Discovery Early Career Researcher Award - Grant ID: DE120100488
Funder
Australian Research Council
Funding Amount
$375,000.00
Summary
When should health professionals override parents' decisions about a child's medical treatment? Doctors and nurses sometimes disagree with parents' decisions about the best treatment for a sick child. This project will establish the ethical responsibilities of both parents and health professionals in relation to medical decision-making for children.
Reproductive Autonomy in the Genomic Age. This project aims to provide a better way to help people to think and reflect about new genetic tests in pregnancy. These tests are on the rise. Yet they are occurring in a setting that is overly individualistic and underplays problems that can come from increased information and choice. This project will involve an interdisciplinary team to generate new theoretical and practical knowledge to re-frame the concept of 'reproductive autonomy'. Expected outc ....Reproductive Autonomy in the Genomic Age. This project aims to provide a better way to help people to think and reflect about new genetic tests in pregnancy. These tests are on the rise. Yet they are occurring in a setting that is overly individualistic and underplays problems that can come from increased information and choice. This project will involve an interdisciplinary team to generate new theoretical and practical knowledge to re-frame the concept of 'reproductive autonomy'. Expected outcomes include new bioethics knowledge, innovations in research methodologies, new data and recommendations for practice. The project will provide benefits by generating the first analysis of how reproductive autonomy needs to change to ensure new tests in pregnancy are offered and used well.Read moreRead less
Telling the truth to seriously ill children. This project aims to investigate how doctors and parents give information to young children who have serious medical conditions. Ethical and clinical guidelines agree that even young children should be given open, accurate and honest information in a developmentally appropriate way. However, doctors find this a challenging and uncertain area, and children do not receive open communication. This project aims to understand factors influencing the doctor ....Telling the truth to seriously ill children. This project aims to investigate how doctors and parents give information to young children who have serious medical conditions. Ethical and clinical guidelines agree that even young children should be given open, accurate and honest information in a developmentally appropriate way. However, doctors find this a challenging and uncertain area, and children do not receive open communication. This project aims to understand factors influencing the doctors and parents‘ real-life decisions of what and when to tell a child; undertake a practical ethical analysis; and produce practical guidelines and educational resources for parents and doctors. This project intends to improve the experience for young children being treated for serious medical conditions and their families.Read moreRead less
The ethics of altering children. Parents sometimes request surgery or drug therapy to change a child's physical appearance. This project will provide ethical guidance to doctors and policy makers about ethically appropriate ways to respond to such requests.