ORCID Profile
0000-0001-8566-8218
Current Organisations
Box Hill Institute
,
University of Melbourne
,
Swinburne University of Technology
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Publisher: Wiley
Date: 21-10-2022
DOI: 10.1111/CCH.13063
Abstract: This systematic review synthesized quantitative evidence from the past decade of the effectiveness of peer support programmes in improving the well‐being and/or quality of life (QoL) for parents/carers of children with disability/chronic illnesses. For children with disability or chronic illness, parents/carers are critical in enabling or limiting their child's development. The parent's/carer's ability to provide the necessary responsive and structured care is impacted by several factors, including their own personality, skills, resources and well‐being. Peer support programmes often aim to build parent/carer and/or family capabilities. Although studies and reviews have found positive benefits arising from such programmes, the impact of such programmes, specifically on well‐being and QoL, is unknown Quantitative studies published between 2011 and 2020 that examined the impact of programmes with a significant peer support component on parental/carer well‐being, QoL and/or distress were identified from four databases and were searched and yielded 3605 articles, with 13 articles meeting the inclusion criteria. The results suggested that peer support is effective for reducing distress and improving the well‐being and QoL among parents of children with disabilities however, the evidence is limited by a high risk of bias in the included studies. Although existing evidence suggests that programmes for parents/carers with a significant peer support component are beneficial for well‐being and QoL, rigorous methodologies are needed in the future to gain a better understanding of the benefits of such programmes.
Publisher: IGI Global
Date: 22-04-2022
DOI: 10.4018/978-1-6684-2490-2.CH039
Abstract: Globally, more than a billion people experience disability. Disability affects not only the in idual, but also their families. Parents and carers of a child with a disability have increased risk of economic and health burdens and tend to encounter systems focussed on the child's deficits. As parents of children with a disability and professionals in the disability sector, Annick Janson and Sylvana Mahmic wanted to help empower these families. They created Now and Next, a community and program for parents and carers of a child with disability. Now and Next is led by peer-facilitators, has run in four countries in a range of languages, and has grown into a thriving community of parents and carers actively supporting each other. An independent evaluation found that Now and Next improved parents' ability to set and achieve goals and their levels of wellbeing, hope, and empowerment. Annick and Sylvana provide an ex le of how by focussing on a child's strengths, transformation in disability is possible.
Location: Australia
No related grants have been discovered for Rachel Taylor.