ORCID Profile
0000-0002-4346-3238
Current Organisations
Aging Initiative HCSRN/OAIC/NIA
,
Campbell Scientific (Canada)
,
University of Colorado Denver
,
University of Washington
,
University of South Australia
,
JBI International
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Publications
A scoping review establishes need for consensus guidance on reporting health equity in observational studies
Publisher: Elsevier BV
Date: 08-2023
Pharmacologic Treatment of Primary Osteoporosis or Low Bone Mass to Prevent Fractures in Adults: A Living Clinical Guideline From the American College of Physicians
Publisher: American College of Physicians
Date: 02-2023
DOI: 10.7326/M22-1034
Improving Social Justice in COVID-19 Health Research: Interim Guidelines for Reporting Health Equity in Observational Studies
Publisher: MDPI AG
Date: 04-09-2021
Abstract: The COVID-19 pandemic has highlighted the global imperative to address health inequities. Observational studies are a valuable source of evidence for real-world effects and impacts of implementing COVID-19 policies on the redistribution of inequities. We assembled a erse global multi-disciplinary team to develop interim guidance for improving transparency in reporting health equity in COVID-19 observational studies. We identified 14 areas in the STROBE (Strengthening the Reporting of Observational Studies in Epidemiology) checklist that need additional detail to encourage transparent reporting of health equity. We searched for ex les of COVID-19 observational studies that analysed and reported health equity analysis across one or more social determinants of health. We engaged with Indigenous stakeholders and others groups experiencing health inequities to co-produce this guidance and to bring an intersectional lens. Taking health equity and social determinants of health into account contributes to the clinical and epidemiological understanding of the disease, identifying specific needs and supporting decision-making processes. Stakeholders are encouraged to consider using this guidance on observational research to help provide evidence to close the inequitable gaps in health outcomes.
Guidance relevant to the reporting of health equity in observational research: a scoping review protocol
Publisher: BMJ
Date: 05-2022
DOI: 10.1136/BMJOPEN-2021-056875
Abstract: Health inequities are defined as unfair and avoidable differences in health between groups within a population. Most health research is conducted through observational studies, which are able to offer real-world insights about etiology, healthcare policy rogramme effectiveness and the impacts of socioeconomic factors. However, most published reports of observational studies do not address how their findings relate to health equity. Our team seeks to develop equity-relevant reporting guidance as an extension of the Strengthening the Reporting of Observational Studies in Epidemiology (STROBE) statement. This scoping review will inform the development of candidate items for the STROBE-Equity extension. We will operationalise equity-seeking populations using the PROGRESS-Plus framework of sociodemographic factors. As part of a parallel stream of the STROBE-Equity project, the relevance of candidate guideline items to Indigenous research will be led by Indigenous coinvestigators on the team. We will follow the Joanna Briggs Institute method for conducting scoping reviews. We will evaluate the extent to which the identified guidance supports or refutes our preliminary candidate items for reporting equity in observational studies. These candidate items were developed based on items from equity-reporting guidelines for randomised trials and systematic reviews, developed by members of this team. We will consult with our knowledge users, patients ublic partners and Indigenous research steering committee to invite suggestions for relevant guidance documents and interpretation of findings. If the identified guidance suggests the need for additional candidate items, they will be developed through inductive thematic analysis. We will follow a principled approach that promotes ethical codevelopment with our community partners, based on principles of cultural safety, authentic partnerships, addressing colonial structures in knowledge production and the shared ownership, interpretation, and dissemination of research. All products of this research will be published as open access.
Evaluation of the Learning to Integrate Neighborhoods and Clinical Care Project: Findings from Implementing a New Lay Role into Primary Care Teams to Address Social Determinants of Health
Publisher: The Permanente Federation
Date: 12-2018
DOI: 10.7812/TPP/18-101
Patient and Family Engaged Care: An Essential Element of Health Equity
Publisher: National Academy of Medicine
Date: 13-07-2020
DOI: 10.31478/202007A
Restoring the Story and Creating a Valuable Clinical Note
Publisher: American College of Physicians
Date: 09-2020
DOI: 10.7326/M20-0934
Nonpharmacologic and Pharmacologic Treatments of Adults in the Acute Phase of Major Depressive Disorder: A Living Clinical Guideline From the American College of Physicians
Publisher: American College of Physicians
Date: 02-2023
DOI: 10.7326/M22-2056
Engaging patients in primary care design: An evaluation of a novel approach to codesigning care
Publisher: Wiley
Date: 27-05-2019
DOI: 10.1111/HEX.12909
Abstract: Recognition is growing that to create truly patient‐centred care, health‐care organizations need to partner with patients around care design. More research into the benefits of engaging patients and the most effective ways of partnering with them is needed. This study assessed the process and impact of a collaborative effort to design a new clinic service that balanced the number of patient and clinical provider/staff codesigners involved and recruited patients to represent erse perspectives. Data sources included interviews with participants, event observation and participant surveys. Our evaluation found that including patients as equal partners improved the design process by infusing a real‐world, patient perspective. The pre‐event orientation and interactive methods used in the event fostered positive collaboration, as well as personal growth for the patient codesigners. This study demonstrated the feasibility and benefits of including a roughly equal number of patients and clinical providers/staff in design events and ensuring that the patients represent erse perspectives.
Methodological guidance for incorporating equity when informing rapid-policy and guideline development
Publisher: Elsevier BV
Date: 10-2022
Learning to “Swim” with the Experts: Experiences of Two Patient Co-Investigators for a Project Funded by the Patient-Centered Outcomes Research Institute
Publisher: The Permanente Federation
Date: 06-2016
DOI: 10.7812/TPP/15-162
Protocol for the development of guidance for stakeholder engagement in health and healthcare guideline development and implementation
Publisher: Springer Science and Business Media LLC
Date: 02-2020
DOI: 10.1186/S13643-020-1272-5
Abstract: Stakeholder engagement has become widely accepted as a necessary component of guideline development and implementation. While frameworks for developing guidelines express the need for those potentially affected by guideline recommendations to be involved in their development, there is a lack of consensus on how this should be done in practice. Further, there is a lack of guidance on how to equitably and meaningfully engage multiple stakeholders. We aim to develop guidance for the meaningful and equitable engagement of multiple stakeholders in guideline development and implementation. This will be a multi-stage project. The first stage is to conduct a series of four systematic reviews. These will (1) describe existing guidance and methods for stakeholder engagement in guideline development and implementation, (2) characterize barriers and facilitators to stakeholder engagement in guideline development and implementation, (3) explore the impact of stakeholder engagement on guideline development and implementation, and (4) identify issues related to conflicts of interest when engaging multiple stakeholders in guideline development and implementation. We will collaborate with our multiple and erse stakeholders to develop guidance for multi-stakeholder engagement in guideline development and implementation. We will use the results of the systematic reviews to develop a candidate list of draft guidance recommendations and will seek broad feedback on the draft guidance via an online survey of guideline developers and external stakeholders. An invited group of representatives from all stakeholder groups will discuss the results of the survey at a consensus meeting which will inform the development of the final guidance papers. Our overall goal is to improve the development of guidelines through meaningful and equitable multi-stakeholder engagement, and subsequently to improve health outcomes and reduce inequities in health.
Screening for Colorectal Cancer in Asymptomatic Average-Risk Adults: A Guidance Statement From the American College of Physicians (Version 2)
Publisher: American College of Physicians
Date: 08-2023
DOI: 10.7326/M23-0779
Related Organisations
British Heart Foundation
Location: United Kingdom of Great Britain and Northern Ireland
Agency For Healthcare Research And Quality
Location: United States of America
Batelle - Partnership For Quality Measurement PRMR & MSR
Location: United States of America
MPHI CrATE PCORI Disparities Project
Location: United States of America
SIREN Social Interventions Research And Evaluation Network UCSF
Location: United States of America
Related Funding Activities
No related grants have been discovered for Janice Tufte.