Discovery Early Career Researcher Award - Grant ID: DE120100488
Funder
Australian Research Council
Funding Amount
$375,000.00
Summary
When should health professionals override parents' decisions about a child's medical treatment? Doctors and nurses sometimes disagree with parents' decisions about the best treatment for a sick child. This project will establish the ethical responsibilities of both parents and health professionals in relation to medical decision-making for children.
Special Research Initiatives - Grant ID: SR0354803
Funder
Australian Research Council
Funding Amount
$10,000.00
Summary
Interdisciplinary Network for Research into the Ethical, Legal and Social Aspects of Health (ELSAH). Australia lacks a national academic forum to consider issues involving biotechnology, health resource allocation, (bio)ethics and citizenship. This project will
- establish an interdisciplinary network for research into the social, legal and ethical dimensions of healthcare, biotechnology and medical science;
- co-ordinate this expertise in the national interest;
- assist policy makers, resear ....Interdisciplinary Network for Research into the Ethical, Legal and Social Aspects of Health (ELSAH). Australia lacks a national academic forum to consider issues involving biotechnology, health resource allocation, (bio)ethics and citizenship. This project will
- establish an interdisciplinary network for research into the social, legal and ethical dimensions of healthcare, biotechnology and medical science;
- co-ordinate this expertise in the national interest;
- assist policy makers, researchers, technology developers and communities to make informed decisions, and
- make health systems more equitable and socially acceptable.
This in turn will build trust, foster informed debate, increase community input into health policy, and help us understand complex social systems and examine the values embedded in them.
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Regulating Autologous Stem Cell Therapies in Australia. This project aims to develop an ethical and regulatory framework for the use of autologous adult stem cell therapies in Australia. These therapies are increasingly being offered to patients for diseases and conditions that lack scientific evidence of safety and efficacy. This study aims to address this problem using a mixed methods approach to generate empirical data and theoretical, ethical and legal insights that will guide the responsibl ....Regulating Autologous Stem Cell Therapies in Australia. This project aims to develop an ethical and regulatory framework for the use of autologous adult stem cell therapies in Australia. These therapies are increasingly being offered to patients for diseases and conditions that lack scientific evidence of safety and efficacy. This study aims to address this problem using a mixed methods approach to generate empirical data and theoretical, ethical and legal insights that will guide the responsible development, translation and regulation of innovative stem cell therapies in Australia and internationally. Anticipated outcomes will improve patient advocacy and public knowledge about adult stem cell therapies, and facilitate better relationships between patients, researchers and clinicians.Read moreRead less
Consent in the void: moral, legal and community values in decisions about human biological donations. This project will improve consent procedures for embryo and organ donation. This will increase the autonomy of those consenting, the quality of consent that is given, and increase public trust in the processes of embryo and organ donation. The legal and moral status of the wishes of the newly dead or embryo donors and will be clarified thereby increasing the quality of consent processes for all ....Consent in the void: moral, legal and community values in decisions about human biological donations. This project will improve consent procedures for embryo and organ donation. This will increase the autonomy of those consenting, the quality of consent that is given, and increase public trust in the processes of embryo and organ donation. The legal and moral status of the wishes of the newly dead or embryo donors and will be clarified thereby increasing the quality of consent processes for all involved. By including community values in addition to the legal and moral issues, this project will make well-founded recommendations for the development of laws, policies and guidelines in relation to decisions about frozen embryos and the newly dead.Read moreRead less
Discovery Early Career Researcher Award - Grant ID: DE150101390
Funder
Australian Research Council
Funding Amount
$363,536.00
Summary
Invasive Synthetic Biomedical Brain Device: Ethical and Policy Implications. The use of novel, invasive, synthetic, biomedical brain technologies such as predictable brain devices, 3D printed biomaterials, additive-bio-fabricated materials, and drug delivery systems have raised unprecedented ethical issues for research. Given the therapeutic potential and high risk of harm associated with synthetic biomedical applications, it is critical to identify the ethical issues before these novel applicat ....Invasive Synthetic Biomedical Brain Device: Ethical and Policy Implications. The use of novel, invasive, synthetic, biomedical brain technologies such as predictable brain devices, 3D printed biomaterials, additive-bio-fabricated materials, and drug delivery systems have raised unprecedented ethical issues for research. Given the therapeutic potential and high risk of harm associated with synthetic biomedical applications, it is critical to identify the ethical issues before these novel applications are widely used in human clinical trials. This project aims to explore how research trial guidelines can address the ethical issues raised by these new brain applications.Read moreRead less
Corporate Governance, Regulation and Accountability: The Role of Multinational Corporations in Delevoping Commerical Advantage from Institutional Integrity. The emerging market economies of India and China have become central to world economic growth. Despite a plethora of complex rules, regulatory reform agendas and industry-designed codes of conduct, doing business in these markets remains exceptionally problematic. Working in partnership with some of the world's leading multinational corporat ....Corporate Governance, Regulation and Accountability: The Role of Multinational Corporations in Delevoping Commerical Advantage from Institutional Integrity. The emerging market economies of India and China have become central to world economic growth. Despite a plethora of complex rules, regulatory reform agendas and industry-designed codes of conduct, doing business in these markets remains exceptionally problematic. Working in partnership with some of the world's leading multinational corporations, the project will lead to important practical and conceptual advances in the design and implementation of institutional integrity systems. This work has significant advantages for the emerging market economies and those seeking to enter into or expand their operations there. Moreover, it will add significantly to the visibility and leverage of Australian research. Read moreRead less
Investigating which strategies are most effective in overcoming the ethical problems facing information and communications technology professionals. This project will investigate what sorts of ethical problems information and communications technology (ICT) professionals commonly face at work and which strategies are most effective in solving them. An output of this project will be an interactive multimedia-rich website that will enable ICT professionals to deliberate on an ethical problem and c ....Investigating which strategies are most effective in overcoming the ethical problems facing information and communications technology professionals. This project will investigate what sorts of ethical problems information and communications technology (ICT) professionals commonly face at work and which strategies are most effective in solving them. An output of this project will be an interactive multimedia-rich website that will enable ICT professionals to deliberate on an ethical problem and come up with the best option for solving it.Read moreRead less
The Response of Australian Family law to Islamic community processes. The question of whether the Australian legal system should recognise Islamic family law processes has attracted increasing debate in recent years, reflecting similar developments in other countries. Underpinning opposition to legal recognition are concerns that such processes disadvantage Muslim women. Despite these claims, little is presently known about the impact of these processes or about the experiences of Muslim women w ....The Response of Australian Family law to Islamic community processes. The question of whether the Australian legal system should recognise Islamic family law processes has attracted increasing debate in recent years, reflecting similar developments in other countries. Underpinning opposition to legal recognition are concerns that such processes disadvantage Muslim women. Despite these claims, little is presently known about the impact of these processes or about the experiences of Muslim women who use them. This project, which combines expertise in law and religion and family law, aims to provide the first detailed empirical and normative examination of this question in Australia, offering a unique evidence base to inform future policy developments.Read moreRead less
Caring for Asylum Seekers in Australia: Bioethics and Human Rights. Australia's policy of mandatory detention has been criticised at home and abroad. This research will bring together both empirical and reflective material about that policy by those who have seen its effects first hand, which will make an important contribution to national self-definition. The research process itself will bring together practitioners who have worked in the field, many of whom have expressed the need for recordin ....Caring for Asylum Seekers in Australia: Bioethics and Human Rights. Australia's policy of mandatory detention has been criticised at home and abroad. This research will bring together both empirical and reflective material about that policy by those who have seen its effects first hand, which will make an important contribution to national self-definition. The research process itself will bring together practitioners who have worked in the field, many of whom have expressed the need for recording their experiences, and guidelines as to how to practice in the future when human rights issues form a part of clinical practice. As such, the project will contribute to other areas of healthcare where such issues are present, such as indigenous health, mental health, and the care of other vulnerable populations. Read moreRead less
A new ethics for the development and application of genetic technologies in a pluralist society. New technologies for prenatal testing and preimplantation genetic diagnosis will soon grant us an unprecedented power to choose our children's genes. This project will develop an ethical framework to govern the development and use of these technologies and thus help ensure that future Australians enjoy a healthy start to life.