ORCID Profile
0000-0001-9858-1875
Current Organisations
University of South Australia
,
Eindhoven University of Technology
,
Center for Sleep Medicine Kempenhaeghe
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Publisher: Young and Well Cooperative Research Centre
Date: 2015
Publisher: Routledge
Date: 27-03-2023
Publisher: Young and Well Cooperative Research Centre
Date: 2016
Publisher: Springer Science and Business Media LLC
Date: 09-01-2015
DOI: 10.1007/S00038-014-0642-Y
Abstract: To examine the relationship between young Australians' cyberbullying experiences, their help-seeking practices and associated mental well-being and social connectedness, with a view to informing national health and well-being agendas. An online survey was administered to young people aged 12-18 years (n = 2,338), recruited across Australia in year 2 of a larger 4-year study. Youth with no experience of cyberbullying had better well-being profiles and mental health overall. Conversely, cyberbully victims, had poorer well-being and mental health and tended not to engage with online support services, in spite of being more likely to be online after 11 pm. Parents and peers were identified as key sources of help for most young people when dealing with problems. Cyberbullying is a public health issue particularly for vulnerable youth whose mental health and well-being is impacted more than those not involved. As youth are spending increasing time in the 24/7 online environment, there is a need to develop initiatives that engage young people and encourage help-seeking online, whilst concomitantly building capacity of parents and peers to support their well-being.
Publisher: Wiley
Date: 18-03-2013
DOI: 10.1111/JSR.12044
Abstract: The aim of this study was to describe the clinical and PSG characteristics of narcolepsy with cataplexy and their genetic predisposition by using the retrospective patient database of the European Narcolepsy Network (EU-NN). We have analysed retrospective data of 1099 patients with narcolepsy diagnosed according to International Classification of Sleep Disorders-2. Demographic and clinical characteristics, polysomnography and multiple sleep latency test data, hypocretin-1 levels, and genome-wide genotypes were available. We found a significantly lower age at sleepiness onset (men versus women: 23.74 ± 12.43 versus 21.49 ± 11.83, P = 0.003) and longer diagnostic delay in women (men versus women: 13.82 ± 13.79 versus 15.62 ± 14.94, P = 0.044). The mean diagnostic delay was 14.63 ± 14.31 years, and longer delay was associated with higher body mass index. The best predictors of short diagnostic delay were young age at diagnosis, cataplexy as the first symptom and higher frequency of cataplexy attacks. The mean multiple sleep latency negatively correlated with Epworth Sleepiness Scale (ESS) and with the number of sleep-onset rapid eye movement periods (SOREMPs), but none of the polysomnographic variables was associated with subjective or objective measures of sleepiness. Variant rs2859998 in UBXN2B gene showed a strong association (P = 1.28E-07) with the age at onset of excessive daytime sleepiness, and rs12425451 near the transcription factor TEAD4 (P = 1.97E-07) with the age at onset of cataplexy. Altogether, our results indicate that the diagnostic delay remains extremely long, age and gender substantially affect symptoms, and that a genetic predisposition affects the age at onset of symptoms.
Publisher: Wiley
Date: 26-01-2016
DOI: 10.1111/JSR.12374
Abstract: Narcolepsy with cataplexy is a rare disease with an estimated prevalence of 0.02% in European populations. Narcolepsy shares many features of rare disorders, in particular the lack of awareness of the disease with serious consequences for healthcare supply. Similar to other rare diseases, only a few European countries have registered narcolepsy cases in databases of the International Classification of Diseases or in registries of the European health authorities. A promising approach to identify disease-specific adverse health effects and needs in healthcare delivery in the field of rare diseases is to establish a distributed expert network. A first and important step is to create a database that allows collection, storage and dissemination of data on narcolepsy in a comprehensive and systematic way. Here, the first prospective web-based European narcolepsy database hosted by the European Narcolepsy Network is introduced. The database structure, standardization of data acquisition and quality control procedures are described, and an overview provided of the first 1079 patients from 18 European specialized centres. Due to its standardization this continuously increasing data pool is most promising to provide a better insight into many unsolved aspects of narcolepsy and related disorders, including clear phenotype characterization of subtypes of narcolepsy, more precise epidemiological data and knowledge on the natural history of narcolepsy, expectations about treatment effects, identification of post-marketing medication side-effects, and will contribute to improve clinical trial designs and provide facilities to further develop phase III trials.
Publisher: MDPI AG
Date: 26-05-2015
DOI: 10.3390/SOC5020492
Publisher: Cambridge University Press (CUP)
Date: 15-09-2021
DOI: 10.1017/JGC.2021.20
Abstract: Bullying and cyberbullying are global phenomena negatively impacting on children’s and young people’s (CYP’s) mental health and wellbeing and affecting their school social experiences and learning outcomes. Many interventions and prevention approaches have been employed over the decades, most impacting differentially, with some success in certain contexts and situations but not universally, suggesting the need for more contextualised, nuanced approaches at the whole school, community, in idual and peer-group levels. The recognition of the importance of student and teacher voice in recent years has heralded interest in co-design practices to deliver more context-relevant interventions and prevention strategies. This article considers how participatory design and co-design practices can form part of the prevention and intervention repertoire for schools, teachers, counsellors and psychologists in their quest to understand and reduce cyberbullying and/or bullying (C/B) behaviours. Two case-study exemplars are provided that reflect the importance of context and student-centred relevancy to inform practice.
Publisher: Young and Well Cooperative Research Centre
Date: 2016
Publisher: Young and Well Cooperative Research Centre
Date: 2016
Publisher: Springer Science and Business Media LLC
Date: 19-04-2022
DOI: 10.1007/S42380-022-00118-W
Abstract: Youth voice is acknowledged as being critical for any investigation into children and young people’s (CYP) lived experiences but is particularly important for the field of cyberbullying (Cb), where technology and social media have transformed traditional bullying into behaviors which operate across both online and offline settings. The significant social and economic costs of both cyber and traditional bullying (C/B) to CYP’s health, wellbeing, academic achievement, relationships, and quality of life are well documented quantitatively, however qualitative studies, which capture the voice of the in idual, and lived reality of the social contexts and experiences, remain limited. This paper presents one of the first qualitative meta-studies in this research area and models the feasibility and potentiality of this methodological approach to: (1) facilitate the synthesis of discrete qualitative studies concerning youth voice and co-participatory research practices, and (2) subsequently inform and extend methodological knowledge in the cyber/bullying (C/B) and youth wellbeing domains. The convergences/differences, ethical considerations, enablers, challenges, affordances, and limitations of five of the authors’ studies concerned with youth voice and co-participatory research methodologies are analyzed and synthesized to create new collective meanings and understandings. In doing so, this paper demonstrates a transdisciplinary and transformative approach: where new knowledge and unity of understanding is created which extends beyond each unique study and the discipline and domain in which it is situated. Findings from the meta-study indicate that providing youth with opportunities to shape research at all stages can empower them to design authentic preventative approaches directly relevant to their context and experiences, whilst simultaneously developing critical research and inquiry skills. This paper highlights the imperative for researchers to empower CYP as co-researchers and embrace them as change partners, simultaneously acknowledging the challenges this presents, including the shift in power of the researcher’s role which occurs. It also provides a warrant for employing meta-study approaches to discrete qualitative studies to inform and extend broader research and methodological agendas.
Publisher: Young and Well Cooperative Research Centre
Date: 2015
Publisher: Cambridge University Press
Date: 2018
Publisher: Elsevier
Date: 2018
Publisher: Wiley
Date: 27-11-2014
DOI: 10.1111/BJET.12229
Publisher: Routledge
Date: 22-11-2019
Publisher: Wiley
Date: 20-02-2019
DOI: 10.1002/PITS.22232
Publisher: Cambridge University Press
Date: 2018
No related grants have been discovered for Carmel Taddeo.