ORCID Profile
0000-0003-3365-8995
Current Organisation
University of South Australia
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Publisher: Te Pukenga
Date: 2020
Publisher: Emerald
Date: 12-12-2016
DOI: 10.1108/QAOA-03-2016-0015
Abstract: The purpose of this paper is to explore the indicators of quality in care for people working and living in aged residential care (ARC) settings. This research was conducted using an ethnographic design in two distinct ARC facilities in a New Zealand city, a large facility with residential, dementia and hospital level care, and a small family owned facility providing residential care only. In total, 50 hours of observational data were collected, and semi-structured interviews were conducted with 21 people, including managers, careworkers, nurses, family members and residents. These data were thematically analysed using the constant comparative method. The main indicators of quality for staff, family and residents included: a home-like, friendly and safe environment good medical and personal care respect for the residents and good staff. Participants also acknowledged the need for adjustments by residents to living in aged care and the challenges of caring for increasingly frail residents. Findings support the growing recognition of a need for resident-centred approaches to ARC that are reflected in government policy and regulatory apparatus. Managers in ARC facilities must balance adherence with health and safety standards, and providing an environment where their residents can enjoy a meaningful life that has purpose and value.
Publisher: Springer Publishing Company
Date: 2016
Abstract: The abstract consideration of ethical questions in family and informal caregiving might rightly be criticized for ignoring the lived experience of people. This chapter seeks to avoid such oversight by reflecting on ethical issues in family care in a way that is based on careful social scientific inquiry into the well-being of caregivers. The chapter draws on our research and experience in working with family caregivers, both professionally and personally. We step back from a practical concern with policies to support the well-being of caregivers to consider ethical issues associated with their typically hidden role. The chapter begins by noting the growing reliance on family care today. It proceeds to outline the dynamic experience of moving into and out of the caregiver role, before discussing key ethical issues associated with family care. Many of these stem from the risk that caregivers can come to share in the reduced circumstances and vulnerability of those for whom they care. Critical ethical issues are related to the typically "unboundaried" responsibility of family caregivers for the well-being of the cared-for person, something that can be contrasted with the more boundaried and intermittent responsibility of formal caregivers. Additionally, all too often, family caregivers encounter situations where their responsibilities exceed their capacities, but where a choice to not provide care will result in harm to the cared-for person. In discussing these issues, this chapter seeks to make the case for developing more responsive forms of support that promote positive benefits for both caregivers and care recipients.
Publisher: Te Pukenga
Date: 2020
Publisher: SAGE Publications
Date: 09-07-2016
Abstract: This research describes a community dance project for people affected by cancer, which was led by a trained community dancer over 10 movement workshops and three performances. Using a qualitative descriptive approach, the research explored the experiences of a convenience s le of 8 participants out of the original group of 17 in iduals who took part in the community dance. The research was participatory and the researchers were involved in workshops and performances as members of the group who also had family members with cancer. The findings indicate the motivation of the dancers to continue in spite of hardship, their sense of pride in being part of something that was larger than themselves, the way the dance permitted them to embody a sense of courage, and finally, in performing, how they managed to share something that genuinely moved an audience.
Publisher: Elsevier BV
Date: 12-2015
DOI: 10.1016/J.JAGING.2015.08.010
Abstract: In this article we explore the ways in which two aged residential care facilities in New Zealand construct and present themselves through the stories told by those who live and work in them. Ethnographic field notes and interviews were analysed using an immersion/crystallization method consistent with a narrative gerontology framework. Woven into residents' stories about their lives in the facility were tales of earlier lives and identities, immigration, occupations, marriage, tragedies and medical emergencies. Care workers, nursing staff and managers talked about vocation, the ethos and values of the institution and the importance that both staff and residents felt a sense of belonging and 'being one of us.' These stories, 'talk into reality' the aged residential care facility as a particular kind of rest home, in which residents feel 'at home'. In addition, as researchers who brought our own stories to the project, we actively contributed to the construction of each institution as a certain kind of facility.
Publisher: Te Pukenga
Date: 2020
Publisher: Te Pukenga
Date: 2020
Publisher: Informa UK Limited
Date: 04-05-2023
Publisher: Det Kgl. Bibliotek/Royal Danish Library
Date: 21-01-2022
Abstract: This paper is a case study of a particular project (the Vision 20/20 project), which was developed by students on an interdisciplinary project. The goal of the project was to develop a child-to-child vision screening toolkit to integrate eye health into the school curriculum and make vision testing more accessible for children. An interdisciplinary research team was formed to support the students, and then continued to work together to ensure the ongoing sustainability of the project. The team used an action research approach and consisted of researchers and practitioners from three institutions: Otago Polytechnic, the University of Otago, and Tahuna Intermediate School (10-13 year olds). It was made of occupational therapists, optometrists, product designers, teachers and learners (at multiple levels). This case study exemplifies how problem-based learning can provide a context for students to do real work that makes a difference in the world. This goal of the Vision 20/20 project connects closely with the commitment underpinning the UN Sustainable Development Goals, which is to leave no one behind. The SDG for health (Goal 3: Good Health and Wellbeing) links with the World Health Organisation Global Action Plan on Universal Eye Health. There is considerable scope for this project to continue to develop in ways that will feed our long-term goal of ensuring that no child is left behind because of poor vision. Similarly this project illustrates how faculty members from different disciplines can work together to develop a learning environment that enriches student’s learning opportunities.
Publisher: Oxford University Press (OUP)
Date: 13-11-2019
Abstract: Background and Objectives: People with dementia are critically dependent on their carers when accessing and utilizing health care. To inform health care development and delivery, we aimed to explore carers’ perceptions of their role in caring for a family member with dementia and to identify carers’ skills and attributes and factors impacting on care. Research Design and Methods: We used semistructured interviews to collect data from 25 carers supporting older adults with dementia. Data were thematically analyzed and the paradigm model was used to guide theory development. Results: “Constructing normalcy” was central to all carers did, impacted by stage of life and relationship status and driven by a holistic focus on their care-recipient’s quality of life. Goals guiding care were: keeping the peace facilitating participation, happiness and independence and ensuring safety. Enablers included: social contact knowledge and quality social services. Barriers included health and legal issues symptoms of dementia and reduced knowledge. These goals kept the peace and reduced stress for the cared-for person, but often at the cost of unrelenting responsibility and loss of carers’ original roles. Discussion and Implications: As carers are so critical to the access and uptake of health care of those with dementia, health professionals and services need to support carers in their quest to construct normalcy. Our findings provide guidance to assist in ensuring appropriate support and understanding of carers work in order to optimize dementia health care delivery.
Publisher: Informa UK Limited
Date: 09-05-2018
Publisher: Te Pukenga
Date: 2019
Publisher: Informa UK Limited
Date: 2011
DOI: 10.3109/09638288.2011.568082
Abstract: This paper examines the lived experience of uncertain medical diagnosis in patients with a serious injury. Data reported in this article are from the qualitative component of a multi-method study. Nineteen participants were purposively selected from a longitudinal quantitative study (n = 2856) undertaken in five regions of New Zealand, investigating the outcomes of injury. This article reports results from qualitative interviews taking place approximately 6 months after the injury event. The results section focuses on the lived experience of the injured patient who does not have a definite diagnosis. It describes the difficulty of persuading both health professionals and the workplace to take ongoing injury effects seriously, when the diagnosis cannot be clearly articulated. Issues associated with health professionals as gatekeepers to resources are raised, and also the potential for extended uncertainty to stigmatise the patient. Finally, the emotional impact of injury is discussed as an issue that is not often recognised. Vague diagnostic labels attached to serious but invisible injury potentially reduce legitimate access to rehabilitation and the sick role. The socio-cultural context within which medicine is administered produces specific tensions in the clinical encounter. It is hypothesised that patients with uncertain diagnosis may be particularly at risk of the emergence of disability.
Publisher: Otago Polytechnic
Date: 2019
DOI: 10.34074/SCOP.3004
Publisher: Wiley
Date: 10-04-2012
Publisher: Elsevier BV
Date: 06-2020
Publisher: Informa UK Limited
Date: 03-04-2019
Publisher: Te Pukenga
Date: 2019
Publisher: Cambridge University Press (CUP)
Date: 10-2021
DOI: 10.1017/S0963180121000104
Abstract: Responses to brain injury sit in the intersection between neuroscience and an ethic of care, and require sensitive and dynamic indicators of how an in idual with brain injury can learn how to live in the context of a changing environment and multiple timescales. Therapeutic relationships and rhythms underpinning such a dynamic approach are currently obscured by existing models of brain function. Something older is required and we put forward narrative types articulating outcomes of brain injury over various periods and starting points in time. Such storytelling challenges a static neuropsychological paradigm and moves from an ethics that focuses on patient autonomy into one that is reflective of the cognitive supports and therapeutic relationships that underpin ways that the patient can re-find the beat that proves the music is not over.
Publisher: SAGE Publications
Date: 12-06-2019
Publisher: Cambridge University Press (CUP)
Date: 09-12-2019
DOI: 10.1017/S0144686X19001636
Abstract: Considering the important role that paid support workers play in care of older people with dementia, it is vital that researchers and relevant organisations understand the factors that lead to them feeling valued for the work that they do, and the consequences of such valuing (or lack thereof). The current study employed semi-structured interviews to understand the in idual experiences of 15 support workers based both in residential care homes and private homes. The General Inductive Approach was used to analyse the interview transcriptions and to develop a conceptual model that describes the conditions that lead to support workers feeling valued for the work that they do. This model consists of organisational or in idual strategies, the context in which support work takes place, and various interactions, actions and intervening conditions that facilitate or prevent support workers feeling valued. A significant finding in this research was the role of interpersonal relationships and interactions which underlie all other aspects of the conceptual model developed here. By understanding the importance of how employers, families of older adults with dementia and peers interact with support workers, we may promote not only the quality of work that support workers deliver, but also the wellbeing of the support workers themselves.
Location: United Kingdom of Great Britain and Northern Ireland
No related grants have been discovered for Mary Butler.