems that can come from increased information and choice. This project will involve an interdisciplinary team to generate new theoretical and practical knowledge to re-frame the concept of 'reproductive autonomy'. Expected outcomes include new bioethics knowledge, innovations in research methodologies, new data and recommendations for practice. The project will provide benefits by generating the first analysis of how reproductive autonomy needs to change to ensure new tests in pregnancy are offered and used well.Read moreRead less
Rethinking animals in research: Developing a novel ethical framework. Current approaches to animal ethics face challenges addressing significant problems in animal research. These problems include: harms to research workers and animals, poor translation of results from animals to humans leading to ineffective treatments and poorly directed future research efforts. This project addresses these challenges by developing an innovative, empirically-informed relational approach to animal ethics. The n ....Rethinking animals in research: Developing a novel ethical framework. Current approaches to animal ethics face challenges addressing significant problems in animal research. These problems include: harms to research workers and animals, poor translation of results from animals to humans leading to ineffective treatments and poorly directed future research efforts. This project addresses these challenges by developing an innovative, empirically-informed relational approach to animal ethics. The new approach will deliver a novel framework that minimises harms to humans and animals, and improves the quality of results obtained from experiments. Benefits include a more ethically robust practice of animal research and more targeted deployment of finite research resources.Read moreRead less
Caring for Asylum Seekers in Australia: Bioethics and Human Rights. Australia's policy of mandatory detention has been criticised at home and abroad. This research will bring together both empirical and reflective material about that policy by those who have seen its effects first hand, which will make an important contribution to national self-definition. The research process itself will bring together practitioners who have worked in the field, many of whom have expressed the need for recordin ....Caring for Asylum Seekers in Australia: Bioethics and Human Rights. Australia's policy of mandatory detention has been criticised at home and abroad. This research will bring together both empirical and reflective material about that policy by those who have seen its effects first hand, which will make an important contribution to national self-definition. The research process itself will bring together practitioners who have worked in the field, many of whom have expressed the need for recording their experiences, and guidelines as to how to practice in the future when human rights issues form a part of clinical practice. As such, the project will contribute to other areas of healthcare where such issues are present, such as indigenous health, mental health, and the care of other vulnerable populations. Read moreRead less
Discovery Early Career Researcher Award - Grant ID: DE170100414
Funder
Australian Research Council
Funding Amount
$363,000.00
Summary
Ethics and Equity: Implications for health systems research priority-setting. The project aims to develop ethical guidance on engaging research users and beneficiaries in health systems research priority-setting. As a matter of justice, research on health systems should generate knowledge that improves access and affordability of care for disadvantaged groups, but research questions often fail to reflect the major health system issues these groups face and findings are often not used in policy a ....Ethics and Equity: Implications for health systems research priority-setting. The project aims to develop ethical guidance on engaging research users and beneficiaries in health systems research priority-setting. As a matter of justice, research on health systems should generate knowledge that improves access and affordability of care for disadvantaged groups, but research questions often fail to reflect the major health system issues these groups face and findings are often not used in policy and practice. The project will develop ethical guidance on how research users and beneficiaries should be engaged in health systems research priority-setting and benchmarks for achieving such engagement. Ethical guidance is expected to facilitate a rise in research that improves health systems for disadvantaged groups.Read moreRead less
Discovery Early Career Researcher Award - Grant ID: DE150101180
Funder
Australian Research Council
Funding Amount
$362,000.00
Summary
The neuroethics of cognitive ageing. As the workforce ages, Australian and international governments are prioritising brain health, seeking to increase economic productivity and reduce the costs of age-related cognitive decline. In addition to healthy lifestyle habits, certain neurotechnologies are being promoted as the means to protect cognitive performance. This project aims to explore the ethical issues and social pressures that ageing individuals experience as a result of cognitive ageing. U ....The neuroethics of cognitive ageing. As the workforce ages, Australian and international governments are prioritising brain health, seeking to increase economic productivity and reduce the costs of age-related cognitive decline. In addition to healthy lifestyle habits, certain neurotechnologies are being promoted as the means to protect cognitive performance. This project aims to explore the ethical issues and social pressures that ageing individuals experience as a result of cognitive ageing. Understanding later life from the perspective of ageing individuals may enable society to meet the ethical and policy challenges raised by emphasising cognitive wellbeing above other aspects in the ageing process.Read moreRead less
Discovery Early Career Researcher Award - Grant ID: DE200101301
Funder
Australian Research Council
Funding Amount
$426,023.00
Summary
The impact of micro gender biases on women's careers: the case of surgery. This project aims to investigate how small, cumulative gender biases affect women's career paths and progression in surgery, with implications for relevantly similar careers. Women surgeons show gendered patterns of subspecialty selection, experience a pay gap relative to men, and are less likely to be involved in innovation. The project will use philosophical theories of epistemic injustice and moral aggregation to provi ....The impact of micro gender biases on women's careers: the case of surgery. This project aims to investigate how small, cumulative gender biases affect women's career paths and progression in surgery, with implications for relevantly similar careers. Women surgeons show gendered patterns of subspecialty selection, experience a pay gap relative to men, and are less likely to be involved in innovation. The project will use philosophical theories of epistemic injustice and moral aggregation to provide new ways of understanding workplace gender discrimination, and qualitative methods to test their applicability in surgery. It will contribute new knowledge about invisible barriers to women’s career progression in surgery and similar careers, and make theoretical contributions to feminist epistemology and moral theory.Read moreRead less