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Identification Of The Palliative Care Needs Of Home-based People With End-stage Dementia
Funder
National Health and Medical Research Council
Funding Amount
$50,000.00
Summary
This project seeks to identify the palliative care needs of home-based people with end-stage dementia. Although the need for home-based palliative care may apply to people with dementia as well as to those with cancer and other terminal illnesses, few people with end-stage dementia receive such care. For this reason, people with dementia may experience suffering and unmet needs towards the end of life. The proposed research is important because as the population ages and the prevalence of dement ....This project seeks to identify the palliative care needs of home-based people with end-stage dementia. Although the need for home-based palliative care may apply to people with dementia as well as to those with cancer and other terminal illnesses, few people with end-stage dementia receive such care. For this reason, people with dementia may experience suffering and unmet needs towards the end of life. The proposed research is important because as the population ages and the prevalence of dementia increases, home-based care will be the preferred option for many people. Palliative care practice however is not necessarily transferable between cancer care and dementia care. The needs of people with end-stage dementia may be different to those of people with cancers because of the different trajectories and symptoms experienced. There is evidence to suggest that a palliative care approach in dementia is favoured by formal and informal carers, however the preferences of people with dementia are not known. Understanding the palliative care needs of home-based people with end-stage dementia, carers and care providers is required, hence the motivation for this inquiry.Read moreRead less
Deficits Of Insight And Judgment In Alzheimers Disease: Diagnostic Strategy And Clinical Significance
Funder
National Health and Medical Research Council
Funding Amount
$459,983.00
Summary
During the next three decades the number of persons older than 85 years will more than double, and the health care need of this burgeoning population are assuming greater importance. Recent studies suggest that the prevalence of dementia in Australia will increase from 172 000 cases in 2000 to 588 000 in 2050. This rapid increase in number of dementia cases will result in an increasing burden for caregivers, and in financial terms, for the working-age population. One of the main clinical problem ....During the next three decades the number of persons older than 85 years will more than double, and the health care need of this burgeoning population are assuming greater importance. Recent studies suggest that the prevalence of dementia in Australia will increase from 172 000 cases in 2000 to 588 000 in 2050. This rapid increase in number of dementia cases will result in an increasing burden for caregivers, and in financial terms, for the working-age population. One of the main clinical problems suffered by individuals of dementia is psychological and behavioural changes such as poor insight, irritability and apathy. These problems account for a large proportion of medical expenses, predict early institutionalization, and are associated with poor quality of life of caregivers. Unfortunately, little is known about the true frequency of problems of insight in dementia, about their impact upon caregivers, and about how to best diagnose the problems of loss of insight and judgment in this condition. Our study will examine the frequency and clinical correlates of poor insight and judgment in dementia, it will establish whether these problems predict other common behavioural problems of Alzheimer’s disease such as apathy and dangerous behaviours, and will demonstrate the reliability and validity of a specific instrument to measure insight and judgment in dementia. This will facilitate the early recognition and adequate treatment of behavioural problems in patients with dementia; it will improve patients’ quality of life, and will have a positive impact on both caregivers’ psychological well-being and on clinical practice.Read moreRead less
The Mechanism, Predictive Value And Impact Of Apathy In Patients With Alzheimers Disease And Their Caregivers
Funder
National Health and Medical Research Council
Funding Amount
$542,370.00
Summary
Behavioural and psychological symptoms of dementia have been consistently associated with increased patients’ distress, and are considered by caregivers as the most difficult symptoms to manage. Apathy is the state of loss of motivation and emotional withdrawal that occurs in a high proportion of patients with Alzheimer’s disease. These patients require more management and support, given their reliance on others to schedule their activities and initiate behaviours even when they are still capabl ....Behavioural and psychological symptoms of dementia have been consistently associated with increased patients’ distress, and are considered by caregivers as the most difficult symptoms to manage. Apathy is the state of loss of motivation and emotional withdrawal that occurs in a high proportion of patients with Alzheimer’s disease. These patients require more management and support, given their reliance on others to schedule their activities and initiate behaviours even when they are still capable of performing the activities. In spite of the high frequency of apathy in dementia and the high potential of negative effects on patients and caregivers, little is known about the cause of this phenomenon, its potential influence upon the long-term progression of Alzheimer’s disease, and on its impact upon caregivers’ emotional well-being. The main aim of our proposal is to examine the mechanism, clinical relevance and impact of apathy in Alzheimer’s disease. More specifically, we will determine whether apathy predicts more severe depression, increasing motor problems, and a faster progression of cognitive and functional problems. Using state-of-the-art neuroimaging techniques we will examine the association between apathy and abnormalities in specific brain regions. Finally, we will examine whether caregivers of patients with apathy have relatively more severe emotional problems, a higher care giving burden and poor quality of life.Read moreRead less